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Discussion Forums
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1685 Posts in
137 Topics
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Last post on November 04, 2018, 02:07:42 AM
in Re: After Transplant by zahra
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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76 Posts in
8 Topics
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Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy Battaglia
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1989 Posts in
207 Topics
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Last post on July 28, 2018, 02:37:07 PM
in Re: Research Opportunity... by Andy Battaglia
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3975 Posts in
421 Topics
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Last post on November 11, 2018, 06:54:12 PM
in Re: Introduction and Blo... by Andy Battaglia
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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5356 Posts in
500 Topics
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Last post on Yesterday at 04:05:06 AM
in Re: Legs hurt and headac... by Radder
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3760 Posts in
326 Topics
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Last post on November 09, 2018, 04:28:05 PM
in Re: 8 years old Daughter... by Andy Battaglia
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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6009 Posts in
878 Topics
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Last post on November 09, 2018, 05:01:39 PM
in Re: Blood test results, ... by Andy Battaglia
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2925 Posts in
298 Topics
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Last post on September 24, 2018, 04:17:54 AM
in Lower Leg Scars by Imranjokhio
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6969 Posts in
496 Topics
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Last post on November 05, 2018, 08:46:09 AM
in Re: starting my son asun... by kaleem
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3605 Posts in
338 Topics
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Last post on November 12, 2018, 10:56:18 PM
in Re: Bluebird Bio Release... by Parin
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2220 Posts in
177 Topics
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Last post on September 30, 2018, 02:21:49 PM
in Re: Thalassemia & antibo... by Andy Battaglia
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1934 Posts in
205 Topics
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Last post on October 05, 2018, 05:09:44 PM
in Re: Nutritional Advice f... by Andy Battaglia
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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2174 Posts in
277 Topics
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Last post on November 03, 2018, 02:00:33 PM
in Re: Thalassemia Care in ... by Andy Battaglia
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5759 Posts in
477 Topics
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Last post on August 04, 2018, 07:34:54 PM
in 23andmeand Your Privacy by Andy Battaglia
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3512 Posts in
672 Topics
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Last post on March 30, 2018, 09:02:11 AM
in Re: Remembering Lisa on ... by zahra
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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204 Posts in
66 Topics
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Last post on March 22, 2018, 05:20:19 AM
in Re: Delayed Puberty in T... by Dharmesh
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Treatment Centers
Please tell us where you receive your treatment.
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306 Posts in
85 Topics
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Last post on November 11, 2017, 02:34:11 AM
in Re: is there any THALSSE... by mumtaz
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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63 Posts in
15 Topics
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Last post on September 24, 2016, 11:59:09 AM
in Re: Thalassemia doctors ... by Andy Battaglia
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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188 Posts in
37 Topics
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Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy Battaglia
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Blood Donor Registration Groups
List your blood donor sign-up group here
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34 Posts in
7 Topics
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Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy Battaglia
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