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55424 Posts in 5933 Topics by 6263 Members
Latest Member: anouj

A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Mohanish and his transplant  (Read 187754 times)
Madhavi
Mohanish....a divine blessing!
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Location: Guangzhou,PRC

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« Reply #180 on: December 18, 2009, 07:37:31 AM »
Mohanish is home today....
It was a sight to see Masumi hug him again and again and  not leaving his side at all.....
Will post the pics soon and details later....
Madhavi
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Love and luck to all...
Lena
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« Reply #181 on: December 18, 2009, 09:52:41 AM »
Madhavi,


welcome Mohanish home on my account and give him a big hug 
I wish everything will continue to be as perfect as it already is.

Lena.
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samyuktha
We will Emerge as Winners in Life.
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Location: Chennai,India

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We will overcome all the hurdles in Life.
« Reply #182 on: December 18, 2009, 02:15:23 PM »
Iam Very happy  for Mohanish,His parents and his sister Masumi.
God bless this lovely family for ever.
Hi Mohanish...our best wishes are always there for you  .

Take care,
Viji
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S.Vijayalakshmi
Zaini
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Life is too short to be perfect.
« Reply #183 on: December 18, 2009, 05:45:43 PM »
Madhavi,

Please give him a big smooch   I hope every thing will be ok ,hope to catch you soon .

                                   
                                           


Zaini.
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^*^Xaini^*^
Manal
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mother of thal intermedia child
« Reply #184 on: December 18, 2009, 10:34:00 PM »
Congratulations Mo, love you soooooooo much sweetie
 
manal
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Keep Smiling
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Location: Faisalabad, Manchester of Pakistan.

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Posts: 153
« Reply #185 on: December 19, 2009, 03:51:15 PM »
Mo, enjoy home sweet home.........
good luck,
Abbas
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nice friend
Thalassemia Major
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If I Can, Why Not You??... If I Can U TOO !!!...
« Reply #186 on: December 19, 2009, 07:42:59 PM »
heyyyyyyyyyyyyyyy,.................... WELCOME BACK HOME !!!!!!


Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Sharmin
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Little A
« Reply #187 on: December 19, 2009, 10:55:37 PM »
Mo,


Sharmin
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Sharmin
nice friend
Thalassemia Major
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Location: Faisalabad, Pakistan.

Gender: Male
Posts: 2834


If I Can, Why Not You??... If I Can U TOO !!!...
« Reply #188 on: December 20, 2009, 11:19:19 AM »
Logged
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Madhavi
Mohanish....a divine blessing!
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Location: Guangzhou,PRC

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Posts: 279
« Reply #189 on: December 22, 2009, 05:09:55 AM »
Have put up some pictures....
Will put up those with the doctors...they need editing.....too large to be uploaded...
Madhavi
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Love and luck to all...
Fadd
Fadd
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« Reply #190 on: December 22, 2009, 05:06:57 PM »
WELCOME BACK HOMEEEE!! Mohanish

Fouad
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Fadd
Sharmin
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Little A
« Reply #191 on: December 22, 2009, 06:24:00 PM »
Mo looks great!  May he continue to gain strength so that you can leave all of this behind. 

Sharmin
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Sharmin
Madhavi
Mohanish....a divine blessing!
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« Reply #192 on: December 23, 2009, 04:14:15 AM »
A little caught up with getting things settled at home.....plan to write in at length to you all....Sorry for that delay!
Till then thanks for your love and wishes.....
Madhavi
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Love and luck to all...
Madhavi
Mohanish....a divine blessing!
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« Reply #193 on: December 24, 2009, 06:16:52 AM »
Right now Mohanish is on a couple of medicines....thought you all might want to know....
1)Ciclosporin-which is for immunosuppression and he will be on it for a year...on a tapering dose.
2)Ursodeoxycholic acid-which will aid in the liver functions and he will be on it for 6 months.
3)Sulfomethoxazole-an antibiotic which he has to take thrice a week for 3 months.
4)Amlodepine-anti hypertensive that he has to take till his blood pressure is back to normal.
5)Calcium and Vit D
He has to go for weekly blood tests and to meet the doctor for 3 months, then it becomes a monthly visit.His chromosomal test will be again next week and then after 3 months again.
At home, he is should be isolated as far as possible.There are no dietary restrictions as such but no raw foods. He can start going out gradually after 3 months, but avoid crowded places and those with many kids....he can begin schooling only after a year.
And another thing, he may need to be on desferal for a while again after a month or so. This is because his ferritin pre transplant was around 1500...so till it is normalised he will need to be chelated.
It has been a little hectic since the time he is home since we are still establishing a routine and so the delay in my mails....
Take care all of you and your love is all over our home and hearts....
Madhavi
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Love and luck to all...
Lena
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Posts: 581
« Reply #194 on: December 24, 2009, 07:08:46 AM »

Madhavi,


Noone can claim that a BMT is an easy thing. It seems you have to go on struggling for a while, but  the main battle is behind you now. I hope everything is under control. Mo is always in my mind.

All the best,
Lena.
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