Thalassemia Patients and Friends

Discussion Forums => Thalassemia-related Issues => Topic started by: jatin on September 06, 2018, 08:28:16 AM



Title: Migraine headache in thalassemia major
Post by: jatin on September 06, 2018, 08:28:16 AM
Has any one migraine headache in thalassemic major .
What care should be taken pls suggest your experience.
Thanks to all
Jatin


Title: Re: Migraine headache in thalassemia major
Post by: Andy Battaglia on September 17, 2018, 06:12:20 PM
I don't know if there's any specific relation between migraines and thalassemia, but if anyone has any tips, I would also like to know, as my wife gets them occasionally. I've been getting ocular migraines that don't have a headache but distort my vision, limiting my online time lately. Again, if anyone has ideas that are known to help, we would appreciate it.


Title: Re: Migraine headache in thalassemia major
Post by: restless923 on January 20, 2020, 10:50:44 PM
I do get headaches but it’s usually because my hemoglobin has fallen. Meaning not enough blood is going to the brain.


Title: Re: Migraine headache in thalassemia major
Post by: David Clay on August 25, 2020, 03:59:35 AM
I used to get migraines with an aura warning 20mins before a 3 hour headache approx every month, now they are far less frequent. I supplement with very low dose thyroid (t3), and I think that helps, i think it may also be related to glucose metabolism. I have heard that alot of sugar and progesterone can help stop it. Last time i did a hike on an empty stomach i got one.

Interestingly also i took some liver herbs and immediately got the worst 6 hour+ migraine of my life. Either it stimulated something in my liver, or the herb irritated my intestine i think.

the study cited below makes a link between  migraines and nitric oxide. I think there is debate as to whether nitric oxide is healthy or not.
https://www.theguardian.com/science/2016/oct/18/migraines-could-be-caused-by-gut-bacteria-nitrates-food-trigger-study-suggests