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Thalassemia Patients and Friends and thalpal © A. Battaglia 2017





53913 Posts in 5667 Topics by 5689 Members
Latest Member: laurag33

We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts.
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 1 
 on: Today at 11:10:57 AM 
Started by Missy123 - Last post by Canadian_Family
Why not consider local anesthetic. My son had his circumcision at age 4 weeks (I think the doctor just used numb cream "EMLA"), it worked fine. He is thal minor. Circumcision is a relatively safe procedure. Generally, it should not be delayed beyond 3 months (that's when a child is less likely to move during the procedure).

 2 
 on: Today at 03:06:32 AM 
Started by Missy123 - Last post by Missy123
Baby Y is now 20 months old and we are planning on having him circumcised. He is beta thal / hbe intermedia. His hb levels have been averaging around 70hb. He has not had any transfusions in over 1 year.

I spoke with the haematologist regarding his circumcision. This will need to be done under general anaesthetic. We were advised there  could be complications and we shouldnt go through with the procedure due to his levels being so low.

Can anyone advise?

Is it safe for him to go through a circumsicion?
Appreciate any advice /input.

Regards
sajeda

 3 
 on: Yesterday at 08:25:29 AM 
Started by Hasan - Last post by Hasan
Sir

Hb level is 11.1

serum iron level  103
Tibc  367

Serum ferritin 44.2


Should i give iron syrup.?


Moreover is there danger of spleen removal for thal minor? How to avoid it.

Should i give folic acid and b complex for whole life or stop after some duration

 4 
 on: August 16, 2017, 11:43:38 AM 
Started by jsbhavsar - Last post by dq
hello Andy, just a little bump on this thread.. cheers..

 5 
 on: August 16, 2017, 07:33:29 AM 
Started by jsbhavsar - Last post by dq
@Andy

How ya doing Andy pal..

Ok, so I took the plunge and bought this: http://www.solgar.co.uk/SolgarProducts/Vitamin-E-268mg-400iu-Vegetable-Softgels.htm   Hope its ok..?

I'll go ahead and start a course of this and see how things go for me. I took a baseline blood test a few days and it would be interesting to see if any changes occur.

It's just the one tablet per day right..? Us thals don't need to take more?

Thanks for all your help buddy.

 6 
 on: August 15, 2017, 11:34:23 AM 
Started by Fahed_FN - Last post by Fahed_FN
Hi Andy,

I live in UAE and BMT is not available over here.

 7 
 on: August 15, 2017, 02:42:25 AM 
Started by maha - Last post by maha
Sorry for the late reply, was traveling. Initially Hassan used to be transfused every 4 weeks 15ml/kg, but as he grew and his requirements increased we transfused him every 3 weeks, 12ml/kg as we could arrange for only one donor at a time. His pre transfusion which had been over 9.5 for years had dropped to 8.5 and the hospital refused to use another unit. Finding veins was becoming a issue and he was getting pricked over and over again in the same hand. So had decided to try Dr Ramanan's novel therapy. He was transfused twice first after 5 weeks (hb 7.5) and then after 8 weeks(hb 7.8) once we started the treatment. Alhamdulillah after that for 6 months his hb stabilized around 8.8 and then started to rise. 

 8 
 on: August 14, 2017, 09:12:44 PM 
Started by soulful - Last post by Andy
Have you had to transfuse more than before you were pregnant?

 9 
 on: August 14, 2017, 08:02:40 PM 
Started by Holdkm - Last post by Andy
If alpha is suspected in an adult, it will usually require a DNA analysis to confirm and diagnose the exact status. The children were likely tested at birth, so it should be in their newborn records. A newborn electrophoresis will show hemoglobin barts when alpha carriers are first born. This fades after birth. A hematologist would be able to order the test and explain the results.

 10 
 on: August 14, 2017, 07:57:13 PM 
Started by jsbhavsar - Last post by Andy
They're all good brands. Holland and Barrett have been in business for 145 years. Perhaps your shop assistant isn't aware that all supplements are regulated for quality and ingredients. That is why the synthetic E has to say dl-alpha on the label. I stick with reputable companies when buying supplements. I've been using supplements for more than 40 years, so I am familiar with many of the brands, like Solgar. They stick around by manufacturing good products.
Yep, ignore his advice, mate.

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