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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1773 Posts in
177 Topics
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Last post on December 08, 2013, 05:36:32 PM
in Re: A little patience fo... by Sharmin
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3626 Posts in
376 Topics
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Last post on March 31, 2014, 09:35:03 AM
in Re: Thalassemia major or... by Rajiv
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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4640 Posts in
407 Topics
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Last post on April 15, 2014, 01:04:31 AM
in Re: Gene Therepy by Harshul
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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2919 Posts in
247 Topics
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Last post on Yesterday at 01:18:30 AM
in Re: Constant Dry Mouth &... by HANUMANT AASHRIT
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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4797 Posts in
683 Topics
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Last post on Today at 07:18:52 PM
in Re: Not sure what to do,... by Andy
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2646 Posts in
258 Topics
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Last post on April 13, 2014, 07:12:00 PM
in Re: Have We Cured Hepati... by Andy
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6225 Posts in
445 Topics
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Last post on Yesterday at 10:58:23 AM
in Re: Start decreasing Fe by Suelou
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1318 Posts in
105 Topics
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Last post on April 15, 2014, 07:35:25 PM
in Artificial Bone marrow t... by Sharmin
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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55 Posts in
5 Topics
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Last post on February 25, 2014, 06:51:18 AM
in Re: FerriScan validation by Poirot
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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2932 Posts in
283 Topics
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Last post on April 14, 2014, 10:58:51 PM
in Artificial blood by hopefulmommy
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2073 Posts in
151 Topics
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Last post on March 23, 2014, 08:32:32 PM
in Re: I'm new....help??? by Leej
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1535 Posts in
161 Topics
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Last post on March 18, 2014, 05:28:30 PM
in Re: Nutritional Advice f... by Andy
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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1916 Posts in
249 Topics
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Last post on March 08, 2014, 02:59:13 AM
in Re: Increasing Bone Mass by Himanshu Kumar
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5547 Posts in
437 Topics
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Last post on October 28, 2013, 12:51:32 PM
in Great study I am learnin... by omnimatty
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3467 Posts in
660 Topics
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Last post on February 26, 2014, 11:51:02 AM
in Re: Sochi Winter Olympic... by Canadian_Family
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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172 Posts in
63 Topics
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Last post on December 17, 2013, 08:59:21 AM
in Re: Foods and Drugs to A... by Andy
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Treatment Centers
Please tell us where you receive your treatment.
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245 Posts in
76 Topics
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Last post on March 13, 2013, 06:50:06 AM
in Re: Need a Thal Center i... by foka
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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23 Posts in
10 Topics
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Last post on January 23, 2014, 12:16:32 PM
in Re: Desired doctor/cente... by tushant3497
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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153 Posts in
34 Topics
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Last post on March 07, 2013, 01:23:55 PM
in Re: Thalassemia Societie... by Hewsauce
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Blood Donor Registration Groups
List your blood donor sign-up group here
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27 Posts in
7 Topics
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Last post on January 14, 2014, 08:37:38 AM
in Re: blood donor has the ... by joyce
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy
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