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Thalassemia Patients and Friends and thalpal
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36646 Posts in 3521 Topics by 2395 Members
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This is the new and improved
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Author Topic: EUMEDCONNECT2 video on thalassaemia‏  (Read 2003 times)
Manal
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« on: June 23, 2009, 10:32:17 pm »

In the conference of Syria, I was asked by my hematologist Professor El Beshlawy to make an interview for the EUMEDCONNECT2 video on thalassaemia research which is now available on http://www.eumedconnect2.net/server/show/nav.2179

 The video was recently premiered at the TNC2009 in Malaga  and it has been extremely well received by all who have seen it, including the European Commission.

 I know that it could sound a bit negative, but it was meant this way to show the negative side of thal in order to urge the audience (European Commission) to have thalassemia on their list. The other reason was also to encourge the networking between scientists all over the world.

So excuse me if it sounds a little harsh. Also excuse how i looked cause i was sooooo nervous. First time to speak in media . Everyone was interviewed for more than 30 minutes but all the video came in just 5 minutes.

You will see in the video too Professor El Beshlawy, she is just a great doctor who i respect too much. She is not only so much expierenced in this filed but also a ''human''  that feels so much for her patients and who has a very strong bond with them. May God always bless her.  She is the kind of a doctor who is always there for her patients and no matter how anxious we are or worried about anything concerning my son, we just come out of her clinic feeling very comfortable and having a lot of confidence. No words can describ how grateful i am to her

manal
 
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Andy
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« Reply #1 on: June 23, 2009, 10:58:44 pm »

Manal,

You look great in the video. Seeing you on video reminded me of the great talks we had in Singapore. I really like to see the spirit of collaboration that is bringing together doctors and researchers through the internet. It is a big reason why treatment is making such strides in countries where just a few years ago, treatment was just the very basics at best. Of course, we've known about the potential of the internet in this group for years and we have had a very real effect on the world of thalassemia.

The video can also be seen on youtube at http://www.youtube.com/watch?v=Wo81EWuS5wk
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Andy

All we are saying is give thals a chance.
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« Reply #2 on: June 23, 2009, 11:32:42 pm »

Manal
You look fantabulous in the video. You would make a good news correspondant.

maha
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Zaini
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« Reply #3 on: June 24, 2009, 12:15:48 am »

Manal,

You look great my friend  and ahmed too,i wish this video will make the impact it is supposed to make.Good Luck 

Zaini.
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Manal
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« Reply #4 on: June 24, 2009, 07:35:51 am »

Thank you Andy so much for your words. I too wish that one day we can meet again in person. Yo are a great person

Maha

Thanks dear, it was one of the most embarcing situations in my life. 


Zaini

Thanks dear,i hope the same too

manal
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« Reply #5 on: June 24, 2009, 09:21:06 am »

Manal,

you look great, no stress is shown on your face! Very much at ease with the camera!
Mabruk!

Lena.
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Manal
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« Reply #6 on: June 24, 2009, 07:08:49 pm »

Thanks you Lena so much

manal
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Sharmin
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« Reply #7 on: June 24, 2009, 10:21:47 pm »

Manal,

The video was great!  I think the message was delivered very well!  And you my friend are stunning!  You look beautiful and you speak so eloquently:)  I have already watched it several times!  I hope to meet you in person some day. 

I think that this video can have a great impact on many people,  I hope that all of our prayers will be answered and better management of thalassemia will be available someday very soon!

I am sooooo proud of you my friend, great job 

Sharmin
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Sharmin
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« Reply #8 on: June 24, 2009, 11:46:09 pm »

thanks alot for sharing.
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Manal
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« Reply #9 on: June 25, 2009, 05:53:46 am »

Sharmin

Thanks dear fr your nice words, I too wish i can see you one day


Suk838

You are more than welcome

manal
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mohamed
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« Reply #10 on: July 03, 2009, 01:48:41 am »

very very very nice vedio. you look great manal.
manal is an intelligent and very active person
her son is very lucky to have a mum like that
i am lucky too cz i know her
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Zaini
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« Reply #11 on: July 03, 2009, 03:27:56 am »

very very very nice vedio. you look great manal.
manal is an intelligent and very active person
her son is very lucky to have a mum like that
i am lucky too cz i know her

Couldn't agree more 

Zaini.
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Manal
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« Reply #12 on: July 04, 2009, 09:37:32 pm »

Mohamed and Zaini, thanks a lot for your compliments  I am the one who feels lucky getting to know you

manal
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