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Author Topic: The Carao Trial - How effective is it & who benefits most etc.  (Read 12828 times)
Zaini
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« Reply #105 on: March 18, 2009, 03:46:11 am »

Liitle Z is finishing her 8th bottle of carao,My father has asked his friend to bring 12 more bottles of carao,an year's stock,and Little Z was like " OMG !! why would nana do that to me " ?  .After so many bottles she still can't take the smell .

On serious note,i think that carao is benefiting our children,we saw a week's difference in her transfusion intervals,she was regularly going on three weeks,and her pre transfusion hb was between 9 and 9.5,now she goes at four weeks and her hb is between 9.5 and 10.This month after transfusion she had 104 degree fever and a very severe cough,i thought we'll have to go for transfusion on three weeks this time,but her hb at 3 weeks post transfusion was 11.1,now lets see what it will be after 4 weeks.

Thanks Andy for guiding us towards carao and thanks Lloyd for letting us try it.

Zaini.
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Sharmin
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Little A


« Reply #106 on: March 18, 2009, 09:54:13 am »

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" OMG !! why would nana do that to me " ?     
   

Little A is the same way - when I bring him his carao he puts his hand on his head and saying "Oh god why why why.., why is this happening to me."  He is such a cartoon.

Good thing I can ignore him and make him drink it anyway   I think it is really helping too.


Sharmin
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Sharmin
Manal
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« Reply #107 on: March 18, 2009, 06:41:13 pm »

Sharmin

This is exactly what is happening with my son and he even gives it names.  He keeps telling me who told you about it, but i am happy that at the end they take it  :rotflI love their sense of responsibility


manal
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Lloyd Standish
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« Reply #108 on: March 21, 2009, 12:10:12 am »

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You will be happy to know that my HB today is........ 12 in such a short time

manal
I'm real happy for you, Manal!  You're thal minor, right? What was the total time you used carao?

All the reports I have received from thal minors have shown dramatic increases in hemoglobin.  I'd really like to know if there are cases of thal minor that do NOT show improvement in HGB.
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Manal
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« Reply #109 on: March 21, 2009, 08:56:18 am »

Thanks Lloyd so much  for everything and for your generous offer

I started the Carao on the 28th of October 2008 with the below data

Quote
2. Date when carao is begun - October 28, 2008
3. Dose given - 2 table spoons, my spoon is 10 ml
4. Age and diagnosis of patient - 35, thalassemia minor
5. Average hb before carao was begun on October 4: - HB is 10.9 - MCV 62 - WBCs count 3.200 - platlets 365,000
6. Whether or not any other treatmen  were started during the period that carao was given - : just a mutli vitamin centrum silver but not on regular basis sometimes i take apeppetite supression medication cause i am working on decreasing my weight



On the february 7th, my HB was exactly 12 but what is more important to me is that when i was on Carao, the feeling of fatigue that i have each morning when i wake up is not there and this is the most thing i was happy about

As for my son he is on his nineth bottle and i do feel that it gives him energy and i do think too that it helps in reducing the rate of hemolysis when he gets sick. Before using carao, when he get fever, his Hb decrease with a certain rate, after the carao, it is not the same rate.

Did any body has the same observation???


Please Lloyd, feel free to ask whatever you want

manal
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Sharmin
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Little A


« Reply #110 on: March 21, 2009, 12:18:12 pm »

Manal,

I am thinking of giving it a shot myself.  I will be ordering more carao for lil A, I will order some for myself as well.  I would like to get my hg up as well.  Zaini, are you in 

Sharmin
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Sharmin
Zaini
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« Reply #111 on: March 21, 2009, 04:08:05 pm »

Huh  Why are you punishing me ? 

Anyways i am not sure,although i sure can use some energy,since last few days i am feeling really tired,more then usual,and i have noticed that my feet swell very easily,i had a severe pain in my neck and left shoulder and arm,i went to doctor today and she said there is a big "tired" written on your face and you should be getting some rest ,she saiid you are looking really anemic,and let me tell you i am feeling really anemic now a days,i don't know what is the reason  .day before yesterday i was so dizzy and my head was spinning so muck that it was really hard to get up from bed,but with two kids you can't really stay in bed ,i am thinking of getting my hb checked.

Zaini.
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Sharmin
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Little A


« Reply #112 on: March 21, 2009, 05:27:48 pm »

Zaini,

Please take care of yourself my dear.  Make sure that you are eating regularly and taking your supplements.  Have your B12, vitamin D checked as well.  I think that you should definitely start taking carao - then we can vent to each other how awful it smells 

Make sure that you are well hydrated, dehydration causes fatigue too.  Make sure that you do not get run down, that can bring your defenses and immunity down.

Take care my friend 

Sharmin
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Sharmin
Manal
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« Reply #113 on: March 21, 2009, 05:45:16 pm »

Sharmin and Zaini , good luck girls with the carao, i am sure it will help you a lot.

Zaini, please do take your supplements i am sure that they will help a lot

manal
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Zaini
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« Reply #114 on: March 22, 2009, 02:48:49 am »

Thanks Sharmin and Manal,

I do take supplements but i am not that regular with them,i'll try to be,thanks for your concern dear  .

Zaini.
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