Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Gabri on November 13, 2009, 11:53:40 AM



Title: 2. PanEuropean conference
Post by: Gabri on November 13, 2009, 11:53:40 AM
Hi folks,

I just wanted inform you about the upcoming 2. PanEuropean conference on Haemoglobinopathies in Berlin (Germany). It will be on 13 an 14 March 2010.

On the following link you can read more information

http://www.thalassaemia.org.cy/conference.html

God bless you


Title: Re: 2. PanEuropean conference
Post by: Zaini on November 14, 2009, 01:33:34 AM
Thanks for the info Gabri :thankyou

Zaini.


Title: Re: 2. PanEuropean conference
Post by: Manal on November 14, 2009, 02:50:26 PM
Gabri

Its been so long from your last post, hope everything is great at your side, keep in touch :hugfriend

manal


Title: Re: 2. PanEuropean conference
Post by: afaf el amoudy on November 15, 2009, 03:11:31 AM
Hi Manal ,

are you willing to attend this conference ?


Title: Re: 2. PanEuropean conference
Post by: Manal on November 15, 2009, 05:52:46 AM
Hi Afaf,


I would love to, but it would be hard to decide now

manal


Title: Re: 2. PanEuropean conference
Post by: Gabri on November 17, 2009, 01:43:08 PM
Don't worry, Manal. I often am tired after work and it get me more tired if i have to read, write and think in english. Therefore i read from time to time some of the postings on this side but i try to save my power and focus on my daily routine.  :sadnope I often wished to understand and speak better english then I would get the chance to explain better my ideas and thoughts, but most of the time I'm searching words.
Here we are. If it hadn't been for the cockiness of our forefathers, when they try to build the tower in babel, we all would going on speaking one language.:pissedoff


Title: Re: 2. PanEuropean conference
Post by: Dori on December 03, 2009, 09:37:48 AM
Jajaja, it's true. I am also going!  :wub


Title: Re: 2. PanEuropean conference
Post by: Gabri on December 15, 2009, 03:20:29 PM
I'm happy that you will come too, Dore.  Hope that I will recognize you there. So we will have the opportunity to know each other and many other people. I'm looking forward to it :grin

What's about you Manal. Do you will come also? I'm happy to see how fast you growth in knowledge about thalassemia. And now you are able to support others, whow.


Title: Re: 2. PanEuropean conference
Post by: Manal on December 15, 2009, 07:38:08 PM
Thank you Gabri for your kind words, actually i am still learning :wink

Unfortunatly, i won't be able to attend, though i wanted so much to see you there. Please update about the conference if possible

take care
manal


Title: Re: 2. PanEuropean conference
Post by: Dori on December 27, 2009, 07:48:31 AM
Aww Manal, I wished you could come.
I am still going. For the ones who are going to and read/post on this forum; please contact me by sending me a message through this forum.
Gabri, I hope we can meet. I must say that you sound me to me, but I am only here for a year now.


Title: Re: 2. PanEuropean conference
Post by: Manal on December 28, 2009, 07:48:17 PM
Me too Dore, may some other time :hugfriend


manal


Title: Re: 2. PanEuropean conference
Post by: mohamed on December 31, 2009, 11:39:08 AM
can non europeans (like me) attend the conference?


Title: Re: 2. PanEuropean conference
Post by: Dori on January 03, 2010, 11:07:15 AM
Yes, why not?
Where are you from?


Title: Re: 2. PanEuropean conference
Post by: Dori on January 03, 2010, 11:07:53 AM
Can someone post the site of this conference, because dumb dodo cant find it anymore...


Title: Re: 2. PanEuropean conference
Post by: Ayesha on January 03, 2010, 11:29:34 AM
http://www.thalassaemia.org.cy/conference.html


Title: Re: 2. PanEuropean conference
Post by: Dori on January 03, 2010, 11:31:13 AM
Thank you.


Title: Re: 2. PanEuropean conference
Post by: Ironman on January 21, 2010, 05:49:41 AM
I am going 2!

Berlin, here I come!


Title: Re: 2. PanEuropean conference
Post by: Dori on February 03, 2010, 06:56:42 AM
Great!!!

I can not wait until it's friday and time to leave by train to Berlin!


 :hithere


Title: Re: 2. PanEuropean conference
Post by: Ironman on February 03, 2010, 07:29:09 AM
I will be flying so thats even better! :p


Title: Re: 2. PanEuropean conference
Post by: Dori on February 03, 2010, 11:41:07 AM
It is! In two weeks I will take the plane for the second time of my life (we count to and from Canada as one). I love planes, but I am a lil nervous since this I am going alone (with an unknown group of uni). Anyway, I am glad you can take the plane and I hope to meet lots of new people!!


Title: Re: 2. PanEuropean conference
Post by: Manal on February 03, 2010, 08:28:14 PM
Take care both of you  :wink

manal


Title: Re: 2. PanEuropean conference
Post by: Ironman on February 03, 2010, 09:02:00 PM
Oh dont worry we will  :wink

And likewise  :biggrin


Title: Re: 2. PanEuropean conference
Post by: pianjy on February 04, 2010, 07:47:48 AM
Hi friends, we are a spanish delegation(8-10 people), we will attend de conference, hope to meet you there.

Take care

ALHETA
www.alheta.com


Title: Re: 2. PanEuropean conference
Post by: Dori on February 10, 2010, 12:45:34 PM
I hope to meet you there. By then my Spanish has been improved. About 10 days I leave for Madrid. I am not so good in the Spanish geograpic, so I have no idea where your city is.


Title: Re: 2. PanEuropean conference
Post by: pianjy on February 11, 2010, 10:13:16 AM
Hi Dori, we are people of Madrid, Barcelona, Canary Island, Valladolid and Badajoz(southwest, near Portugal), hope to meet you there too. In ALHETA┬┤S WEB you can see photos of us. www.alheta.com

Bye


Title: Re: 2. PanEuropean conference
Post by: Dori on February 15, 2010, 07:48:54 AM
Nice! :)


Title: Re: 2. PanEuropean conference
Post by: Gabri on March 10, 2010, 12:44:21 PM
Only to more days to the conference. I can't wait to know many of you.
See you


Title: Re: 2. PanEuropean conference
Post by: Manal on March 10, 2010, 05:59:41 PM
Good luck and keep us updated :wink

manal


Title: Re: 2. PanEuropean conference
Post by: Dori on March 11, 2010, 05:43:54 PM
As far as I found out we stay in the same hotel. I almost finished my hw and now catch some sleep. Almost all of the things I want to take with me is on the floor. Tomorrow I got 2.5hrs to pack, tidy up my room, shower, errands, prepare lunch and catch that train of 12:06!
I cant aait to meet each of you!!!
Bis morgen!
D
ok, cu later 2day


Title: Re: 2. PanEuropean conference
Post by: Bappy on March 12, 2010, 04:56:01 AM
yea !!! we wait for your update replay..............


                                                                :thankyou2


Title: Re: 2. PanEuropean conference
Post by: Ironman on March 15, 2010, 05:30:04 PM
I think all the doctors forgot that they were talking to patients. It was way to technical, and I am glad that I had my doctor to clarify any questions, otherwise I would have been lost after 15 minutes...


Title: Re: 2. PanEuropean conference
Post by: Andy Battaglia on March 15, 2010, 07:11:38 PM
This is one more reason people like to see me at conferences. I do understand the lectures and can break it down in normal language for others to understand. In fact, I seldom attend the patient side of the conference. My only problem with the medical lectures is that my brain screams for a break after some hours.


Title: Re: 2. PanEuropean conference
Post by: Ironman on March 16, 2010, 05:30:12 AM
Good informations agreed, but if you were a patient attending for the first time, hoping to meet new people and/or learn something new, it is impossible to sit through 7-8 hours of medical mumbo-jumbo.

That should be a concern at every conference aimed at patients, I think.


Title: Re: 2. PanEuropean conference
Post by: Dori on March 16, 2010, 06:50:46 AM
Iroonman, I couldn't find you! I asked a question and was wearing tradtional Dutch clothes at the gala. Did you notice me?? From dekegation were you are were you alone?
I wait for your excuse;) or did we actuslly meet? :s


Title: Re: 2. PanEuropean conference
Post by: Ironman on March 16, 2010, 07:09:56 AM
I couldnt wear a nametag signed Ironman for obvious reasons hehe...

I was with the danish delegate(the one with a girl wearing a scarf). We didnt attend the galla as our group did not sing or dance(we are not ethnic danes!) So they didnt want to be in the spotlight and decided to go out and eat, and I followed along.

I think we were in the same elevator sunday morning, but been awake that early I forgot why the name "Dore" sounded familiar hehe...


Title: Re: 2. PanEuropean conference
Post by: Andy Battaglia on March 16, 2010, 07:53:28 PM
The conferences that TIF runs every few years do have separate patient and parent sessions in addition to the medical sessions. These presentations are done so that the topics are easily understood. Many even feature some of the same doctors, but with a talk directed at those not in the medical field. These sessions go on at the same time as the medical presentations, so often I have to choose between the two. I usually end up being one of the few laymen in the medical sessions. At the Singapore conference, most patients and parents were not allowed into the medical sessions, which really was a terrible decision by their government. I will note that at the recent conference in NYC, patients, parents and interested parties were specifically invited to attend the medical presentations. I believe this is how it always should be and I will not attend another conference that prevents regular people from attending medical presentations. There is no valid explanation or reason for depriving people of information about their health.


Title: Re: 2. PanEuropean conference
Post by: Dori on March 17, 2010, 01:59:39 AM
Ahhh I remember THE elevator! When I grabbed the mic I was almost going to ask of the Danish delegate was there. Do you think we were all etnical dutchies? The food was horrible btw - but you missed my performance Will upload Lucs later. Must run through the house now.
Cu in Antalya in 2011 ;)
hmmm i didn't press post yet. I stood by the girl when she was in conversation and tried to read her card. Weird! (there were only two with a scarf, yes?)


Title: Re: 2. PanEuropean conference
Post by: Lena on March 17, 2010, 11:56:53 AM
Was there anything  interesting going on in the PanEuropean conference? Any medical announcements that we should be aware of?

Lena.


Title: Re: 2. PanEuropean conference
Post by: Canadian_Family on March 17, 2010, 02:03:48 PM
Lena,

You are always to the point, I like this quality.

Cheers.


Title: Re: 2. PanEuropean conference
Post by: Ironman on March 17, 2010, 04:13:07 PM
Was there anything  interesting going on in the PanEuropean conference? Any medical announcements that we should be aware of?

Lena.

Well I dont know whats interesting, and which announcements that you already know of.

What I found interesting personally, is about Gene therapy.
According to one of the speakers(can't remember who), the clinical trials for thal, will begin in 2012.

Sounds like good news to me!


Title: Re: 2. PanEuropean conference
Post by: Ironman on June 08, 2010, 07:36:02 PM
Presentations and workshops out now:

http://www.thalassaemia.org.cy/conference_presentations.html


Title: Re: 2. PanEuropean conference
Post by: Dori on June 13, 2010, 09:41:32 AM
Gabri, in case you read this could you please contact me?


Title: Re: 2. PanEuropean conference
Post by: Bappy on June 13, 2010, 12:08:56 PM
hello there,

Is there any decision taken for patient.
             


Title: Re: 2. PanEuropean conference
Post by: manit on June 26, 2010, 11:24:08 PM
Hey can u all lemme know how do u come to know about the conferences being held is there a awebsite thru whch u come to know or what pls lemme also know about the same so that even i can check it regularly


Title: Re: 2. PanEuropean conference
Post by: Andy Battaglia on June 27, 2010, 12:41:15 PM
We do try to keep people informed of upcoming conferences, but also check CAF, http://www.cooleysanemia.org and TIF, http://www.thalassaemia.org.cy/ for updates. The most current announcement is in our thread at
http://www.thalassemiapatientsandfriends.com/index.php?topic=3554.msg36224#msg36224  Full details can be seen at
http://tif2011.org/eng/registration.htm


Title: Re: 2. PanEuropean conference
Post by: Dori on June 28, 2010, 08:53:54 AM
Last week I received information about TIF2011. My question is: who is going?


Title: Re: 2. PanEuropean conference
Post by: Nur on June 28, 2010, 08:55:17 PM
i also got the information by mail. I would really love to go but the cost is unbearable.. :wah