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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1817 Posts in
180 Topics
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Last post on Yesterday at 12:29:12 PM
in Re: Two Day Thal. Confer... by Andy
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3693 Posts in
384 Topics
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Last post on November 26, 2014, 09:46:12 PM
in Re: To transfuse or not ... by Andy
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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4781 Posts in
425 Topics
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Last post on Yesterday at 12:46:27 PM
in Re: To check which type ... by Andy
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3011 Posts in
259 Topics
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Last post on January 30, 2015, 02:42:06 PM
in Re: Newly diagnosed Thal... by Andy
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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4986 Posts in
714 Topics
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Last post on Yesterday at 10:32:12 PM
in Re: Real causes of fatig... by mkpr13
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2734 Posts in
267 Topics
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Last post on January 22, 2015, 11:47:34 AM
in Re: IV locations for tra... by Bostonian_04
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6360 Posts in
459 Topics
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Last post on Yesterday at 12:28:27 PM
in Re: change form exjade t... by Andy
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1362 Posts in
110 Topics
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Last post on January 22, 2015, 08:06:55 AM
in Re: bone marrow transpla... by runa2005
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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56 Posts in
5 Topics
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Last post on August 20, 2014, 03:33:26 PM
in Re: Seeking FerriScan pa... by Danielle
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3128 Posts in
295 Topics
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Last post on January 25, 2015, 08:49:05 AM
in Re: Scope of Gene Therap... by Himanshu Kumar
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2097 Posts in
159 Topics
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Last post on January 28, 2015, 03:43:11 AM
in Comprihensive Thalpal bo... by jay
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1648 Posts in
171 Topics
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Last post on January 24, 2015, 03:46:46 AM
in Re: L-Carnitine Vs Acety... by HANUMANT AASHRIT
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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1988 Posts in
257 Topics
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Last post on January 28, 2015, 04:56:58 PM
in Re: Blood Transfusion in... by Andy
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5565 Posts in
440 Topics
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Last post on January 12, 2015, 11:09:35 PM
in Re: Indian Court Rejects... by Andy
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3477 Posts in
663 Topics
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Last post on January 05, 2015, 11:01:45 PM
in Re: ***HAPPY NEW YEAR **... by samyuktha
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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180 Posts in
65 Topics
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Last post on January 23, 2015, 07:49:17 AM
in Re: Tests to be done for... by JV
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Treatment Centers
Please tell us where you receive your treatment.
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252 Posts in
77 Topics
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Last post on November 29, 2014, 03:42:08 AM
in Global directory of thal... by EugenioLaMesa
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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32 Posts in
11 Topics
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Last post on October 28, 2014, 02:12:32 AM
in Re: Thalassemia Treatmen... by wyrlo
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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173 Posts in
35 Topics
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Last post on January 13, 2015, 01:31:53 AM
in Re: help Aysel by djema
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Blood Donor Registration Groups
List your blood donor sign-up group here
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27 Posts in
7 Topics
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Last post on January 14, 2014, 08:37:38 AM
in Re: blood donor has the ... by joyce
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy
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