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Discussion Forums
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Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
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1999 Posts in
211 Topics
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Last post on September 30, 2019, 03:13:32 PM
in Rapamycin may reduce acc... by ironjustice
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The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
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3983 Posts in
424 Topics
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Last post on February 07, 2020, 04:11:15 PM
in Re: Im moving to Chicago... by Andy Battaglia
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Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
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5396 Posts in
508 Topics
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Last post on Yesterday at 03:58:29 PM
in Re: COVID-19 by jay
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Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
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3773 Posts in
331 Topics
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Last post on March 30, 2020, 04:42:36 PM
in Twins with Hbe/Beta Thal... by BashX
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Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
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6159 Posts in
909 Topics
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Last post on March 30, 2020, 04:02:58 AM
in Re: Silent Alpha Thalass... by Melontan
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Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
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2942 Posts in
305 Topics
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Last post on January 20, 2020, 10:50:44 PM
in Re: Migraine headache in... by restless923
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Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
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6985 Posts in
498 Topics
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Last post on January 30, 2020, 05:53:44 PM
in Re: Asunra by Andy Battaglia
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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT.
The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
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1753 Posts in
142 Topics
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Last post on March 04, 2020, 01:11:02 PM
in Re: BMT of my 2 year Old... by kaleem
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Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
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76 Posts in
8 Topics
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Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy Battaglia
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Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc.
(Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
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3650 Posts in
342 Topics
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Last post on December 15, 2019, 07:38:33 AM
in Re: REBLOZYL (Luspaterce... by smit-17
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Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
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2228 Posts in
181 Topics
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Last post on February 07, 2020, 04:18:12 PM
in Re: Selective abortion f... by Andy Battaglia
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Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
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1951 Posts in
208 Topics
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Last post on October 19, 2019, 02:15:50 PM
in Re: Kulekhara (Hygrophil... by Andy Battaglia
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Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
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2187 Posts in
280 Topics
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Last post on March 22, 2020, 05:27:16 PM
in Re: How accurate are blo... by Andy Battaglia
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General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
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5762 Posts in
479 Topics
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Last post on March 23, 2020, 06:14:08 PM
in Re: I'm Back by Andy Battaglia
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Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
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3518 Posts in
674 Topics
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Last post on March 27, 2020, 04:01:42 PM
in Re: Happy Birthday Lisa ... by zahra
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Miscellaneous Forums
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Documents
Download chat transcripts, newsletters, flyers, and other documents here.
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204 Posts in
66 Topics
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Last post on March 22, 2018, 05:20:19 AM
in Re: Delayed Puberty in T... by Dharmesh
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Treatment Centers
Please tell us where you receive your treatment.
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306 Posts in
85 Topics
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Last post on November 11, 2017, 02:34:11 AM
in Re: is there any THALSSE... by mumtaz
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Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
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64 Posts in
15 Topics
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Last post on June 07, 2019, 03:24:47 PM
in Re: Dr. Tang Her Jaing ... by kaleem
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Thalassemia Associations
Post info about your Local and National Thal Associations.
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188 Posts in
37 Topics
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Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy Battaglia
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Blood Donor Registration Groups
List your blood donor sign-up group here
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34 Posts in
7 Topics
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Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
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Older Chatter
Older Threads From General Chatter
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1172 Posts in
99 Topics
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Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy Battaglia
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