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Thalassemia Patients and Friends and thalpal © A. Battaglia 2017





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Author Topic: Splenomegaly in Thalassemia, and are Minors also Affected?  (Read 41445 times)
Poornima
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« Reply #15 on: December 06, 2017, 02:15:03 PM »

Hi Andy:

I have a quick question: I'm a Beta Thal Minor from India and seeing a clinical nutritionist. The nutritionist has suggested I do a coffee enema to get my liver working and getting the toxins out. I have a 8 cm large uterine fibroid and ovarian cysts and also have small intestinal bacterial and fungal overgrowth which causes lots of bloating and gas and tenderness in the abdominal areas.The nutritionist thinks that the coffee enemas used in Gerson cancer therapy stimulate the liver to increase bile flow and toxin dumping accumulated over many many years, jump starting the immune system getting rid of fungi, bacteria, constipation and heavy metals. I also have a sluggish thyroid and extreme dry skin due to it. What is your advice on doing once a week coffee enemas. Apparently I also have a few parasites which can be rid off with the enema as well.

Awaiting your reply. Thanks.

Poornima
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Andy
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« Reply #16 on: December 11, 2017, 10:38:25 PM »

There is no research to back up the value of coffee enemas, but that may be a result of almost no research having been done about the effects. I can't tell you if it might help, but once a week won't hurt you. I wouldn't suggest more often than that.
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Andy

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Markiszuni87
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« Reply #17 on: February 16, 2018, 06:38:20 PM »

Hi all, my name is mark, I have thal minor. I have had an enlarged spleen since I was young. I am 30 years old. About 3 years ago I had my gallbladder removed. It was a very scary thing to go through. I eat mostly vegetarian diet and takefolic acid as well as milk thistle to help cleanse my system. I have read many stories of others having to remove their spleen. This is something very scary for me to imagine being I have heard of complications after removing spleen.

I am 30 and have not had much assistance from doctors. They are very unaware of my disorder. It creates a very uneasy situation to be in. I have mild jaundice since I was a young lad as well. I have lived a normal healthy life except for the gallbladder situation.i have not had any abdominal pain throughout my life besides the gallbladder issue.. other than that all I’m has been well. As of late my spleen has been on my mind since I’m getting older.

I have no abdominal pain, however I would like to know if any suggestions as far as supplements or additional remedies to help keep these things under wrap.

I am happy I found this place, I started to feel very scared and alone facing with this disorder.

Mark Z.
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