Thalassemia Patients and Friends

Miscellaneous Forums => Treatment Centers => Topic started by: Andy Battaglia on December 07, 2009, 07:19:25 AM

Title: US Centers of Excellence for Comprehensive Care
Post by: Andy Battaglia on December 07, 2009, 07:19:25 AM: Children’s Healthcare of Atlanta
5455 Meridian Mark Road
Atlanta, GA 30342
Phone: (404) 785-3614

The Children’s Hospital of Boston
300 Longwood Ave.- EN 720
Boston, Massachusetts 02115
Phone: (617) 355-2457
Fax: (617) 734-3060

The Children’s Hospital of Los Angeles
4650 Sunset Blvd. MS 54
Los Angeles, California 90027
Phone: (323) 669-4132
Fax: (323) 660-7128

The Children’s Hospital of Oakland
Children's Hospital & Research Center at Oakland
Department of Hematology/Oncology
747 52nd Street
Oakland, California 95609
Phone: (510) 428-3347
Fax: (510) 428-3382

The Children’s Hospital of Philadelphia
34th & Civic Center Boulevard
Physician-in-Chief Executive Suite
9th Floor, Main Bldg, Rm. 9555
Philadelphia, Pennsylvania 19104
Phone: (215) 590-2197
Fax: (215) 590-3992

Lurie Children's Hospital of Chicago
Division of Hematology/Oncology
2300 Children’s Plaza, Box #30
Chicago, Illinois 60614
Phone: (773) 880-4618
Fax: (773) 880-3223

Weill Medical College of Cornell University
525 E. 68th St. Payson 695
New York, New York 10021
Phone: (212) 746-3404
Fax: (212) 746-3892
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: namitha on May 15, 2010, 04:07:28 AM: Hi,

I need to know if there are any thal clinics in Houghton, Michigan or Rolla, Missouri? I may come to either of the places next year.

Even there is no clinic in the specified city, is there a nearest clinic I can go to?

Help...
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Andy Battaglia on May 15, 2010, 02:28:16 PM: Hi Namitha,

Your best bet is to contact Eileen Scott from CAF. She should be able to guide you to suitable hospitals in those areas.

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: namitha on May 19, 2010, 08:05:45 AM: Thanks so much Andy!
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Lo on March 20, 2011, 07:18:00 PM: Hello Thal pals! I'm very new to this site. I have a 4 yr old son who has Beta Thal Major and we are getting him treated at John Hopkins. My husband and I have chosen LA Children's Hospital for his BMT in the near future. Does anyone know if LA Children's or Texas Children's Hospital has done the most BMT's for Thal patients?

Thanks,
Lo
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Bostonian_04 on August 22, 2012, 04:09:14 PM: Lo, you should ask Eileen Scott from CAF...her info is given by ANdy in this same thread...she will have better info than any one of us...
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Parin on June 25, 2015, 10:05:18 AM: Dear Friends,

Can anyone explain me the procedure to follow in US for blood transfusion (visiting hospital, appointment etc)? I visiting there for some time?

Thank you.
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: anshul on June 26, 2015, 04:01:42 AM: Even I have plans to visit US with my thal major son late this year. Please guide the process for blood transfusion. Also, I want to know if the expenses for transfusion and related tests medicines are covered under medical insurance in US or not.

-Thanks
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Andy Battaglia on June 26, 2015, 02:44:01 PM: Please contact the Cooley's Anemia Foundation for guidance.

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Parin on January 11, 2016, 10:41:46 AM: Hello Andy,

Do we have any consolidate list of center in USA apart from mentioned on CDC web site?

Thank you.
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Parin on March 09, 2016, 09:59:10 AM: Dear Friends,

Is there any blood transfusion center in Sacramento California - USA ?

I knew this one

The Children’s Hospital of Oakland
Children's Hospital & Research Center at Oakland

Thank you.
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Bostonian_04 on March 09, 2016, 09:45:21 PM: Parin2005,
Try contacting Dr. Chung at UCDavis healthcare...here in US, the blood transfusions generally happen in out -patient clinics of the hospitals. Generally you work with the child's hematologist to setup the protocol and logistics.

http://ucdmc.ucdavis.edu/publish/providerbio/pediatrics/1546
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Parin on March 10, 2016, 05:22:35 AM: Thank you Bostonian_04.
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Parin on April 08, 2016, 12:12:32 PM: Hello Bostonian,

Is there any other hospital/doctor which is in network of United Healthcare Services?
Title: Re: US Centers of Excellence for Comprehensive Care
Post by: Bostonian_04 on April 11, 2016, 09:42:37 PM: Parin,
you can look up online from the United healthcare services website their authorized providers. or, you can also call their customer service to find out. or you can also call the doctor's office to see if they take a particular insurance.