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Sajid's dove

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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55293 Posts in 5909 Topics by 6206 Members
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Author Topic: The Modern Thalassemic: Living with the Intention of Staying Alive  (Read 53745 times)
Shipra
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« Reply #30 on: August 12, 2014, 10:32:18 PM »

Hi,
I am new in this forum and don't know much how is it working ,
I have a son , who is 6 years now .
But having beta minor, I went to dr but they told he absolutely fine , I can see him exhausting , not willing to do anything .
I heard that wheat grass juice is good for all kind of thelsmiA, so started it and I found lots of changes in him,
But then I was told that it is not good for kids so I stopped it   And again he feels so tired .

Plz could anyone suggest me that should I continue wheatgrass for him ?
Thanks
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Andy Battaglia
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Location: In my heart, Maldives

Gender: Male
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Will thal rule you or will you rule thal?


« Reply #31 on: August 13, 2014, 09:19:47 AM »

As I said in my message, wheatgrass is a simple food and is perfectly safe, and very nutritious. Anyone saying otherwise is spreading ignorance and should be ignored.
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Andy

All we are saying is give thals a chance.
myaki
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« Reply #32 on: November 02, 2015, 03:34:01 PM »

even patients with congestive heart failure can now be saved if it is caught early enough and the damage that has been done to their heart by iron, is now known to be reversible.
Where can i find further information about this topic? The reversibility part sounds really interesting. Thank you :-)
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Andy Battaglia
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Location: In my heart, Maldives

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Will thal rule you or will you rule thal?


« Reply #33 on: November 02, 2015, 08:48:55 PM »

myaki,

Congestive heart failure in thals is due entirely to iron overload in the heart. Removal of the iron by a strong chelation program will reverse the congestive heart failure, once the heart is clean of iron.

I have attached a file to this reply, Cardiac Function and Treatment, that talks in depth about the heart in thal major. This is a short pertinent excerpt.
Quote
8. Why Treatment of HF in TM Is Different
8.1 Introduction
Although the main aspects of the diagnosis and management
of HF are well known, the acute and chronic care of HF that
complicates TM differ in a number of important ways. First,
the age of the population being treated is much younger.165
Second, it is a toxic cardiomyopathy related to myocardial
iron accumulation, so that there is the important prospect of
complete resolution of ventricular dysfunction with treatments
directed at iron removal rather than directly at myocardial performance.

Third, there may be important comorbidities that
require recognition and specific treatment in their own right.
8.2 Reversibility
Iron cardiomyopathy is the most common and feared complication
of TM, but because it is caused by iron toxicity, it is
reversible.
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Andy

All we are saying is give thals a chance.
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