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Thalassemia Patients and Friends and thalpal © A. Battaglia 2019





55105 Posts in 5866 Topics by 6148 Members
Latest Member: Disead

This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: 2009 TAG Conference October 21-24, 2009  (Read 30882 times)
EMommy
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« Reply #15 on: September 29, 2009, 04:33:44 PM »

I am going to TRY to go for at least Saturday!  I hope to meet some of you if I make it!
Andy, are you going? 
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Blessings,
Rebecca
Mom to 4- Two Beta Thal Major (chosen)
Sharmin
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Little A


« Reply #16 on: September 29, 2009, 07:02:35 PM »

EMommy,

I hope to see you there as well, my husband and I will be there  

Sharmin
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Sharmin
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« Reply #17 on: September 30, 2009, 10:09:44 AM »

Sharmin,

and this goes for anyone attending the 2009 Tag Conference: just check out on Ferriprox- Exjade combination therapy. I think this is a very important issue. (though I am not sure if it is going to be on discussions, as ferriprox is not around in the USA...)

Lena.
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Sharmin
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Little A


« Reply #18 on: September 30, 2009, 11:00:57 AM »

Lena,

I'll definitely ask about exjade-ferriprox combination therapy  

BTW, your picture is beautiful!!

Sharmin
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Sharmin
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« Reply #19 on: September 30, 2009, 11:31:24 AM »


Thank you, Sharmin. You are very kind!

Lena.
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Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #20 on: September 30, 2009, 09:29:32 PM »

I finally registered.
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Andy

All we are saying is give thals a chance.
Manal
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« Reply #21 on: September 30, 2009, 09:58:32 PM »

Thanks Andy 

manal

 
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Andy Battaglia
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« Reply #22 on: September 30, 2009, 10:00:26 PM »

Now to find a flight.
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Andy

All we are saying is give thals a chance.
Manal
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« Reply #23 on: September 30, 2009, 10:23:07 PM »

Flight within the same city Is New York that big

manal
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Andy Battaglia
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« Reply #24 on: September 30, 2009, 11:02:21 PM »

New York is a state. New York City is about 360 miles away from where I live.
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Andy

All we are saying is give thals a chance.
Lena
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« Reply #25 on: September 30, 2009, 11:41:23 PM »


Are you going to attend all days, Andy?

Lena.
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Andy Battaglia
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« Reply #26 on: October 01, 2009, 02:09:53 AM »

I'll miss the opening night and speeches, but will be there Thursday through Saturday for the important stuff.
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Andy

All we are saying is give thals a chance.
nice friend
Thalassemia Major
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If I Can, Why Not You??... If I Can U TOO !!!...


« Reply #27 on: October 01, 2009, 04:11:18 AM »

Hi ya All ,
its good to hearr that many of thalpals are going to attend that conference ,... i hope will bring alot of more latest and interesting info to that conference ... i eagerly waiting for you  come back with alot of super usefull info and new studies, after attending that conference,  ... i hope there they will anounce the results of Desferal+exjade study, and yeah, i m expecting to hear sumthing abt S-DFO ( Starch Desferal ) too   .. so, m  waiting eagerly ..... thanx alot guys for working hard and to gathering info for us thals ...

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair
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Little A


« Reply #28 on: October 01, 2009, 09:34:37 AM »

  I am really excited that I will finally get to meet some of our members!!!!  Please pm me if you are going to be there - I would like to meet as many of you as possible!! 

Andy, I am so excited about actually meeting you in person as well!! 

We will be in NY on Tuesday through Sunday - and I'll be trying to take as many notes as possible! 

Sharmin
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Sharmin
Narendra
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« Reply #29 on: October 01, 2009, 12:17:51 PM »

Good to see a lot of folks getting together. I am glad Andy is going out of his way (he sure would have to adjust with folks taking care of his business while he is out) to make the trip to New York. Appreciate it Andy.

On another note, I am NOT promoting my friends business, but for those still looking for accommodation, I talked with one of my friend who owns a motel in NY City (Near JFK Airport) and is willing to give us a discount ($80 Single Bed and $100 Double Bed)

They provide a free shuttle from JFK Airport to the hotel and he mentions that there is a 30 minute commute (Bus and Train) to Manhattan (where the Event is). The hotel details can be found here.

http://www.hojo.com/HowardJohnson/control/Booking/property_info?propertyId=14939&brandInfo=HJ
Howard Johnson Inn Jamaica JFK Airport NY
153-95 Rockaway Boulevard
Jamaica, NY 11434 US

If anyone is interested, let me know and I will give you my friends information so that you can use my reference.
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