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Thalassemia Patients and Friends and thalpal © A. Battaglia 2018

54727 Posts in 5800 Topics by 6030 Members
Latest Member: Abdellah

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Discussion Forums
No New Posts Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT. The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
Moderator: EugenioLaMesa
1678 Posts in
137 Topics
Last post on April 14, 2018, 01:45:49 PM
in Re: After Transplant by Andy Battaglia
No New Posts Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
Moderator: WendyW
76 Posts in
8 Topics
Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy Battaglia
No New Posts Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
1989 Posts in
207 Topics
Last post on July 28, 2018, 02:37:07 PM
in Re: Research Opportunity... by Andy Battaglia
No New Posts The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
3972 Posts in
420 Topics
Last post on August 18, 2018, 03:07:34 PM
in Re: Thal Minor Trekking ... by Andy Battaglia
No New Posts Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
5343 Posts in
498 Topics
Last post on August 01, 2018, 12:14:21 PM
in Re: Jaakafi by djema
No New Posts Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
3749 Posts in
325 Topics
Last post on August 05, 2018, 04:08:33 PM
in Re: transfusion reaction... by spoiled711
No New Posts Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
5989 Posts in
875 Topics
Last post on Yesterday at 05:57:16 AM
in Re: " Normal variation "... by Amyntas
No New Posts Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
2914 Posts in
293 Topics
Last post on July 31, 2018, 11:49:30 PM
in Re: Any Member can reply... by Mubeen
No New Posts Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
6963 Posts in
496 Topics
Last post on March 08, 2018, 12:16:46 PM
in Re: Desferal NATIONAL BA... by EugenioLaMesa
No New Posts Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc. (Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
3585 Posts in
338 Topics
Last post on Today at 06:56:31 AM
in Re: Update [Luspatercept... by dq
No New Posts Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
2217 Posts in
176 Topics
Last post on May 16, 2018, 01:42:27 PM
in Re: Weightloss Surgery by Querier
No New Posts Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
1932 Posts in
205 Topics
Last post on July 14, 2018, 03:38:14 PM
in Re: Ellagic Acid by Andy Battaglia
No New Posts Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
2165 Posts in
275 Topics
Last post on August 10, 2018, 03:39:28 PM
in Re: Would these blood te... by Andy Battaglia
No New Posts General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
5759 Posts in
477 Topics
Last post on August 04, 2018, 07:34:54 PM
in 23andmeand Your Privacy by Andy Battaglia
No New Posts Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
3512 Posts in
672 Topics
Last post on March 30, 2018, 09:02:11 AM
in Re: Remembering Lisa on ... by zahra

An Angel's Corner
No New Posts Tribute to Lisa Cammilleri (1970-2004)
Lisa touched many lives. How did she touch yours? Share your memories, stories, photos, poems, etc.
60 Posts in
11 Topics
Last post on December 28, 2017, 09:05:27 AM
in Re: Thank you by Isha

The Basics of Thalassemia
No New Posts What is Thalassemia and How is it Treated?
3 Posts in
3 Topics
Last post on June 07, 2008, 04:10:00 PM
in The Alpha Thalassemias by Andy Battaglia

Remembering Our Friends
No New Posts In Memory Of
Tributes to Those We've Known. Remember Your Loved Ones Here.
779 Posts in
67 Topics
Last post on March 29, 2016, 02:44:09 PM
in Re: Happy Birthday to Li... by Bostonian_04

Miscellaneous Forums
No New Posts Documents
Download chat transcripts, newsletters, flyers, and other documents here.
204 Posts in
66 Topics
Last post on March 22, 2018, 05:20:19 AM
in Re: Delayed Puberty in T... by Dharmesh
No New Posts Treatment Centers
Please tell us where you receive your treatment.
306 Posts in
85 Topics
Last post on November 11, 2017, 02:34:11 AM
in Re: is there any THALSSE... by mumtaz
No New Posts Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
63 Posts in
15 Topics
Last post on September 24, 2016, 11:59:09 AM
in Re: Thalassemia doctors ... by Andy Battaglia
No New Posts Thalassemia Associations
Post info about your Local and National Thal Associations.
188 Posts in
37 Topics
Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy Battaglia
No New Posts Blood Donor Registration Groups
List your blood donor sign-up group here
34 Posts in
7 Topics
Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
No New Posts Older Chatter
Older Threads From General Chatter
1172 Posts in
99 Topics
Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy Battaglia

Give a Gift to Thalassemia Patients and Friends
No New Posts Give a Gift to Thalassemia Patients and Friends
Give a gift to Thalassemia Patients and Friends using Paypal.com
4 Posts in
1 Topics
Last post on June 27, 2008, 04:35:04 PM
in Re: Give a Gift to Thala... by Andy Battaglia

Website Disclaimer Notice
No New Posts Website Disclaimer Notice
3 Posts in
1 Topics
Last post on August 14, 2009, 01:10:41 PM
in Re: Website Disclaimer N... by Zaini

Thalassemia Patients and Friends - Info Center
Forum Stats
Forum Stats
Total Topics: 5800
Total Posts: 54727
Latest Post: "Re: Update [Luspatercept..." (Today at 06:56:31 AM)
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Total Members: 6030
Latest Member: Abdellah
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