Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: Andy Battaglia on May 30, 2018, 03:51:37 PM



Title: Research Opportunity for US Patients
Post by: Andy Battaglia on May 30, 2018, 03:51:37 PM
For US residents.
We are looking for a total of 24 patients to do a 1 hour web-assisted phone interview in the next 3-4 weeks. Additionally, there is a 30 minute homework to complete before the interview. The discussion will be about their journey from diagnosis to current day including their medications and relationship to healthcare professionals. As an incentive we are offering $195 to patients ($130 for the interview + $65 for the homework).
https://www.liberatingsurveys.com/en/enquire/139


Title: Re: Research Opportunity for US Patients
Post by: Andy Battaglia on June 14, 2018, 11:28:19 AM
"...now looking to speak to caregivers of children diagnosed with Beta Thal as well. "

We are conducting telephone interviews with Patients and Carers/Parents of people living with Beta Thalassemia to learn more about your experiences and your journey from diagnosis and initial treatment to present day.
https://www.liberatingsurveys.com/en/enquire/139


Title: Re: Research Opportunity for US Patients
Post by: Andy Battaglia on July 03, 2018, 05:38:42 PM
They are still trying to get a few more caregivers of children to participate. Specifically, they are looking for caregivers of thal intermedia patients who have transfused during the past 12 months.


Title: Re: Research Opportunity for US Patients
Post by: Danny.H on July 26, 2018, 03:04:06 AM
I wish one of this days they can create a survey for minors


Title: Re: Research Opportunity for US Patients
Post by: Andy Battaglia on July 28, 2018, 02:37:07 PM
One of the recent study opportunities did recruit minors, as well. I'm seeing more of these surveys, etc because of tax laws that are favorable to research of orphan diseases. I'll try to keep the group posted as requests are made.