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Discussion Forums
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1590 Posts in
129 Topics
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Last post on Yesterday at 11:54:42 PM
in Re: Newest Treatments by dq
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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76 Posts in
8 Topics
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Last post on July 24, 2016, 06:25:58 PM
in Re: Ferriscan in india (... by Andy
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1944 Posts in
198 Topics
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Last post on Yesterday at 05:52:17 PM
in Donate to Bangladesh Tha... by Andy
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3953 Posts in
416 Topics
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Last post on May 06, 2017, 05:49:24 PM
in Re: Alpha Thalasemia tra... by omojohn
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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5257 Posts in
485 Topics
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Last post on June 15, 2017, 04:46:30 PM
in Re: Blood transfusion in... by Andy
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3645 Posts in
312 Topics
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Last post on Yesterday at 11:49:50 PM
in Re: Thalassemia and Sezu... by dq
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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5600 Posts in
807 Topics
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Last post on Yesterday at 05:46:56 PM
in Re: My thalassemia minor... by Andy
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2895 Posts in
289 Topics
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Last post on June 12, 2017, 01:35:44 AM
in Re: higher the indirect ... by Andy
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6893 Posts in
489 Topics
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Last post on Yesterday at 05:27:59 PM
in Re: Novartis Oleptis by Andy
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3531 Posts in
328 Topics
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Last post on Yesterday at 05:47:59 PM
in Re: Bluebird Bio Release... by Andy
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2191 Posts in
171 Topics
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Last post on March 21, 2017, 03:12:01 PM
in Patients and Caregivers ... by Andy
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1889 Posts in
196 Topics
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Last post on May 26, 2017, 08:35:04 PM
in Re: Nutritional Advice f... by Andy
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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2121 Posts in
272 Topics
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Last post on Yesterday at 05:41:53 PM
in Re: TrueHb Hemometer by Andy
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5754 Posts in
475 Topics
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Last post on June 12, 2017, 03:30:25 PM
in medication that clears e... by ironjustice
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3507 Posts in
670 Topics
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Last post on March 27, 2017, 05:08:26 AM
in Re: On Lisa's Birthday by Bostonian_04
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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202 Posts in
66 Topics
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Last post on February 16, 2017, 07:38:22 AM
in HbF inducers an alternat... by urja
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Treatment Centers
Please tell us where you receive your treatment.
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302 Posts in
85 Topics
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Last post on June 04, 2017, 02:41:43 AM
in Re: Thalassemia Treatmen... by zahra
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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63 Posts in
15 Topics
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Last post on September 24, 2016, 04:59:09 PM
in Re: Thalassemia doctors ... by Andy
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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188 Posts in
37 Topics
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Last post on July 09, 2016, 02:08:08 AM
in Re: New European Ad Boar... by Andy
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Blood Donor Registration Groups
List your blood donor sign-up group here
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34 Posts in
7 Topics
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Last post on February 23, 2016, 10:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 12, 2013, 01:53:15 AM
in Re: Earliest Reliable Te... by Andy
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