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Discussion Forums
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1608 Posts in
130 Topics
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Last post on Yesterday at 10:39:05 PM
in Accceptable mortality ri... by Lan Anh
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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76 Posts in
8 Topics
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Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1949 Posts in
200 Topics
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Last post on July 31, 2017, 01:30:55 PM
in An Update on Thalassemia... by Parin
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3955 Posts in
417 Topics
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Last post on June 28, 2017, 12:12:08 AM
in Re: Hi! Questions over 1... by Andy
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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5276 Posts in
486 Topics
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Last post on August 19, 2017, 12:35:48 PM
in Re: update on Hassan by Andy
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3678 Posts in
315 Topics
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Last post on August 19, 2017, 12:50:53 PM
in Re: Circumcision by Andy
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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5664 Posts in
820 Topics
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Last post on Today at 05:52:51 AM
in Re: Any Vitamins to avoi... by Lokkhi maa
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2896 Posts in
290 Topics
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Last post on August 12, 2017, 05:31:37 AM
in High Hbf level a good si... by Hasan
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6912 Posts in
491 Topics
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Last post on August 08, 2017, 02:50:40 PM
in Re: Jadenu - should be t... by Bostonian_04
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3537 Posts in
328 Topics
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Last post on August 08, 2017, 11:15:27 PM
in Re: Haploidentical stem ... by Sharmin
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2194 Posts in
172 Topics
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Last post on July 12, 2017, 09:28:23 AM
in Re: Recently diagnosed w... by hazel_frenzi_HbH
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1891 Posts in
197 Topics
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Last post on July 31, 2017, 05:02:29 PM
in Re: Hemoglobine H Consta... by Andy
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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2153 Posts in
273 Topics
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Last post on August 11, 2017, 07:35:23 PM
in Re: carrier and sickle c... by Andy
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5755 Posts in
476 Topics
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Last post on July 13, 2017, 11:39:46 PM
in New medicine for sickle ... by Mubeen
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3507 Posts in
670 Topics
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Last post on March 27, 2017, 12:08:26 AM
in Re: On Lisa's Birthday by Bostonian_04
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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202 Posts in
66 Topics
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Last post on February 16, 2017, 01:38:22 AM
in HbF inducers an alternat... by urja
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Treatment Centers
Please tell us where you receive your treatment.
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302 Posts in
85 Topics
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Last post on June 03, 2017, 09:41:43 PM
in Re: Thalassemia Treatmen... by zahra
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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63 Posts in
15 Topics
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Last post on September 24, 2016, 11:59:09 AM
in Re: Thalassemia doctors ... by Andy
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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188 Posts in
37 Topics
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Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy
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Blood Donor Registration Groups
List your blood donor sign-up group here
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34 Posts in
7 Topics
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Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy
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