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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1994 Posts in
208 Topics
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Last post on April 18, 2019, 06:48:16 AM
in Re: Why I Am Not Around ... by Zaini
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3979 Posts in
423 Topics
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Last post on Today at 02:46:22 AM
in Hey! Sort of new here, h... by Tajefia
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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5367 Posts in
503 Topics
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Last post on March 10, 2019, 06:07:51 PM
in Re: Thrombosis in thalas... by Andy Battaglia
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3762 Posts in
327 Topics
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Last post on January 21, 2019, 04:47:38 PM
in Re: Seeking Advice Regar... by Andy Battaglia
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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6059 Posts in
888 Topics
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Last post on Today at 03:48:17 PM
in Re: I Need Help/Insight ... by cannondale91
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2932 Posts in
301 Topics
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Last post on March 04, 2019, 10:18:54 AM
in Re: Beta-2 microglobulin... by Canadian_Family
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6980 Posts in
498 Topics
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Last post on April 13, 2019, 11:54:00 AM
in Re: Jadenu side effects ... by Andy Battaglia
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1722 Posts in
141 Topics
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Last post on March 28, 2019, 12:04:26 AM
in Re: BMT of my 2 year Old... by kaleem
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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76 Posts in
8 Topics
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Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy Battaglia
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3627 Posts in
340 Topics
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Last post on April 02, 2019, 09:08:48 PM
in Re: Bluebird Bio Release... by Parin
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2221 Posts in
178 Topics
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Last post on April 05, 2019, 08:41:43 AM
in Aminoglycoside Antibioti... by ironjustice
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1949 Posts in
207 Topics
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Last post on April 18, 2019, 06:51:56 AM
in Re: Tired by Zaini
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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2175 Posts in
277 Topics
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Last post on January 26, 2019, 09:02:54 AM
in Re: Dr Ramanan in Pune by Keru my angel
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5759 Posts in
477 Topics
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Last post on August 04, 2018, 07:34:54 PM
in 23andmeand Your Privacy by Andy Battaglia
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3514 Posts in
673 Topics
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Last post on March 24, 2019, 12:23:04 AM
in Re: On the Anniversary o... by zahra
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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204 Posts in
66 Topics
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Last post on March 22, 2018, 05:20:19 AM
in Re: Delayed Puberty in T... by Dharmesh
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Treatment Centers
Please tell us where you receive your treatment.
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306 Posts in
85 Topics
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Last post on November 11, 2017, 02:34:11 AM
in Re: is there any THALSSE... by mumtaz
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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63 Posts in
15 Topics
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Last post on September 24, 2016, 11:59:09 AM
in Re: Thalassemia doctors ... by Andy Battaglia
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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188 Posts in
37 Topics
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Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy Battaglia
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Blood Donor Registration Groups
List your blood donor sign-up group here
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34 Posts in
7 Topics
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Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy Battaglia
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