Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Nomad on May 04, 2016, 08:13:11 PM



Title: DeGeTha - German society for thalassaemia
Post by: Nomad on May 04, 2016, 08:13:11 PM
Dear thalassaemics all over the world,
I am verry proud to announce that we have established the first german thal. society called DeGeTha. Our target is the hollistic support of thalassaemia patients. Most of our members are thalassaemics themselfs. Among us we have thalassaemic doctors, nurses, and people from multiple buisinnes sectors. We also have contact to many pharma companies, hospitals and other associations worldwide. We try to share our knowledge, offer support and colaboration to everyone interessted in thalassaemia all over the world.
Visit us on degetha.org

Kostas -
patience advocate


Title: Re: DeGeTha - German society for thalassaemia
Post by: sofear on May 05, 2016, 08:36:17 AM
Die Webseite sieht noch etwas leer aus.  :biggrin
--
The website is looking at bit empty at the moment.  :biggrin


Title: Re: DeGeTha - German society for thalassaemia
Post by: Nomad on May 05, 2016, 02:27:58 PM
Vielen dank für die kritik...
The website is still in progress. We're working on it...


Title: Re: DeGeTha - German society for thalassaemia
Post by: sofear on May 05, 2016, 04:31:53 PM
I like the style, though.  :smileblue


Title: Re: DeGeTha - German society for thalassaemia
Post by: Andy on May 10, 2016, 05:57:00 PM
Good luck with the new website. Let me know when it's fully up and I can notify people in the Facebook groups.


Title: Re: DeGeTha - German society for thalassaemia
Post by: Sharmin on May 16, 2016, 04:47:34 PM
Good work Nomad


Title: Re: DeGeTha - German society for thalassaemia
Post by: Phoenix on May 20, 2016, 05:20:14 AM
Nice work.

All the best  :thumbsup


Title: Re: DeGeTha - German society for thalassaemia
Post by: Molecule on December 12, 2016, 01:09:45 PM
Its simply not true that Degetha is the first thal society in Germany. There is a successful  thal association registered since 2006 with almost a 100 members and a well organized national and international network. The association is called SAM e.V. and includes also other hemoglobinopathies. We are proud to host the next TIF International Conference on Thalassemia in October 2017. More info coming soon


Title: Re: DeGeTha - German society for thalassaemia
Post by: Andy on December 12, 2016, 02:40:22 PM
This is the link to SAM e.V  http://seltene-anaemien-deutschland.de/


Title: Re: DeGeTha - German society for thalassaemia
Post by: Lokkhi maa on December 14, 2016, 01:29:35 AM

Best of luck   :heartpink