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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55209 Posts in 5890 Topics by 6179 Members
Latest Member: charlie_k1081

A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Did U Know That  (Read 96191 times)
jade
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« Reply #75 on: October 08, 2009, 07:36:28 AM »

Hi there

1kg pine bark contains 2000 mg antioxidants.  I was watching a t.v. program yesterday and they showed how a lady who was suffering from low bp and frequent fainting took this pine bark infusion and she got better. It is supposed to regularise blood pressure (both low and high) and boost energy.  It is used in China.  Anyone uses this?

Jade
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Manal
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mother of thal intermedia child


« Reply #76 on: October 19, 2009, 12:18:18 AM »

At least 15 million blood units are needed every year to keep alive 500,000 patients with beta-thalassaemia major

http://www.thalassaemia.org.cy/did_you_know.html

manal

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Narendra
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« Reply #77 on: August 16, 2010, 04:58:44 PM »

Did You Know That : Thalassemia is the most common, inherited single gene disorder in the world.

Source : http://thalassemia.com
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Kishore
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Lets know, inform, implement and live better through fighting against thalassemia.


WWW
« Reply #78 on: August 12, 2011, 10:23:16 AM »

DID YOU KNOW THAT ?
IF I COULD  KNOW ABOUT MY THAL EARLIER
I WOULD IOVE MY LIFE MORE BETTER.
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Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #79 on: April 24, 2012, 06:54:36 PM »

Did you know that vitamin C restores the antioxidant properties of vitamin E once the vitamin E has already been used once as an antioxidant by the body? We definitely need more research into vitamin C and thalassemia.
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Andy

All we are saying is give thals a chance.
Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #80 on: April 26, 2012, 04:28:08 PM »

Did you know that thalpal is also on Facebook? https://www.facebook.com/groups/78504283219/
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Andy

All we are saying is give thals a chance.
Pratik
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« Reply #81 on: April 27, 2012, 05:09:19 AM »

Hi mother of little,

(Do you have any connection with another member from Saudi Arabia named father of little?)

Aluminum should be avoided with Exjade, because Exjade reacts with aluminum and it the aluminum neutralizes the Exjade, making it useless. For this reason, you also need to avoid any antacids that contain aluminum. Do not mix Exjade in any metal container or with any metal implement. Use plastic spoons to mix.

What is your daughter's weight and what dose of Exjade is she taking daily and for how long has she been on that dose?
Hi Andy, I would like to seek an advice from you regarding your post of this.

My father gives me EXJADE daily at 7 in the morning in Aluminium (metal) glass as we only use those glasses for normal use only.

Does that makes a big difference? Really?

-Pratik.
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Every child is special.
Andy Battaglia
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« Reply #82 on: April 27, 2012, 08:51:07 AM »

I would suggest not using a metal container to mix Exjade. There is too much exposure to the surface of the container. Using a metal spoon is considered acceptable but I would advise against a metal container because we don't know how much reaction between the chelator and the metal.
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Andy

All we are saying is give thals a chance.
Pratik
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« Reply #83 on: April 27, 2012, 09:08:56 AM »

Hi Andy,

Thanks for your advice.

Is glass container or plastic container (both) are good for it?

Thanks for the tip, I shall change it from tomorrow.
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Every child is special.
Dharmesh
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« Reply #84 on: July 08, 2012, 01:25:56 PM »

Hi Andy, I would like to seek an advice from you regarding your post of this.

My father gives me EXJADE daily at 7 in the morning in Aluminium (metal) glass as we only use those glasses for normal use only.

Does that makes a big difference? Really?

-Pratik.
What is Aluminium containing antacid?
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Start listening your body, it always gives signs
Dharmesh
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« Reply #85 on: July 08, 2012, 01:31:55 PM »

Did you know that vitamin C restores the antioxidant properties of vitamin E once the vitamin E has already been used once as an antioxidant by the body? We definitely need more research into vitamin C and thalassemia.
It means Vitamin C is used by the body instead of Vitamin E when Vitamin E get utilised by the body?
Is it something like Sodium and Potassium inter changeble properties?
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Start listening your body, it always gives signs
Andy Battaglia
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« Reply #86 on: July 08, 2012, 01:43:32 PM »

No. It means that once vitamin E is used as an antioxidant, a chemical change occurs. Vitamin C restores vitamin E to the same status as before it was used, so it can be used again as an antioxidant. The two work together.
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Andy

All we are saying is give thals a chance.
Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #87 on: July 08, 2012, 01:44:43 PM »

Some antacids contain aluminum. These should be avoided by Exjade users (and by everyone in general, because aluminum is a toxic metal).
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #88 on: July 08, 2012, 01:49:49 PM »

Did You Know That :

Hypoglycaemia is the more Dangrous condition than the Hyperglycaemia....

Hypo]glycaemia :
                    Abnormally low blood sugar usually resulting from excessive insulin or
                    not   maintained diet ( low food intake than the needs of body ).

Hyperglycaemia :
                    Abnormally high blood sugar usually associated with diabetes ..

HAVE FACED TWICE HYPOGLYCEMIA. IT IS MORE DANGEROUS FOR PATIENT AND PAINFUL FOR PARENTS TO CURE IT QUICKLY( AS PATIENT IS SUB CONSCIOUS)
SO, JUST TRY TO MANAGE SLIGHT ELEVATED LEVEL OF BLOOD SUGAR. AND KEEP FAMILY RELAX.
DHARMESH
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Start listening your body, it always gives signs
Dharmesh
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« Reply #89 on: July 08, 2012, 01:56:19 PM »

when the going gets tough the tough gets going
Hi Sarah,
I like this quote much.
My coaching classes use it as slogan.
Truly said, When going gets tough the tough(Inner strength) gets going.
Dharmesh.
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Start listening your body, it always gives signs
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