especialy to Andy question abt chelation

  • 317 Replies
  • 255704 Views
*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #15 on: July 13, 2008, 12:54:38 PM »
When I Asked God   

When I Asked God for Strength
He Gave Me Difficult Situations to Face   
When I Asked God for Brain & Brown
He Gave Me Puzzles in Life to Solve   
When I Asked God for Happiness
He Showed Me Some Unhappy People   
When I Asked God for Wealth
He Showed Me How to Work Hard 
When I Asked God for Favors
He Showed Me Opportunities to Work Hard 
When I Asked God for Peace
He Showed Me How to Help Others 
God Gave Me Nothing I Wanted
He Gave Me Everything I Needed  ==============================================
I don't fully agree with whatever has been said by thewriter but the point is that when you  don't get what you ask for, you should not despair.Instead, look around, you may have been  rewarded in a different way
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Ayesha

  • ***
  • 174
  • Gender: Female
    • Ayesha's Blog!
Re: especialy to Andy question abt chelation
« Reply #16 on: July 13, 2008, 03:36:15 PM »
mashaAllah!!! congrats buddy :)!!!

Allah give us what ever is right for us, sometimes we ask for the things which in our point of view is right but Allah knows that it isn't right for us that is why he doesn't give us that thing and give us something better than that :)

it is said that when in heaven Allah will give us rewards in exchange of the prayers which didn't get accept, the person would wish that his none of the prayers would have been answered in the world so that he could have enjoyed the bounties of heaven :)

may Allah give all of us long, healthy, happy, peaceful life and strength to fight! ameen!!!!!!
-Ayesha

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: especialy to Andy question abt chelation
« Reply #17 on: July 13, 2008, 03:39:44 PM »
Iron Man Umair,

Well done! Your determination to totally comply with your chelation program is now showing the results that I knew it would. You will also find that if you stick to your program 100% that you will see your ferritin make even more dramatic drops in the upcoming months. Once it gets down from those previous dangerous levels, it is quite amazing how quickly you will see even more progress. One year from now I expect you will be telling us about a ferritin level of below 2000 and possibly even under 1000. You have seen the results reflected in your health and there is nothing I can say that will encourage you as much as knowing how much better your own health is as a result of your own hard work.


Umair, you have gone from being a good follower of advice to being a good example and a true leader of your fellow thals. Keep up the hard work and you will receive continued success.

 :congrats
Andy

All we are saying is give thals a chance.

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #18 on: July 13, 2008, 08:08:40 PM »
hi andy :
thanx buddy for encouragement...
its all bcoze of encouragement of all of this site members especialy you and sajid ... i m still having desferal right now bcoze ii want to take it to normal levels .. and want make sure that reports was true coze i still didn't believe  ..  :dunno i do't know how i did it  :dunno .. surprised and amzed to that surprize ..... keep encourging as u did well .. bcoze ur encouragement mean alot for me .. thank you 

@ all those who remember me in their prayer n posts  thank you to all  especialy manal cherian sajjid  and all other thank u u all r realy kind persons ... andy n ayesh both you also included in all  .. 

@ Ayesha
AOA :
thanx for compliment , encourgment or prayer watever it was  but it was nice .. thanx ..
may ALLAH will fullfill all that you desireed  ( in a postive way .. in the way mean .. he gave everything i needed )  best of luck i m waiting to hear that to you and asim  wat i mentioned in previous posts  ( iron level decreased  )  ... okiey soo keep it on carefully keep taking chelation therapy ...................................

Quote
Allah give us what ever is right for us, sometimes we ask for the things which in our point of view is right but Allah knows that it isn't right for us that is why he doesn't give us that thing and give us something better than that 

 ABSOLUTELY RIGHT
« Last Edit: July 14, 2008, 11:10:44 AM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #19 on: July 15, 2008, 01:02:49 PM »
@ SAJID , ANDY & ALL
thanx buddys its alla bt ur prayers and regards ...  :thankyou soo much for being with me throughout this and helping me alot .... thank you
==================================================

hi :
i have another thing to about my blood test result..
on third page of results  i found two valeus which amazed me more...
i found increasment  in one and stability in other ....


in janaury 2008 i last done these test and the result was  ( writen below )

                                      result                   normal range
W.B.C                             27.0** x10E9/L       (4-10)
Neutrophils                      20 %                      (40-75)

and in july 2008 :

                                 result                          normal range
W.B.C                        13.1.0**   x10E9/L      ( 4-10)
Neutrophils                  27%                          (40-75)
Platelets                      539         x10E9/L       (150-400)


last time when i done platelets test in april 2007 result was : 545 x10E9/L ...

i did't understand is it good or ...

its good that i m not going to efected by neutropena which is a side of ferriprox ..
still far away to Low-platelet type of condition ... these are the good signs .
on the other end  W.B.C is lowering down .... pray that doctor keep conitnued my this

treatment .. bcoze it works alot   ... to lower down iron level .... 


 
« Last Edit: July 15, 2008, 01:09:39 PM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #20 on: August 29, 2008, 11:15:06 AM »
Hi Andy :
how r u ?.
i m taking  Vit-D thrice a day , Vit-E  once a day , ferriprox thrice a day ,  zincat syrup and
aldectone ( spirolacton tablets B.P) half a day ...

i want to ask that , can i take Vit-C along with these medicine permanantly ???
if i Not then, can i take it (Vit-C) only when i start chelation ( with defseral ) ??

Umair
« Last Edit: August 29, 2008, 11:27:02 AM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline §ãJ¡Ð ساجد

  • Beta Thal Major
  • *****
  • 1991
  • Gender: Male
  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: especialy to Andy question abt chelation
« Reply #21 on: August 29, 2008, 02:17:45 PM »
Yes, vit-c is better taken with desferal if your doctor hasn't recommended it for other treatment.

Taking unnecessary amounts will make the stored iron more mobile and risk settling in other organs such as heart.
اَسّلامُ علیکم Peace be Upon you
§ãJ¡Ð ®âµƒ
Web Site

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: especialy to Andy question abt chelation
« Reply #22 on: August 29, 2008, 02:50:22 PM »
It is safe to take small amounts of vitamin C daily, but when it isn't taken at the same time as chelation, take it between meals so that it doesn't aid in iron being absorbed in your gut. You can take 200-250 mg with your chelation but take a lower dose, 100 mg, when it doesn't coincide with chelation. Thals shouldn't take more than 250 mg daily.
Andy

All we are saying is give thals a chance.

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #23 on: August 29, 2008, 03:09:14 PM »
thank you buddies :
i will definitely follow your advises ..
 
Take care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: especialy to Andy question abt chelation
« Reply #24 on: August 29, 2008, 04:18:09 PM »
Umair,

I see that your ferritin levels have come down drastically - congratulations.  I hope that they came down even further soon, please keep us posted.  It sounds like you are on a good plan, I think combination therapy is key when you are overloaded. 

All the best,

Sharmin
Sharmin

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #25 on: August 29, 2008, 08:32:58 PM »
Hi Sharmin :
Thank you for the encouragement and wishing me the Luck ,...yes, combination therapy works alot ,i m still on it....i have given my blood symples  to done my LFT and S.Ferritin on this thursday .. i hope results will come again in my favour ... i will update you all ,to my reports ... i always need your prayers, your enouragements , your sugesstions ...  i also need your sugestions about medicines, tips and tricks about chelation therapy and other and therapies ....... plz keep me remember in your prayers...

Take care
UMAIR
« Last Edit: August 29, 2008, 08:38:11 PM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #26 on: September 04, 2008, 01:06:17 AM »
Hi :
Sorry for being too late to inform … I was
Her is my new reports … it could be more satisfactory, but .. bcoze of little  discontinuity of Ferriprox ( 1&half or 2 weeks ) its not that  much good as previous report was ..
as I was expecting, iron decreased but on a slow rate … I m happy to see my reports bocze it ( iron ) is coming down with less efforts than its seem’s to needed ( aggressive chelation for 6 months ) …. I hope, I will b writing here, that my iron is  is within the normal range, very soon … :winks :thumbsup

My Last Level : date 11/july/08

                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                                3582 ng/ml

My Last Level : date 28/Aug/08

                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                                2902 ng/ml

Aga Khan Labs..

680ng/ml decreased in one month ….  :stars :party :yay :party :stars ….

For this time , it’s the most suitable quotation …
Quote
Roberto Clemente:
If I would be happy, I would be a bad ballplayer.
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: especialy to Andy question abt chelation
« Reply #27 on: September 04, 2008, 02:33:03 AM »
That's excellent progress, Umair! Keep up the good work.

 :high5
Andy

All we are saying is give thals a chance.

*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: especialy to Andy question abt chelation
« Reply #28 on: September 04, 2008, 02:39:15 AM »
Congratulations our hero, you are an inspiration :hugfriend

manal

*

Offline Sharmin

  • *****
  • 4155
  • Gender: Female
  • Little A
Re: especialy to Andy question abt chelation
« Reply #29 on: September 04, 2008, 03:10:59 AM »
Umair,

I am glad to see that you are making progress:) 
I hope to see you below 2000 very soon. 

Best of luck,

Sharmin
Sharmin

 

SMF spam blocked by CleanTalk