Hi Sarah and welcome,
Where was the bone marrow transplant done and who were the doctors? I have heard of the mother being the donor for BMT but never heard of the father as a donor. I would like to hear more.
Yes, we do give much attention to Asians here and the reason is because it has been much needed. We have members from all over the world, but the needs of Asians have been great and we do make a special focus on helping anyone who is not getting answers. The international thalassemia organization has had its past two thal conferences in Asian countries in attempts to highlight the needs of Asians, but their day to day efforts are somewhat lacking. We try to fill that void so that no one on earth ever has to feel alone in their struggles with thalassemia. One of the board members of TIF and CAF who is a former president of both organizations, was told at the recent Singapore conference by one of our members that I am the only one who has successfully bridged the gap between the East and the West in the world of thalassemia. This would not have been possible if the Asians had not embraced me right from the start. For me it has been very fulfilling to watch as the Asian countries come to grips with thalassemia and great strides are made. The changes in some countries like Pakistan have been immense is just the past 5 years. There is much still to do but it is very encouraging to see the progress being made to bring care to more people constantly. TIF may be dominated by western thinking but at our group, there are no boundaries. All are welcome and all will be helped in any way that we can.