Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: pdilorenzo on April 05, 2015, 04:43:31 AM



Title: 6th Thalassemia Support Foundation at CHLA on April 18th, 2015
Post by: pdilorenzo on April 05, 2015, 04:43:31 AM
6th Thalassemia Support Foundation at CHLA on April 18th, 2015 (http://www.helpthals.org/blog/2015/03/01/6th-thalassemia-support-foundation-conference/)

Saturday –  April 18, 2015

Children’s Hospital Los Angeles (CHLA)

4650 Sunset Boulevard
Los Angeles, CA  90027

This conference is FREE to all attendees.

Please RSVP by April 12, 2015

RSVP to Kelly Russell by calling: 323-361-3269 or emailing: krussell@chla.usc.edu.
In your phone message/email, please include the full name(s) of each attendee, as well as a phone
number where you can be reached. Also, please include the ages of those under 18-years-old.

Space is limited and an RSVP is mandatory.

If you do not RSVP, there may not be space available to you at the conference.

Schedule of Events

09:30 - 10:00     Registration and Light Refreshments
10:00 - 10:15     Opening Remarks - Paul DiLorenzo, PhD (TSF President)
10:15 - 11:15     Standards of Care for Thalassemia - Thomas Coates, MD (Children’s Hospital Los Angeles)
11:15 - 11:30     Break
11:30 - 12:30     Transitioning from Pediatric to Adult Care - Susan Carson, MSN, RN, CPNP (Children’s Hospital Los Angeles)
12:30 - 12:45     Sanguine BioSciences, Inc. - Kristen Warren, Director of Clinical Operations
12:45 - 02:00     Lunch
02:00 - 02:30     Bluebird Bio - Alexandria Petrusich, Director of Clinical Operations
02:30 - 03:45     Panel Discussion: Coping with Thalassemia - Moderator: Laurice Levine, MA, CCLS (Children’s Hospital Research Center Oakland)
03:45 - 04:45     Breakout Session - Patients, Parents and Significant Others
04:45 - 05:00     Closing Remarks - Paul DiLorenzo, PhD (TSF President)
Children’s Session will be available


Title: Re: 6th Thalassemia Support Foundation at CHLA on April 18th, 2015
Post by: pdilorenzo on July 06, 2015, 02:12:55 AM
We posted Dr. Thomas Coates and Susan Carson's presentations from our 6th TSF conference this year on YouTube.

If you were not able to attend the conference, I would highly recommend watching these videos.  Please share with others.

Dr. Thomas Coates - https://youtu.be/-lh2jslRWbg
Susan Carson - https://youtu.be/6p7uH0ijNwA