Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: §ãJ¡Ð ساجد on July 11, 2008, 12:12:06 PM



Title: How to post new and reply to topics.
Post by: §ãJ¡Ð ساجد on July 11, 2008, 12:12:06 PM
First make sure you are logged in with your login credientials (Username/Password)
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Then select which sub-forum you want to post in; like "The spotlight" to introduce yourself
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To start a new topic or reply to an existing one; see this:
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If you decide to reply to an existing topic or want to quote someone else's post in your reply; see this:
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Title: Re: How to post new and reply to topics.
Post by: nice friend on July 12, 2008, 08:55:33 PM
Good job sajjid
its realy good ...
 :thumbup


Title: Re: How to post new and reply to topics.
Post by: Danielle on September 28, 2008, 08:56:15 AM
I know you're not with us anymore, Sajid, and I know it's too late now, but I want to thank you for all you've done for us, like this thread.  You took the time out to make things easier for our members by going through the trouble of saving the pictures, cropping them, then adding the circles to them with arrows pointing to where certain things should go.  And that was definitely our Sajid.  As tears continue to roll down from my eyes, I want to acknowledge him, and tell him that I love him, and wish he was here with us, because he was such a huge part of our community, and I miss him dearly.  :'( :sorrow

Way to go, Sajid.  :hugfriend You did such great work while you were on this earth and I know you are doing even better work up there in Heaven with our creator.  I hope you have beautiful angel wings now, so you can fly down and keep an eye on us, brother.  You were like a little brother to me the way we used to go back and forth all the time, like siblings.  You frustrated me at times, but then made me laugh so hard that I forgot all about what you stressed me over.   :teehee  And that was our friendship, and I was happy that way.  I wanted him to be here forever with us... but I guess he had better plans to be in paradise.  Please save a spot for me up there, Sajid!  Wait for me!  Meet me at the gates with Lisa and Ash so that I won't be so scared.  Help me transition from this life easily and painlessly when the times comes, please, I beg you guys.  :wah

I know this doesn't belong here, but I wanted to make a statement about how much Sajid helped this forum, and this thread was a perfect example of his doings.  Now I know we have other members here that contribute their time and effort as well, and this is why I need to say this, because I will be telling you guys what a great job you are doing NOW.  I don't want to wait until someone else passes for me to tell them they did a spectacular job.  So, please forgive me for being so absent and ignorant.  You guys are the best and I love you all.  I also want to say that Andy has done the best job he could possibly do with everything else that's going on in his life and he continues to selflessly help others, and I commend him for that.  I don't think this forum would still be standing if it wasn't for him holding up the fort continually.

We have the best group here, and we all need to stick together and help each other through the good and bad.    :hugfriend :hugfriend :hugfriend


Title: Re: How to post new and reply to topics.
Post by: Sharmin on September 28, 2008, 02:44:02 PM
Danielle,

I completely understand what you are saying  :(
He always found a way to help everyone - and he did is so well. 




Title: Re: How to post new and reply to topics.
Post by: Zaini on September 28, 2008, 08:12:37 PM
I don't know when we'd be able to come over our grief, if ever?

Like Danielle said,it's better to say what you should say with out waiting for any bad news,so what i wanna say is I LOVE YOU ALL  .

And Andy ,i don't have words for what you are doing here for us,it's above me that any person can be THAT comitted to something,if ever i face a problem with my daughter,i always think about asking you,not even her doctor.So A huge thanks for being there for us,Your posts always stand on the forum like a light house for the lost parents or patients.

 :ty :ty :ty

Zaini.


Title: Re: How to post new and reply to topics.
Post by: Andy on September 28, 2008, 08:28:26 PM
Thanks Zaini.  :hugfriend  Knowing that it helps is what keeps me going.


Title: Re: How to post new and reply to topics.
Post by: Zaini on October 02, 2008, 07:31:22 PM
You are warmly welcome Andy,and i am here if you need any help,i'll do what ever i can,what ever is in my reach.

Zaini.


Title: Re: How to post new and reply to topics.
Post by: nice friend on October 05, 2008, 12:22:46 AM
Hi all ,
i donw have words to say anything more .. if i start thinking again abt him then i will again feel my self dis-hearted ... i m replying this post to just say wat
Zaini sis said ...  i am here if you need any help,i'll do what ever i can,what ever is in my reach.
And i second wat zaini said in above qoute......
--------------------------------------------------------------------------------

And i also feel the same that Zaini mentioned in the qoute below .....
Quote
Andy ,i don't have words for what you are doing here for us,it's above me that any person can be THAT comitted to something .So A huge thanks for being there for us,Your posts always stand on the forum like a light house for the lost parents or patients

Andy, i will b there and happy to help you .. so whenever you feel need of help , i will b there for you .... i realy appreciate your effort from the bottom of my heart ... and your post are valueable for me .... do care of your self .. you are a prescious gift for thals ....

Take Care Andy and all others
Best Regards for Andy and you all ...
UMAIR


Title: Re: How to post new and reply to topics.
Post by: T @ r ! Q on October 05, 2008, 10:10:23 AM
You guyz are doing a great job. i haven't seen more committed people than you all.
u know in real world commitment is usually bought if you know what i mean, but you guyz are amazing, always there to help. most of the people here haven't met each other in real, but the way you talk to each other, help and support each other, is priceless and undescribable, hats off to you all.


Title: Re: How to post new and reply to topics.
Post by: nice friend on October 05, 2008, 12:02:41 PM
Tariq bro ,
Quote
You guyz are doing a great job. i haven't seen more committed people than you all.
u know in real world commitment is usually bought if you know what i mean, but you guyz are amazing, always there to help. most of the people here haven't met each other in real, but the way you talk to each other, help and support each other, is priceless and undescribable, hats off to you all.
exactly .......
that is the reason why this group is still alive ... thats why it is the oldest thalassemia related community ....


Title: Re: How to post new and reply to topics.
Post by: SF on March 15, 2009, 07:34:12 AM
If I may ask, what happened to Sajid? He does seem to have put a lot of time and effort into this forum. May God reward him for all this and provide him with a place in Paradise, Ameen!


Title: Re: How to post new and reply to topics.
Post by: Zaini on March 15, 2009, 11:17:33 AM
Hello SF,

Sajid was our dearest member and friend,always there to help,he was our global moderator too,he was 27 years old ,last september he had a heart failure,he was contantly fighting with his high iron levels,ferriprox didn't suit him and desferal had some availability issues,but he was always cheery and there to help us out.
If you'll read his posts on the forum you'll see how caring and loving person he was.

You can check this thread about him .

http://www.thalassemiapatientsandfriends.com/index.php?topic=2073.0

Sajid,

We still miss you,i still sometimes read your old posts when i am panicked and somehow i get some comfort in them,you'll always remain in our hearts.

Zaini.


Title: Re: How to post new and reply to topics.
Post by: Manal on March 15, 2009, 02:40:49 PM
Forever in our hearts, may his soul rest in peace :sorrow :sorrow
manal


Title: Re: How to post new and reply to topics.
Post by: KHALIFA on March 15, 2009, 02:56:16 PM
رحمة الله عليك يا ساجد
       :(


Title: Re: How to post new and reply to topics.
Post by: Andy on March 15, 2009, 06:00:16 PM
I don't talk about this a lot, but Sajid was my protege and was an eager student. Perhaps I don't talk a lot about his passing because I look at it as a failing in some ways. Many of us really tried to help him but he always refused and said others needed help more than he did. Well, he was wrong and I saw his death coming and could do nothing to stop it. Perhaps if I had been more adamant as I have been with Umair, I could have done something. I'm not blaming myself, but it does hurt a lot to realize that if I could have gotten him to accept help, that he might sill be with us today, enriching our lives with his humor and perspective. He is missed more than any of us can express. I know I'm not the only one here who can't type about Sajid without the tears flowing.

 :sorrow


Title: Re: How to post new and reply to topics.
Post by: Zaini on March 15, 2009, 06:15:59 PM
Andy,

 :console :console :console

I have no words.

Zaini.



Title: Re: How to post new and reply to topics.
Post by: nice friend on March 15, 2009, 07:01:22 PM
SF,
you refreshed the sweet memories again ... i m unable to decide wat to say more  ... he was my best friend ... My Nice Friend ....

UMAIR


Title: Re: How to post new and reply to topics.
Post by: Sharmin on March 15, 2009, 07:10:49 PM
Andy,

While remembering my own pain in losing Sajid - I can only imagine how you must have been crushed when he passed away  :console


Sajid,

Still missing you bro. 

Sharmin


Title: Re: How to post new and reply to topics.
Post by: SF on March 16, 2009, 03:10:22 AM
I'm sorry to have brought back the sad and painful memories for you all. I really didn't mean it, so, please forgive me for that.
I'm also afraid to think and state that I may also be in the similar (but hopefully slightly better) situation than what Sajid was in. I've never had Ferritin of below 4000 all my life. I already have loads and loads of iron built up on both my heart and liver, as measured with T2*. I have also even started to get some cardiac symptoms, though not that severe, yet. I am thankful that I lived thus far, but definitely pray that I have more to live. Please keep me in your prayers, thanks!


Title: Re: How to post new and reply to topics.
Post by: Sharmin on March 16, 2009, 03:37:22 AM
Dear SF,

Please don't feel bad - Sajid is always with us and we never forget about him.  If you look to the left of the screen you will see Sajid's dove, which is forever a part of who we are.  We are glad that someone asked us about our Sajid and we are always glad to talk about him. 

We hope that we can help you get your iron levels down.  We are happy to have you here :)

Sharmin


Title: Re: How to post new and reply to topics.
Post by: Andy on March 16, 2009, 05:39:51 AM
SF,

At the top of the page are pictures of Lisa and along the side is Sajid's dove. We are always reminded of our dear friends so don't worry about bringing back memories. They are all around us.

I want you to understand that now you are in the US and you have access to excellent and complete care and you should take full advantage of it. I would suggest you register with the Cooley's Anemia Foundation and ask them about a referral to one of California's Comprehensive Care Centers. Unlike Sajid, you have access to a health care system that can turn your situation around and you should do exactly that.

Contact
Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org


Title: Re: How to post new and reply to topics.
Post by: SF on March 16, 2009, 06:23:04 AM
I did finally join CAF late last year and have already gotten so many benefits from doing so. Thanks for showing me the light to how I can get a referral to go see Dr. Vichinsky and other hematologists at OCH, by-passing getting referral from my Hematologist at LPCH @ Stanford.


Title: Re: How to post new and reply to topics.
Post by: Canadian_Family on May 01, 2010, 01:29:14 PM
Tears running from my eyes. We remember you Sajid. You were such an inspiration to all of us. May you rest in peace.


Title: Re: How to post new and reply to topics.
Post by: Zaini on May 10, 2010, 03:59:17 AM
:sigh May Allah bless you Sajid.


Title: Re: How to post new and reply to topics.
Post by: Andy on October 23, 2010, 05:28:48 PM
I would encourage all members to ask questions in posts, rather than emailing me. Most often, you will receive more replies if you post your question. I just discovered two emails in my spam. Both of these could have been missed entirely. Please do not email your questions. Post them. That is why this group exists.


Title: Re: How to post new and reply to topics.
Post by: alnahrahmea on December 05, 2010, 11:24:36 AM
I perfectly agree with you Andy about missing Sajid.  We are about the same age. He would have been 28 by now too. :)  I never knew any Thal in a state like Sajid who would be posting cheerily about a bad news in his health here.  So, we all get to miss him.   :sadyup


Title: Re: How to post new and reply to topics.
Post by: Pratik on July 10, 2012, 03:36:47 PM
Not willing to grave dig this topic but I felt like missing Sajid again. I saw the thread title in picture on main post of this thread and it linked to: http://www.thalassemiapatientsandfriends.com/index.php/topic,1728.msg14359.html#msg14359

Well Sajid, I got to know you late, sadly. But I now perfectly know you and your kindness that you showered and bestowed upon us.

I would be meeting you someday at the gates of entrance in heaven, and I hope you come to greet and receive me and maybe after that, we get to know each other even more nicely.

While the whole September 2008 was nice for me, because of my b'day that falls on 8th and especially the dates between 20-28 because very big success in my life was achieved within those days and there is not a single day I do not remember them. But when now I remember the date you left us, I feel bad, very bad that I was in a jolly mood and I didn't even knew that my future nice friend is leaving me.

I hope your family is alright and more importantly, you're right. Now no thalassemia can hurdle you, you're free from pain my friend, free to fly and free to live.

Miss you, buddy (and again, tears in eyes...).  :wah