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55407 Posts in 5930 Topics by 6250 Members
Latest Member: Elisa825

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Author Topic: Thal Care at St. Jude Children's Research Hospital  (Read 8677 times)
Benjamin
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Location: Born: Rochester, NY Living: Daytona Beach, Fl

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« on: April 05, 2006, 10:06:16 PM »

Hi I am Benjamin Woffindale:

      I am a Patient in Florida. I used to go to NIH in Bethesda, MD. I go to St. Jude Children's Research Hospital. I see Dr. Martha Rieman as my immediate heotological physician when I arrive, I am also seen by Dr. Derek Persons. He is the head of the Hemotological/Thalassemic Treatment.

                        St. Jude Children's Research Hospital
                        332 North Lauderdale Street
                        Memphis, Tennessee 38105
                        1-901-495-3300
                        www.stjude.org
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Ekala74
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Location: Maryland - USA

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« Reply #1 on: May 16, 2008, 03:34:43 AM »

To go the St Jude you need a referral from your hemo dr?  I am asking this because I am trying to take my son there and without a referral they won't see you.

If you did need a referral how long did it took you to be seen at St Jude.

I live in Maryland.
Thanks
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Narendra
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Location: Austin, TX

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« Reply #2 on: May 16, 2008, 03:07:44 PM »

Hello Ekala74 and Welcome to the site,

Is there a reason, why you would prefer going to St. Jude Children's?

Not sure about sickle cell but there are 7 center's Thalassemia Treatment Centers in US and the closest to your location would be Children's Hospital of Philadelphia.
From:- http://www.cooleysanemia.com/sections.php?sec=366
Quote
Children's Hospital Of Philadelphia
Director: Alan Cohen, MD
Contact: Marie Martin, (215) 590-2197

Is your son on regular blood transfusion? I am NOT much familiar with Sickle Cell but I read this article which relates to Sickle Cell Spleen Sequestration, and think it might be helpful to you
From:- http://www.cochrane.org/reviews/en/ab003425.html
Quote
Splenectomy and blood transfusion, with their consequences, are the mainstay of long-term management used in different parts of the world

We are with you to find more information and support to get the best treatment for your son
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Andy Battaglia
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Location: In my heart, Maldives

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Will thal rule you or will you rule thal?


« Reply #3 on: May 16, 2008, 03:45:04 PM »

Hi E,

As you know from my pm, I agree with Narendra. CHOP would be the best place to go for a consultation. The info for the sickle cell center is slightly different.

http://www.chop.edu/consumer/jsp/division/generic.jsp?id=70459

To make an appointment at the Main Hospital or to learn more about our studies, call 215-590-3423. To make an appointment in our Voorhees, NJ Specialty Care Center location, call 856-435-7502.

Your own doctor or center should be able to give you a referral. Consult with your insurer also.
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Andy

All we are saying is give thals a chance.
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