Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Andy Battaglia on October 21, 2006, 09:09:39 PM



Title: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Andy Battaglia on October 21, 2006, 09:09:39 PM
It's quite a ways off, but the next TIF conference has been announced. Start making your plans because I want to see as many of you as possible there.  :happyyes

Quote
13th International Conference for Thalassemia patients and parents will take place in Singapore from the 22-26 February 2008

The TIF conference in January, 2006 was a great experience and the best part was meeting so many of you there.  :biggrin  So mark your calendars.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Nur on October 21, 2006, 10:40:10 PM
Finally, a conferwence so close to home!  :biggrin I will try my best to go..

Hope to see you guys there too  :cheer



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: hippievamp on October 21, 2006, 11:08:49 PM
I would love to go, and I've never been to any confrences but, I could never afford to fly to Singapore.  So you'll have to count me out!  :wah


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on October 21, 2006, 11:17:47 PM
Hippievamp,

Don't rule it out. You might be able to get sponsorship through TIF, CAF, or even possibly Novartis if you are on Exjade or desferal. There's plenty of time to plan, so keep all this in mind. We'll try to keep people updated as to who will be sponsoring patients for this conference. You might also check into sponsorship to the US TAG conferences, through CAF (Cooley's Anemia Foundation).


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: §ãJ¡Ð ساجد on October 22, 2006, 01:58:49 AM
Hippievamp,

Don't rule it out. You might be able to get sponsorship through TIF, CAF, or even possibly Novartis if you are on Exjade or desferal. There's plenty of time to plan, so keep all this in mind. We'll try to keep people updated as to who will be sponsoring patients for this conference. You might also check into sponsorship to the US TAG conferences, through CAF (Cooley's Anemia Foundation).

Wow! do these organizations really sponsor us patients for such an expensive trip? Why? Is this offer only for US residents only? cause' the only thing that's also holding me back is $$$Cha-ching$$$

Take care, Peace!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Maako on October 23, 2006, 01:03:30 AM
Hi guys,

Ever since Andy told me about the next TIF conference being held in Singapore, i have made up my mind to go coz im already in Malaysia and will be here even in 2008. It will be abt 6hrs drive for me by bus. So if things go well until then, i will be there..

Would luv to meet u guys... hope to see a lot of u there...

 :heartpink Maako


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: hippievamp on October 29, 2006, 11:58:56 PM
 :biggrin  Andy are you for real?  That would be wonderful!  Would you know who I would have to talk to or write to?  If you know anymore or find out anymore please let me know.

I'd love to meet you all in Singapore!!!!!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on October 30, 2006, 06:51:58 PM
Hippievamp,

You might also think about the US conferences that TAG puts on and apply through CAF for sponsorship. I don't think there is a date set for the next one yet, but I'll post as soon as I know if someone doesn't beat me to it.  :wink  I'm sure it will also be posted as soon as a date is set at

http://www.cooleysanemia.org/index.php

A question for those who have been sponsored to conferences. Does belonging to a local or national thal association help your chances of being sponsored?


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Ash on October 31, 2006, 11:41:21 PM
I love meeting thals at the conference thats the best part the rest just sucks

I cant say right now whether I will be there or not but if I am then I will be doing this there.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Canadian_Family on November 02, 2006, 06:42:43 PM
I will try to be there with family.......


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Nur on November 03, 2006, 09:29:20 PM
Dear Andy,

I don't know if it helps if you are from an associations or not. Maybe it would be helpful if you are a patient, parents or someone that deal closely with Thalassaemia to get a sponsorship.

Nur


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: §ãJ¡Ð ساجد on November 03, 2006, 11:46:31 PM
Hi Nur,

          What's the procedure for the patients? Is it only applicable to residents of US? Where and who do we contact to get a sponsorship?

Take care, Peace!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on November 04, 2006, 01:57:27 AM
WOW! This is FAST!! The official annoucement has not even been announced yet! I was waiting for the official annoucement before posting this info here. Guess Andy beat me to it! :winky

In the midst of all these conference preparations now.  :gaah

I really cant wait to see all of you together. I can arrange something for us to see who is who finally.  :evilplan   

Start saving now! You have slightly more than a year! TIF and the organisers are willing to sponsor quite a number of patients for conferences like this. It's not only for US residents. It's for patients all around the world. We want as many patients as possible to get the most out of this conference. Maybe once I get to know more about it I will let you guys know.



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Nur on November 05, 2006, 10:48:40 AM
Dear Sajid,

You can apply for the sponsorship through the TIF website. It's not guaranteed to be accepted but you could try. There is a form that can be downloaded when there's an event and you just fill it up. It's for every one no matter where they live.

Does anyone know if it is possible to apply for sponsorship from other organisations like from pharmaceutical company or any other local business groups etc... How do you do it?


In the midst of all these conference preparations now.  :gaah

I really cant wait to see all of you together. I can arrange something for us to see who is who finally.  :evilplan   


Can you give us a hint on what to expect in Singapore? I am for sure looking forward to meet you all in there. After all, Seberang Tambak is only a few meters long  :wink



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: olivia on November 07, 2006, 06:30:32 AM
Hi,

This sound exciting cos I've never been to any of the conferences before and since it's so near in Singapore, might just mark down my calendar. I'm looking forward to it and hope to meet u guys there.

Olivia


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Miaki on November 07, 2006, 06:41:28 AM
The conferences are a great way to meet fellow patients from all parts of the globe. Its amazing hearing different stories from patients, their stuggles, their achievements and their determination to be who they are.

I encourage those who can go to one of these to do so. It will really open your world to something not so complex as we all may think it is.

And to those that go to the next conference and sit around the foyer all morning watch out  :bat :winky

Miaki.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on November 07, 2006, 09:11:54 AM
You listening, Ashish?  Miaki, we may have to drag him kicking and screaming but we'll get him inside.  :wink


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Lyanne on November 08, 2006, 04:50:23 AM


    Oh wow! i hope my sis and I could join the conference.  ;D I definitely would put that on my calendar. Never been to such conference but would love to attend to one.
   


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: akka1981 on November 10, 2006, 09:46:49 AM
WOW ANDY, AM SO HAPPY AND LUKING 4WD TO GO ATTEND THIS CONFERENCE WHICH IS NOT V. FAR. THIS IS REALLY GUD NEWS FOR ALL OF US.


TC FRIENDS. LIVE STRONG!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Zadkhi on November 10, 2006, 03:48:16 PM
I would love to be able to join the conference if I could!

I'm marking my calendar and doing some research!

And Sajid, I'll look more into sponsorships and whatnot and if I find information, I'll pass it along to you!

 :happyyes


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Ash on November 12, 2006, 04:54:34 PM
And to those that go to the next conference and sit around the foyer all morning watch out  :bat :winky

Miaki.

Noooooo, I dont wanna sit next to Andy he snores too much then I cant sleep  :rotfl


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on November 12, 2006, 05:41:07 PM
Who? Me?  What jet lag?   :offtobed  zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: bdra on November 20, 2006, 01:18:26 PM
HI
I'D LIKE TO JOINE THE NEXT CONFERENCE IN SINGAPOR, I HAVE BEEN IN THE LAST CONFERENCE IN BUDI
I INJOY IT AND I MEET ANEW FRENDS THER FROM USA , DUBI , SUDI ARABI ,  USTRALYA AND YOU ANDY I MEET YOU THER IN DUBI.
 I'D LIKE TO MEET THEM AGEAN IN THE NEXT CONFERNCE
BDRA
 KUWAIT THALASSEMIA SOCAYATY


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on November 21, 2006, 11:43:29 PM
HI BDRA,

I met so many people at the Dubai conference, but I remember the group from Kuwait that included my friend, Tasneem. Were you part of that group? I may have a photo with you in it. I hope to see you at the Singapore conference in 2008.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: howard on November 28, 2006, 07:11:03 AM
Hi Everyone,

I heard about it couple of months back from my doctors too... So glad that the conference will be held in Singapore my homeland.

We will try to keep everyone posted of the event and any latest news about it.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on November 29, 2006, 12:17:36 AM

Can you give us a hint on what to expect in Singapore? I am for sure looking forward to meet you all in there. After all, Seberang Tambak is only a few meters long  :wink


Hi Nur
I can't give you any details yet. Sorry. Will keep you guys posted though.  :winky


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on May 01, 2007, 08:18:33 AM
Hi Guys

Postponment of the dates to Oct 2008. Exact dates will be given again later.
So there's more time to build up your savings!! =)



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: akka1981 on May 01, 2007, 09:49:58 AM



Its exciting to hear abt the conference and also meeting and making lots of thal friends. Ever since i heard abt it ,i've hopes to attend it GOD willingly.

To to see many of u guys there.

Tc.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Zaini on May 01, 2007, 02:15:51 PM
I wish i can be there,,, it must be an overwhelming experience.

ZAINI.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Smurfette on May 20, 2007, 01:01:54 AM
Well since it has been postponed we can all start saving and go to the conference..I am definately going to be marking this one on my calander.. God willing first...

Yes I have been abscent for some time from here...
thanks for asking how I am!!!!

 :sigh

Till I post again

Cherrio


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on May 20, 2007, 01:21:07 AM
Hi Dora,

I hope we can all make it to Singapore. It is a long time off but you're right. We should all start saving and planning.

Sigh. I recently figured out how much time I spend on this site every week by dividing my 100 plus days, by how many days the site's been open and found out I average about 40 hours per week on this site, in addition to spending about 60 hours per week involved in work for my store. And yet, I still can seldom find time for happy birthdays and welcomes and where are yous? I hope everyone knows that I do think of you even if I can't find the time to say hello. Each of you has had an effect on my life that has given me something that I had never even known existed and I thank you.

Looking forward to meeting you as many of you as I can in Singapore.



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: KHALIFA on May 20, 2007, 08:28:05 PM
Andy i love to go there but  :huh can i take my bike with me  ???
                                khalifa
                          state of kuwait


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Sharmin on May 21, 2007, 12:43:19 PM
I hope to be there, I would love to attend a conference and of course to meet all of you!

Sharmin


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: ~Sweet*Petite~ on May 23, 2007, 01:15:55 AM
Hi all,

Just thought I'd let u all kno that the Conf has now moved from Feb 08 to Oct 08   :cold

The TiF website now lists the new dates as 7th-11th Oct 08 (yey I get to celebrate my b'day in the Far East   :bigparty  )....

Hey, at least we have a lot looooonger to save up now!! :clap

Can't wait 2c u all .... :high5

Saj x


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: akka1981 on May 26, 2007, 11:02:10 PM
 

Woow!! this is good news. I thought it was postponed to Ocotber 2008. Anyway am glad. Will try to join and meet all of you all there.

Tc, God Bless U



Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: §ãJ¡Ð ساجد on May 26, 2007, 11:44:37 PM
Hi Akka,

Yes it is postponed to October 2008.

I wish there is some way that TIF can sponsor patients. My foundation is affiliated with TIF, I'll ask them about any sponsor program. If there is one, then I'll be there as well!!! :happydance

Hope to see you all there :pray

Take care, Peace!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: khus4 on September 01, 2007, 12:26:52 PM
hi i am silky i want to know Re:  13th International Conference for Thalassemia  Patients and Parents is on which date plz tell final date i also want to join members


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Miaki on September 25, 2007, 11:09:05 PM
the TIF conference will be held in Singapore 2008, 7th - 11th October. There isn't any formal notification as yet but I am sure something will be posted in the next few months.

I hope to be going and if so get to see and meet some of you there.

Miaki


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on November 24, 2007, 09:28:48 AM
Hi All

I'm VERY excited to tell you all that the conference is CONFIRMED! It's on 8-11 Oct 2008.
It will be held in Singapore. The official announcement will be out soon. By early next year you should hear from your National Thalassaemia Associations.
Keep a look out.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on November 24, 2007, 01:31:04 PM
Thanks for the update, Eponine. Is there any info yet on hotel accommodations for the conference? I really hope I can arrange to come.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Lyanne on November 25, 2007, 04:40:19 AM



       Wow!  I do hope i could attend too, it would be exciting meeting all of you in person!!!!! Especially you Andy!  :grin


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Andy Battaglia on November 25, 2007, 10:39:04 AM
Hi Lyanne,

One tip I can give to people wanting to attend is that TIF seems more likely to sponsor those who are active in their own local thal associations. I will try to keep everyone informed as to when TIF starts accepting applications for sponsorship. I hope everyone can go, including me (hehe). I think the best part of the conference is meeting everyone and I hope to meet you there.  :biggrin


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Smurfette on November 25, 2007, 11:41:40 PM
Well singapore is looking good for me so far :) Fingers crossed x

Its not far from australia and I am sure that most aussies would like to attend (including myself) then might go to the states after that...who knows...

:) :) :)


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 200
Post by: Eponine on November 26, 2007, 11:23:59 AM
Thanks for the update, Eponine. Is there any info yet on hotel accommodations for the conference? I really hope I can arrange to come.

Hi Andy

Definitely! We will have a package with accomodation and if negotiations go well, we might have a special airfare with an airline carrier as well for participants of the conference.  :cheer
Will keep u guys updated once details are firmed up. The conference will be held soon after the F1 race so things will be a little crazy.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on December 03, 2007, 06:20:17 AM

I wish there is some way that TIF can sponsor patients. My foundation is affiliated with TIF, I'll ask them about any sponsor program. If there is one, then I'll be there as well!!! :happydance


Hey all
TIF will give out some sponsorships but I'm not sure how they will do it. Probably through the National Thalassaemia Associations in your country / state. Do keep a lookout for it.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: §ãJ¡Ð ساجد on December 04, 2007, 06:52:39 AM
:woot

I hope that it is true! Singapore! here I come!


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: jane_filipina38 on December 08, 2007, 12:51:52 AM
 I would love  to attend any conference that has something to do with thal but i dont have budget to go outside the Philippines ...I would like to meet fellow thals too...I want to feel I'm not alone in this world kind of anemia ...help!  :wah :wah :wah


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: §ãJ¡Ð ساجد on December 08, 2007, 01:50:47 AM
Hi Jane,
:welcome to the family!

Don't worry, you can always chat with us here. Furthermore we will be scheduling a group chat on 28th December, but it will be too late for you (11 PM) I hope that you can make it otherwise you can join the one that is to be held in January which will be at more convenient time for you.


Title: Re: 13th International Conference for Thalassemia Patients and Parents Feb 2008
Post by: Eponine on December 08, 2007, 10:33:11 AM
I would love  to attend any conference that has something to do with thal but i dont have budget to go outside the Philippines ...I would like to meet fellow thals too...I want to feel I'm not alone in this world kind of anemia ...help!  :wah :wah :wah

Hi Jane

Are you a member of your national thalassaemia association? I'm sure they will try to help out with your finances if you express your interest in the conference.