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Curing Thalassemia. Bone Marrow & Cord Blood Transplant
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Mohanish and his transplant
A message for all parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author
Topic: Mohanish and his transplant (Read 187759 times)
Narendra
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Austin, TX
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Posts: 461
Re: Mohanish and his transplant
«
Reply #150 on:
December 08, 2009, 11:13:33 PM »
Just talked with Madhavi to wish Mohanish a happy birthday from all of us. She has Thanked all for wishing.
Mohanish is doing fine. He is still in Isolation due to some infection found in the spleen. He is on antibiotics due to this. Mo's HB level is around 9.7. Other than that Madhavi mentioned things are going OK.
«
Last Edit: December 09, 2009, 04:34:28 PM by Narendra
»
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Manal
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Cairo,Egypt
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Posts: 3100
mother of thal intermedia child
Re: Mohanish and his transplant
«
Reply #151 on:
December 09, 2009, 12:14:59 AM »
Thanks Narendra for sharing the news
I wish Mo a speedy recovery
manal
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Zaini
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Karachi,Pakistan
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Posts: 3448
Life is too short to be perfect.
Re: Mohanish and his transplant
«
Reply #152 on:
December 09, 2009, 05:46:12 AM »
Thanks for the update Narendra, i texted here a couple of times but didn't get a reply so i was hoping that everything is well and she must be busy with Mo,glad to hear he is doing fine and hope that infection will go away soon.
Zaini.
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^*^Xaini^*^
Keep Smiling
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Faisalabad, Manchester of Pakistan.
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Posts: 153
Re: Mohanish and his transplant
«
Reply #153 on:
December 09, 2009, 06:23:10 AM »
May infection say Good-bye very soon
Abbas
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Prets
Junior Member
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Posts: 211
Re: Mohanish and his transplant
«
Reply #154 on:
December 09, 2009, 01:51:59 PM »
Hoping Mo feels better soon, good to hear about the BMT.
Prayers and Bless .. :-)
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Symptomatic Beta Thal Minor.
Madhavi
Mohanish....a divine blessing!
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Guangzhou,PRC
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Posts: 279
Re: Mohanish and his transplant
«
Reply #155 on:
December 10, 2009, 07:39:49 AM »
dear freinds
thanks to u all and ur prayers mohanish is doing fine now his wbc count is 5.16 today ,hb is 99,plt is 127 and rbc 3.83
his infection is also under control we had to do a pet scan last week since his crp level was higher that 5 (its c reacting protien in the body from which the docs know if there is any infection hidden inside the body )it was almost 15 , his his bacteria culture report showed no bacterial infection,also we had done the ct scan but could not find any thing .
so the doc advised the pet scan which was an expensive affair, after the pet scan they found some inflamation in the spleen the drs say its very minor one and they have started penicillin drug at a lower dosage level on the 8th after that his crp level as of today is is 4.8 which his good news and his parameters are also normal so i guess its just matter of days he will be discharged,
mo is back to his usual naughty side which makes me feel very very happy and elated with joy ,i and my family will be thank full to u all for all ur prayers ,thank u narendra for calling thanks zaini for ur updates to every one ,its just a miracle happened in my life and god had send this lovely angel in form of masumi to cure his brother ,i was so happy to know the result when dr li broke the news about 100% success engrafment of xx gene in his body ,i really believe miracles can happen if u are true to god and ur self ,mo is shifted form the isolation ward to the previous normal ward he was admitted
thanks once again to u all and will keep u posted from now on ,from my experience bmt is a difficult process but its worth giving a try to all parents who wants to go for their child, it was a very difficult decision for us also to do it for our son but then we were optimistic about it that nothing bad can happen to him and all will be well .we had our share of highs and lows in the hospital but all in all it was worth ,and he was treated with able hands of dr li and his team
hearfelt thanks to all u freinds from me and my family
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Love and luck to all...
Keep Smiling
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Faisalabad, Manchester of Pakistan.
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Posts: 153
Re: Mohanish and his transplant
«
Reply #156 on:
December 10, 2009, 09:03:42 AM »
its too good to hear that Mo is doing well.......
i agree that miracles do happen in this world.........
Take care of Mo.....
Abbas
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Prets
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Posts: 211
Re: Mohanish and his transplant
«
Reply #157 on:
December 10, 2009, 12:43:57 PM »
This is great news!
:-)
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Symptomatic Beta Thal Minor.
nice friend
Thalassemia Major
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Faisalabad, Pakistan.
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If I Can, Why Not You??... If I Can U TOO !!!...
Re: Mohanish and his transplant
«
Reply #158 on:
December 10, 2009, 03:12:07 PM »
Hi ya Manoj Mass,
its nice to hear that everything is fine y now n going fine ... i hope n wish that he will b cured 100% .. always praying for him .. may God bless him with all the luck n everything
..
Best REgards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Zaini
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Life is too short to be perfect.
Re: Mohanish and his transplant
«
Reply #159 on:
December 10, 2009, 05:16:56 PM »
Madhavi,
I am really really glad to hear about Mo,can't express it in words,
Zaini.
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^*^Xaini^*^
Manal
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mother of thal intermedia child
Re: Mohanish and his transplant
«
Reply #160 on:
December 10, 2009, 07:19:15 PM »
Madhavi,
You can not imagine how happy i am. Though we were all encourging you from the time you entered the hospital, i was so afraid too and anxious cause Mo is like my son and usually BMT results could not be predictable. I used to wait for your posts and sometimes afraid to read them lest i find anything wrong.
But now, thanks God the BMT has succeeded and Mo has a new life to begin and you too as his parents won't have anything to worry inshallah. I am so happy for you and for your family and mostly for Mo, he is a fighter. Sincere congratulations from the heart to you my friend and to your family
manal
«
Last Edit: December 10, 2009, 10:51:55 PM by Manal
»
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Madhavi
Mohanish....a divine blessing!
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Guangzhou,PRC
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Posts: 279
Re: Mohanish and his transplant
«
Reply #161 on:
December 11, 2009, 02:26:49 AM »
thanks manal ,zaini umair,abbas ,preety,narendra and all our freind thank u so much for ur r prayers and encouraging words we really appreciate it ,i and my my wife are so much thank full to u angels out there
we used to tell mohanish about our extented family (u all ) about how much they care for u and love u , and iam sure he would want to meet u all,
the docs have still not stopped the antibiotic which they will in a day or 2 after monitering his crp level ,
after starting penicillin his crp level was down from 8.7 to 4.8 yesterday ,will wait for todays results
mohanish is so much longing to go home and meet his littel sister masumi ,also give me a tight hug...
but i told him to be a little more patient till the docs make him more stronger,like bat man and spider man
yesterday i gave him one of his favourite toy batman and his mobike, he was so much happy
another bigger bat man toy awaits him at home i i told him cause the drs wont allow too many of them
thanks freinds once again will keep u posted
manoj
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Love and luck to all...
Madhavi
Mohanish....a divine blessing!
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Guangzhou,PRC
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Posts: 279
Re: Mohanish and his transplant
«
Reply #162 on:
December 13, 2009, 04:02:56 AM »
hi freinds
mohanish is doing fine
docs have atsrted antivirals since 11th dec will continue for 7 days and after that they will moniter his condition and discharge him
penicillin they will continue till tomorrow and then discontinue since his crp level is 3.8 now which is at the lower level
mohanish has given his love to all
bye for now
manoj
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Love and luck to all...
Keep Smiling
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Faisalabad, Manchester of Pakistan.
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Posts: 153
Re: Mohanish and his transplant
«
Reply #163 on:
December 13, 2009, 05:22:09 AM »
Glad to hear good news that Mo is fine!
Abbas
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Andy Battaglia
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Will thal rule you or will you rule thal?
Re: Mohanish and his transplant
«
Reply #164 on:
December 13, 2009, 05:35:53 AM »
It's great to see things progressing nicely. Looking forward to reading that he's going home.
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Andy
All we are saying is give thals a chance.
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