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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019

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Author Topic: Gene therapy in Europe  (Read 3885 times)
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« on: January 07, 2009, 11:41:03 AM »

Hello Andy,

Yesterday Dr. Alan Cohen said the results from gene therapy experiments going on in Europe are out and "are not being discussed publicly".

What does this mean, is it a bad news? . Do you have any information about these experiments.


Andy Battaglia
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Will thal rule you or will you rule thal?

« Reply #1 on: January 07, 2009, 01:49:44 PM »

I don't want to guess. At the Singapore conference, the public results released were not very encouraging, as they said there was only a 6 month gap before transfusions were needed again. However, what I was told privately was different and far more positive. I think we'll have to wait for official reports.

Since Dr Sadelain is the true pioneer and in my opinion, has the best grasp of the process, I truly believe we will have to wait until his trials start this spring to see how much we can expect from gene therapy.


All we are saying is give thals a chance.
nice friend
Thalassemia Major
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If I Can, Why Not You??... If I Can U TOO !!!...

« Reply #2 on: January 11, 2009, 04:09:07 AM »

I wish and hope that this year will bring some good news in this research ... looking for a affordable and safe cure for thal this year .. hope is still young ..

Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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« Reply #3 on: January 11, 2009, 04:32:34 AM »

A French thalpatient underwent a genetherapy in the beginning of 2008. That's all I read in an article. I do not know how he is doing.
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