Thalassemia Patients and Friends

Discussion Forums => Thalassemia Intermedia => Topic started by: Lokkhi maa on August 31, 2019, 03:38:45 AM



Title: Vitamin E and Folic acid
Post by: Lokkhi maa on August 31, 2019, 03:38:45 AM
Dear Andy,

My 5 yrs old child daily taking 200 iu Vitamin E and 5mg Folic acid.

But recently her doctor advised not to continue vitamin E regularly and folic acid 15mg per day.

Doctor also said she may take vitamin E 1day gap.

Her serum ferritin is now 1005.

Last month we have not give her Asunra for supply issue.

If not continue chelaton therapy regularly then it will be harmful for my child?


  


Title: Re: Vitamin E and Folic acid
Post by: Andy Battaglia on September 11, 2019, 03:11:23 PM
It really depends on what the child is taking. If the vitamin E is natural and not synthetic, 200 IU is fine. If it is synthetic, throw it out and find natural E.
If the child is taking folic acid and not folate, the dosing should not be high, as folic acid can build in the body due to its slow processing by the liver. If the child takes folate, a dose of 1-2 mg daily is sufficient. If it's folic acid, no more than 400 mcg should be taken daily.

Chelation is mandatory for transfusing patients. Iron will damage the organs if not removed. If the iron load is under control, lower doses of the chelator can be used.


Title: Re: Vitamin E and Folic acid
Post by: Md. Abdul Hakim on September 28, 2019, 03:12:06 PM
Dear lokkhi maa
My name is A. Hakim from bangladesh.
My little princess age 18 month recently diagnosed E/ beta thalassemia.her hb level is 8.3g/dl. We are feeling very  helplessness. Do you know please where will we found wheat grass?