Message from my son:

  Zaini Sis .....

sorry guys but i have nothing to say like you guys because i didnt enjoyed my life like you guys partly because of arthritis.i remember i use to watch my class fellows playing football and wonder one day i would play like them.but unfortunately the day didnt came but i am hopeful that that day would come

I hope that you are able to enjoy your life and that you are pain free.  Arthritis can be devastating I am sorry that you have had to suffer from it.    I hope that you will be able to live the rest of your life participating rather than watching from the sidelines.  There are so many ways that you can participate in life.  Best of luck to you.

Sharmin

sorry guys but i have nothing to say like you guys because i didnt enjoyed my life like you guys partly because of arthritis.i remember i use to watch my class fellows playing football and wonder one day i would play like them.but unfortunately the day didnt came but i am hopeful that that day would come

We may not always say it but some of us had to deal with similiar issues as you.
I can understand what you are talking about only mine is both wrists and hands. Its not arthritis. The specialist says it may be cardiocampothy. It has limited me alot so I adjust so that it doesn't stop me from being me.
You will find your niche in life where you will have fond memories like us no matter what your body is doing.
Thats what I have found for me.

Hey Ahmed ,
why r u sad buddy , look at me  , i didn't enjoy the age wat's called the golden age the age when a boy could b on his peak of everything , i was suffering in that age of 15-20 , i was suffering to various kind of complications of thalassemia here i m gonna mention that all sequence wise ,

1 ) osteoprosis pains
no local doctor could diagnose wat was on with me .... they kept giving me painkiller for 3 years , not contineusly but when-ever i visited any local doctor he prescriipted me painkiller ... one orthopedic who was not a thals ortho but he were realy wise for me .. he is a friend of one of my uncle he gave me fosamax which was the first treatment for osteoprosis in that time ...

2 ) Stomach disturbance and ulcer in intestine ,
bcoze of too much painkillers and for taking painkillers for a long time i catch this complication , it was the worst pain i ever got ,,, i cant express in words , it was the first and last pain that drive me crazy to say anything , i was unable to sleep and i didn't sleep contineusly 2 - 3 nights several time bcoze of i didn't sleep even i took sleeping pills at that time. ... it was the worst thing i ever being through ...

3 ) un-diagnosed diabetes ,
a local doctor told me to eat the traditional heavy food ( desi khorakan hahah .. chori tay ghee wali rotian , doodh jalibi etc...etc .... ) ... after taking all these things , i got the symptoms of diabetes ( till that time i dont knew abt the symptoms of diabates ) when i told wat i  being through he prescripted me almost 20 times for BSL tests ( Blood Sugar Level) ... but even BSL Random and fasting both were normal in the test , but diabetes was damaging my senses and my self ,as i slowly loosing my memory , my eyes , my sense of hearing , understanding even sometime i were unale to recognize my close relatives,........ at least a dctor told my parents to take me to lahore to Dr.javaria manan ... to that day i m recovering day by day and now i m able to play footbal ( penalty kicks only :D ) with my cousin and cricket matches after matches to my cousins ...

in 3rd point i mentioned all wat happened to me soo no 4th point hehehhee,,,

Best regards
Take Care and stay happy  dont loose the courage bcoze its the life ....
Umair

Ahmed,

I don't know what's your ferritin level? how frequently do you transfuse? and if you are taking any kind of supplements? do try to share all this information with us,taking supplements can help you a lot,as well as lowering your ferritin.I know it must be hard being a teenager and not having fun,but we are here for you,we'll help you go through it,be here with us .

Zaini.

Dear Ahmad,

As you can see many of the happy stories that you have read about here are not about how people have had it easy and how they have coasted through life.  It is also not about people who have always been happy regardless of their condition.  Most of the stories involve numerous obstacles and complications that have been overcome to find this happiness and peace.  Many thals have faced limitations, pain, and depression at some point in their life and we are happy to report that many of them have developed healthier and happier attitudes toward life. 

We hope that you will overcome your hurdles as well, we hope that we can help you achieve physical and emotional well being because we KNOW that it can be done.  I cannot say that it will be easy but it can happen if you let it. 

I wish you the best Ahmad, please stay connected to us and the wonderful and inspirational people on this site.  We cannot change everything but we can help you heal.  Remember, it is not what you have it is what you make of it - regardless of your situation.  You sound like you are trouper and that you have a lot of courage, now you need to use this courage to bring about success, happiness and change.  In your 'boxing match life' - you need to block some punches and you need to take some swings at this disease. 

Sharmin

 
We are hear to lend an ear or an idea if you want.

We are hear to lend an ear or an idea if you want.

yeah we all are here for each other ..

Hey guys , it's little A here. Sorry I haven't been on in a while, i have been caught up with school work and hockey. My life has been awesome since i last posted. I am on exjade now, so I don't need desferal or a needle every day and all I have to do is drink a glass of juice. I sometimes read your guy's posts and you all inspire me to thrive towards my full potential. As I have said before, my life is basically normal in every way form playing hockey, to owning a dog, to getting in trouble because I talked in class. I love golf, reading and hockey. I love hockey. Anyways, you guys do so much for your kids, just like my mom does for me. Stay healthy
From your bro,
Little A
LOL :-)

P.S. GO FLAMES

Little A wanted to write a new post for all of you.  He is now 12 1/2 years old and in 7th grade. 

Love,

Sharmin

....goosebumps...

Share that maternal pride,Sharmin...!

You must be so proud of him....we can so feel the love you guys share...

God bless you both....

Madhavi

hi little A!

i want to wish u all the best ...

enjoy ur live and the warm love from ur familie...

u will see every day there will be come is it worth

to live for.          panos

Madhavi and Baal,

Thank you so much.  You have no idea how inspired Little A is from the responses he gets from you all.  I hope all of the little ones will be communicating with us and one another on the board soon.  Hopefully they will keep each other positive and on track 

much love,

Sharmin

Hi Little A

Our Lil A soon gonna be a teen A. Its good to read from you again. May you continue to excel in both academics and of course hockey.

take care and stay happy
maha