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Thalassemia Patients and Friends and thalpal © A. Battaglia 2017





54119 Posts in 5686 Topics by 5747 Members
Latest Member: ADN

We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts.
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 1 
 on: October 19, 2017, 01:32:37 AM 
Started by mnoumanans - Last post by mnoumanans
Ok, will try that.

 2 
 on: October 18, 2017, 08:52:20 PM 
Started by Pratik - Last post by Sharmin
Hello Andy,

I am eager to learn about the new approach using the patient's own stem sells. Is it the Sangamo gene therapy?

Thank you,

Sharmin

 3 
 on: October 17, 2017, 04:28:14 PM 
Started by Gemini - Last post by Andy
Maybe you should stick to the oral D supplements. They do work and you can find doses that are 50-60,000 IU.

 4 
 on: October 17, 2017, 04:26:18 PM 
Started by tanzim - Last post by Andy
I can't advise you on this. I know very little about RA and its treatment. You need to talk to the rheumatologist.

 5 
 on: October 17, 2017, 04:19:29 PM 
Started by mnoumanans - Last post by Andy
You probably do also need the iron. Your Hb and ferritin are both low. Iron may help you bump the Hb up a bit.

 6 
 on: October 17, 2017, 02:21:26 PM 
Started by tanzim - Last post by tanzim
Hi, Andy & Others!
Since 4 months, I feel more pain in my whole body; and sometimes my two legs can't bear my body weight. I meet with my doctor. First, he referred me to a rheumatologist doctor to send an online referral letter. & prescribed Celebrex - 200 mg. twice a day. Already 4 months past, but that rheumatologist doctor's appointment yet not getting. The day before yesterday I went to Emergency Department. But there, Doctor only try to increase my pain relief amount: which is higher than before. I did not except that & argued with them. After that, I leave the hospital. The same day I received a call from a consultant & he referred me to bone & join center. The next day I meet there with an orthopedics doctor & he did some X-RAY and Blood test, @ Calcium, Phosphorus, Alkaline, Vit -D etc. Today again I meet with him & he showed me all result of the test. As per his experience, Whatever he did as an orthopedics, all related test result is normal; only X-Ray report showing that bone is week than normal. He advised me to meet a rheumatologist doctor.
Nowadays my supplements are - Exjade - 1000 mg. Calcium 300 mg. 3times. Vit - D 50000 IU once a week. & Celebrex - 200 mg. 2 times. Blood transfusions Regular. Hb - Normal, Iron Level - Normal.
Before I taken 2 Celebrex in a day. But now it is not enough to stop my pain. Now I need a good suggestion from you & others. How can I stop my Celebrex?
Please Advise me to find out the actual problem.
THANKS, EVERYBODY.      

 7 
 on: October 16, 2017, 11:56:35 PM 
Started by maha - Last post by sanjuna
Hi Maha,
Please help me to know, are you still continue with Medicine or completely stopped.

 8 
 on: October 16, 2017, 10:23:47 AM 
Started by mnoumanans - Last post by mnoumanans
Thankyou! That’s was helpful! I will try it. Just one more thing, shall I take oral iron supplement with the folate?

 9 
 on: October 16, 2017, 03:46:04 AM 
Started by Andy - Last post by jsbhavsar
When my body was pumped with
Cyanacobalamin 500mcg + Niacinamide + Folic Acid

My uric acid levels rose sharply. I felt the Niacin (B3) was causing rise in uric acid levels.

And
Getting a B Complex supplement that will not contain the B3 is a very tough find.

Somehow I felt that B3 raises uric acid levels.

 10 
 on: October 16, 2017, 03:43:19 AM 
Started by joanne - Last post by jsbhavsar
I am beta thal intermedia and I am diagnosed hypothyrodism from 2007 onwards. The trigger to thyroid gland happened when I was on heavy drugs for curing my TB in 2006.

My elder sister beta thal minor is also hypothyroid patient.

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