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Thalassemia Patients and Friends and thalpal © A. Battaglia 2017





53805 Posts in 5652 Topics by 5662 Members
Latest Member: midnightrose227

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Discussion Forums
No New Posts Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT. The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
Moderator: EugenioLaMesa
1594 Posts in
129 Topics
Last post on June 28, 2017, 05:47:20 AM
in Re: Newest Treatments by Pratik
No New Posts Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
Moderator: WendyW
76 Posts in
8 Topics
Last post on July 24, 2016, 06:25:58 PM
in Re: Ferriscan in india (... by Andy
No New Posts Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
1948 Posts in
199 Topics
Last post on July 13, 2017, 10:34:02 AM
in Re: Bluebird Bio Need Pe... by Pratik
No New Posts The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
3955 Posts in
417 Topics
Last post on June 28, 2017, 05:12:08 AM
in Re: Hi! Questions over 1... by Andy
No New Posts Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
5267 Posts in
486 Topics
Last post on July 20, 2017, 07:40:53 AM
in Re: update on Hassan by Lokkhi maa
No New Posts Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
3668 Posts in
313 Topics
Last post on July 20, 2017, 11:02:40 PM
in Re: Chelaton Therapy by Andy
No New Posts Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
5616 Posts in
809 Topics
Last post on July 16, 2017, 11:53:42 PM
in Re: I need some advice by Andy
No New Posts Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
2896 Posts in
289 Topics
Last post on July 14, 2017, 04:38:03 AM
in Re: carrier and sickle c... by Mubeen
No New Posts Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
6896 Posts in
490 Topics
Last post on July 19, 2017, 12:45:07 AM
in Re: Exjade not working; ... by Nomad
No New Posts Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc. (Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
3533 Posts in
328 Topics
Last post on June 26, 2017, 11:55:13 PM
in Re: Bluebird Bio Release... by Andy
No New Posts Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
2194 Posts in
172 Topics
Last post on July 12, 2017, 02:28:23 PM
in Re: Recently diagnosed w... by hazel_frenzi_HbH
No New Posts Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
1889 Posts in
196 Topics
Last post on May 26, 2017, 08:35:04 PM
in Re: Nutritional Advice f... by Andy
No New Posts Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
2135 Posts in
273 Topics
Last post on Yesterday at 05:07:48 AM
in Re: carrier and sickle c... by Mubeen
No New Posts General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
5755 Posts in
476 Topics
Last post on July 14, 2017, 04:39:46 AM
in New medicine for sickle ... by Mubeen
No New Posts Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
3507 Posts in
670 Topics
Last post on March 27, 2017, 05:08:26 AM
in Re: On Lisa's Birthday by Bostonian_04

An Angel's Corner
No New Posts Tribute to Lisa Cammilleri (1970-2004)
Lisa touched many lives. How did she touch yours? Share your memories, stories, photos, poems, etc.
58 Posts in
10 Topics
Last post on May 12, 2017, 04:27:38 AM
in sickel cell and beta tha... by Mubeen

The Basics of Thalassemia
No New Posts What is Thalassemia and How is it Treated?
3 Posts in
3 Topics
Last post on June 07, 2008, 09:10:00 PM
in The Alpha Thalassemias by Andy

Remembering Our Friends
No New Posts In Memory Of
Tributes to Those We've Known. Remember Your Loved Ones Here.
779 Posts in
67 Topics
Last post on March 29, 2016, 07:44:09 PM
in Re: Happy Birthday to Li... by Bostonian_04

Miscellaneous Forums
No New Posts Documents
Download chat transcripts, newsletters, flyers, and other documents here.
202 Posts in
66 Topics
Last post on February 16, 2017, 07:38:22 AM
in HbF inducers an alternat... by urja
No New Posts Treatment Centers
Please tell us where you receive your treatment.
302 Posts in
85 Topics
Last post on June 04, 2017, 02:41:43 AM
in Re: Thalassemia Treatmen... by zahra
No New Posts Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
63 Posts in
15 Topics
Last post on September 24, 2016, 04:59:09 PM
in Re: Thalassemia doctors ... by Andy
No New Posts Thalassemia Associations
Post info about your Local and National Thal Associations.
188 Posts in
37 Topics
Last post on July 09, 2016, 02:08:08 AM
in Re: New European Ad Boar... by Andy
No New Posts Blood Donor Registration Groups
List your blood donor sign-up group here
34 Posts in
7 Topics
Last post on February 23, 2016, 10:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
No New Posts Older Chatter
Older Threads From General Chatter
1172 Posts in
99 Topics
Last post on January 12, 2013, 01:53:15 AM
in Re: Earliest Reliable Te... by Andy

Give a Gift to Thalassemia Patients and Friends
No New Posts Give a Gift to Thalassemia Patients and Friends
Give a gift to Thalassemia Patients and Friends using Paypal.com
4 Posts in
1 Topics
Last post on June 27, 2008, 09:35:04 PM
in Re: Give a Gift to Thala... by Andy

Website Disclaimer Notice
No New Posts Website Disclaimer Notice
3 Posts in
1 Topics
Last post on August 14, 2009, 06:10:41 PM
in Re: Website Disclaimer N... by Zaini


Thalassemia Patients and Friends - Info Center
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Forum Stats
Total Topics: 5652
Total Posts: 53805
Latest Post: "Re: carrier and sickle c..." (Yesterday at 05:07:48 AM)
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Latest Member: midnightrose227
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