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Sajid's dove

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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55424 Posts in 5933 Topics by 6263 Members
Latest Member: anouj

We love you, Lisa.
May you Rest in Peace,
knowing that your legacy lives on,
right here, and through all of us.
You're forever in our hearts.
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Author Topic: Singapore  (Read 3926 times)
Sharmin
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Little A


« on: September 25, 2008, 10:04:17 PM »

What do you all hope to learn from the conference in Singapore?
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Maako
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« Reply #1 on: September 26, 2008, 03:06:40 AM »

I hope to know more about growth and development, chances of an pregnancy as uncomplicated as possible, risks involved in that, osteoporosis...

I also want to know whats ahead in treatment, what are the latest news regarding a cure. I want to know whats being done in the field of research..

I want to ask is there going to be a reduction is price in exjade so that it is available to all of us, not just those who are fortunate enough to afford it, BUT TO ALL... so that we get what we are promised, that is, a healthy and manageble condition, not a life threatning disease..

Most importantly of all, i want to meet the part of the family among us who will be going to singapore as well, i want to get to know all of u, share all our experiences. I want to know whats been done so far in your community or society to raise awareness. I am hoping to learn about new ways and methods we in Maldives havent tried, to raise awareness and funds for the well being of thals and to share what we have done so far with all those interested.

Hoping to meet all of us going, can we have a final list here?

lotsa love... maako
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Maako
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