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Thalassemia Patients and Friends and thalpal © A. Battaglia 2018





54612 Posts in 5779 Topics by 5984 Members
Latest Member: leonardotrisna

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Discussion Forums
No New Posts Curing Thalassemia. Bone Marrow & Cord Blood Transplant
For over 30 years bone marrow transplants have allowed thalassemia patients to be transfusion-free. Ask questions, share experiences, find some guidance about BMT and cord blood transplants, CBT. The team of “Cure Thalassemia”, led by the scientific coordinator Dr. Pietro Sodani and with the scientific advisor Prof. Lucarelli (the inventor of BMT), is involved in answering the questions.
Moderator: EugenioLaMesa
1678 Posts in
137 Topics
Last post on April 14, 2018, 01:45:49 PM
in Re: After Transplant by Andy
No New Posts Ferriscan®
FerriScan® is an analysis service that provides an accurate measurement of liver iron concentration (LIC) through a non-invasive, MRI-based technology.
Moderator: WendyW
76 Posts in
8 Topics
Last post on July 24, 2016, 01:25:58 PM
in Re: Ferriscan in india (... by Andy
No New Posts Announcements
All important news from Admins and/or Members are posted in this section. Post about new studies, clinical trials, coming events, etc.
1979 Posts in
207 Topics
Last post on June 18, 2018, 05:17:55 PM
in Re: Andy On The Mend by dq
No New Posts The Spotlight
Introduce yourselves. Whether you're a regular, or brand new member, it's always nice to get to know one another a little better.
3959 Posts in
419 Topics
Last post on June 18, 2018, 04:12:08 PM
in Re: Help needed with Blo... by Andy
No New Posts Thalassemia Major
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Major.
5331 Posts in
496 Topics
Last post on April 29, 2018, 12:26:54 PM
in Re: What happen if somet... by Andy
No New Posts Thalassemia Intermedia
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Intermedia.
3736 Posts in
323 Topics
Last post on June 18, 2018, 11:03:09 PM
in Re: Hb e/beta thalassemi... by Mubeen
No New Posts Thalassemia Minor
Ask questions, give answers, offer advice, and/or share stories related to Thalassemia Minor/Trait.
5948 Posts in
865 Topics
Last post on June 19, 2018, 04:27:30 AM
in Re: Thal minor and vitam... by Anand
No New Posts Thalassemia-related Issues
Hepatitis, Cirrhosis, Osteoporosis, Diabetes, Gallstones, Heart Disease, HIV/AIDS, Transfusion Reactions, Splenomegaly, etc.
2907 Posts in
291 Topics
Last post on April 18, 2018, 01:18:04 AM
in Re: Splenomegaly in Thal... by Markiszuni87
No New Posts Iron Chelation Corner
Desferal (deferoxamine), L1/Kelfer (deferiprone/ferriprox), Exjade (ICL670), etc.
6963 Posts in
496 Topics
Last post on March 08, 2018, 12:16:46 PM
in Re: Desferal NATIONAL BA... by EugenioLaMesa
No New Posts Working Towards a Cure
Gene Therapy, Increasing Hemoglobin, Wheatgrass, Hydroxyurea, etc. (Bone marrow transplants, along with cord blood and stem cell transplants have been moved to a new board).
3573 Posts in
337 Topics
Last post on May 15, 2018, 07:03:36 PM
in Re: Phase 3 Luspatercept... by Andy
No New Posts Living with Thalassemia
Life issues. Psycholgical, Social, Emotional issues, etc. Relationships, Education, Careers, Pregnancy, etc.
2217 Posts in
176 Topics
Last post on May 16, 2018, 01:42:27 PM
in Re: Weightloss Surgery by Querier
No New Posts Diet, Nutrition and Supplements
What can thalassemics do to enhance and optimize their health through diet and supplements?
1930 Posts in
204 Topics
Last post on June 18, 2018, 04:09:04 PM
in Re: Are there IP-6 alter... by Andy
No New Posts Miscellaneous Questions
Questions that may or may not pertain to Thalassemia that do not have a specific category.
2161 Posts in
274 Topics
Last post on January 03, 2018, 09:22:11 PM
in Re: carrier and sickle c... by Mubeen
No New Posts General Chatter
Feel free to talk about anything related or unrelated to Thalassemia.
5758 Posts in
476 Topics
Last post on October 06, 2017, 04:46:32 PM
in Re: friend i need your ... by Andy
No New Posts Greetings
Birthday, Holidays, Welcomes and any other type of Greetings go here
3512 Posts in
672 Topics
Last post on March 30, 2018, 09:02:11 AM
in Re: Remembering Lisa on ... by zahra

An Angel's Corner
No New Posts Tribute to Lisa Cammilleri (1970-2004)
Lisa touched many lives. How did she touch yours? Share your memories, stories, photos, poems, etc.
60 Posts in
11 Topics
Last post on December 28, 2017, 09:05:27 AM
in Re: Thank you by Isha

The Basics of Thalassemia
No New Posts What is Thalassemia and How is it Treated?
3 Posts in
3 Topics
Last post on June 07, 2008, 04:10:00 PM
in The Alpha Thalassemias by Andy

Remembering Our Friends
No New Posts In Memory Of
Tributes to Those We've Known. Remember Your Loved Ones Here.
779 Posts in
67 Topics
Last post on March 29, 2016, 02:44:09 PM
in Re: Happy Birthday to Li... by Bostonian_04

Miscellaneous Forums
No New Posts Documents
Download chat transcripts, newsletters, flyers, and other documents here.
204 Posts in
66 Topics
Last post on March 22, 2018, 05:20:19 AM
in Re: Delayed Puberty in T... by Dharmesh
No New Posts Treatment Centers
Please tell us where you receive your treatment.
306 Posts in
85 Topics
Last post on November 11, 2017, 02:34:11 AM
in Re: is there any THALSSE... by mumtaz
No New Posts Recommended Doctors Who Are Knowledgable About Thalassemia
Please list the name and contact information, if possible, about doctors you recommend. Please put the location in the title of your post for easy reference. Please do NOT make negative comments about any doctor. They will be removed.
63 Posts in
15 Topics
Last post on September 24, 2016, 11:59:09 AM
in Re: Thalassemia doctors ... by Andy
No New Posts Thalassemia Associations
Post info about your Local and National Thal Associations.
188 Posts in
37 Topics
Last post on July 08, 2016, 09:08:08 PM
in Re: New European Ad Boar... by Andy
No New Posts Blood Donor Registration Groups
List your blood donor sign-up group here
34 Posts in
7 Topics
Last post on February 23, 2016, 04:44:27 AM
in Re: blood donor has the ... by Lokkhi maa
No New Posts Older Chatter
Older Threads From General Chatter
1172 Posts in
99 Topics
Last post on January 11, 2013, 07:53:15 PM
in Re: Earliest Reliable Te... by Andy

Give a Gift to Thalassemia Patients and Friends
No New Posts Give a Gift to Thalassemia Patients and Friends
Give a gift to Thalassemia Patients and Friends using Paypal.com
4 Posts in
1 Topics
Last post on June 27, 2008, 04:35:04 PM
in Re: Give a Gift to Thala... by Andy

Website Disclaimer Notice
No New Posts Website Disclaimer Notice
3 Posts in
1 Topics
Last post on August 14, 2009, 01:10:41 PM
in Re: Website Disclaimer N... by Zaini


Thalassemia Patients and Friends - Info Center
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Total Posts: 54612
Latest Post: "Re: Thal minor and vitam..." (June 19, 2018, 04:27:30 AM)
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