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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1773 Posts in
177 Topics
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Last post on December 08, 2013, 05:36:32 PM
in Re: A little patience fo... by Sharmin
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3596 Posts in
371 Topics
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Last post on November 01, 2013, 08:42:39 AM
in Re: Thalassemia major or... by Rajiv
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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4558 Posts in
395 Topics
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Last post on December 04, 2013, 05:19:11 AM
in Re: Launch of Thalassemi... by shaziya
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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2892 Posts in
241 Topics
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Last post on December 08, 2013, 12:43:28 PM
in Re: Thalassemia, blood t... by Andy
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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4660 Posts in
654 Topics
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Last post on December 08, 2013, 12:58:18 PM
in Re: Thal minor and autoi... by Andy
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2621 Posts in
254 Topics
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Last post on November 29, 2013, 10:52:53 AM
in Re: new technology for a... by Pratik
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6157 Posts in
435 Topics
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Last post on December 07, 2013, 08:08:30 AM
in Re: Start decreasing Fe by Pratik
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1303 Posts in
101 Topics
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Last post on November 25, 2013, 10:31:02 PM
in Re: Bone Marrow Transpla... by catchR
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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52 Posts in
5 Topics
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Last post on August 27, 2013, 08:22:32 PM
in Re: FerriScan validation by Andy
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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2909 Posts in
281 Topics
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Last post on December 03, 2013, 09:48:57 AM
in Bluebird Bio Announces f... by Sharmin
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2071 Posts in
150 Topics
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Last post on November 13, 2013, 10:14:21 AM
in Re: High Altitude Mounta... by Bobby
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1521 Posts in
161 Topics
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Last post on Yesterday at 11:41:02 PM
in Re: Vitamin and Mineral ... by htuongvy
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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1879 Posts in
247 Topics
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Last post on December 03, 2013, 09:46:47 AM
in Re: Hi this is saddam pl... by Sharmin
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5547 Posts in
437 Topics
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Last post on October 28, 2013, 12:51:32 PM
in Great study I am learnin... by omnimatty
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3458 Posts in
658 Topics
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Last post on November 07, 2013, 09:03:12 AM
in Re: What about Chatroom ... by Andy
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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170 Posts in
63 Topics
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Last post on October 14, 2013, 04:53:09 PM
in Re: Blood Transfusion by... by Baby_boy
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Treatment Centers
Please tell us where you receive your treatment.
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245 Posts in
76 Topics
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Last post on March 13, 2013, 06:50:06 AM
in Re: Need a Thal Center i... by foka
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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17 Posts in
9 Topics
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Last post on November 30, 2013, 09:39:25 AM
in Re: Any doctors in Brisb... by Andy
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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153 Posts in
34 Topics
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Last post on March 07, 2013, 01:23:55 PM
in Re: Thalassemia Societie... by Hewsauce
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Blood Donor Registration Groups
List your blood donor sign-up group here
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26 Posts in
7 Topics
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Last post on May 20, 2012, 03:02:18 PM
in Re: blood donor has the ... by Pratik
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy
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