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Author Topic: Mohanish and his transplant  (Read 175472 times)
Sharmin
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Little A


« Reply #210 on: January 07, 2010, 09:32:10 AM »

Madhavi,

I am so glad to hear that Mo has had 100% engraftment.  Transplant was definitely the best choice for him.  I hope that his hg increases with time.  Please let us know the results of the coombs test. 

Sending our best always,

Sharmin
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Sharmin
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« Reply #211 on: January 07, 2010, 10:20:39 AM »

Great to hear that genetic / chromosomal analysis has shown 100% engraftment
Wishing little Mo very best for the Coombs test next week.

Fouad
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« Reply #212 on: January 08, 2010, 02:14:54 PM »

Glad to hear this good news.. may God bless Mo with alll of his blessings ..

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair
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« Reply #213 on: January 11, 2010, 12:43:47 PM »

Madhavi,

Great to hear about 100% engraftment. Very happy for little Mo and your enitre family.....May health and happiness be with you always....
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« Reply #214 on: January 12, 2010, 11:28:25 AM »

Congratulations........

Wishing happy and healthy life for all of you.
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Regards.
Dori
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« Reply #215 on: January 12, 2010, 12:02:07 PM »

We got the result for the genetic/chromosomal analysis this week and it shows 100% engraftment and all cells are from the new bone marrow.....His Hb is a little low-10.8 and so we will do a Coombs test next week.

Congratulations!!!!!

Since I follow more humans who have had a transplant I wanted to ask on how many meds little Mo is. And of they are IV or oral. My apologies for all those questions.
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Madhavi
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« Reply #216 on: January 12, 2010, 11:08:44 PM »

Dear all...............
We got the Coombs test result and it shows no problem.
The low Hb level is probably due to the fact that his donor Masumi is also a minor. This week the Hb is 10.9 (last week it was 10.8).
Dori, about the medicines....he is on 4 oral medicines at home and he will be given iv antiviral therapy on and off-the first time next week-ganciclovir twice in that day on out patient basis. At home he is on immunosuppresant(ciclosporin-the dose of which has been tapered since today and he will be on it for a year in all),anti hypertensive (amlodepin-till the bp is normalised), sulfomethoxazole (to prevent infection and he has to take it till 6 months of bmt) and ursodexycholic acid (for the liver which he will be on till 3 months of bmt)...Other than that there is calcium supplement but that was on previously as well.....
His serum ferritin will be checked after 3 months of bmt and then he will be chelated till the levels are normal.
If there is anything else anyone wants to ask, please feel free......I wish I had someone to ask such questions before went ahead for it.....especially from someone who has experienced it! No problems about answering them to the best of my ability.....
Love,
Madhavi
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Love and luck to all...
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« Reply #217 on: January 17, 2010, 06:49:36 AM »

Hi Madhavi ,
m not good at medical kind of stuff, ...  i hope Mo is doing well .. wish him best of luck ..

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair
Madhavi
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« Reply #218 on: January 26, 2010, 10:24:25 PM »

Hey all...
Happy to be sharing this with you....
29th of this month is 3 months to the day of transplant....Now on Mohanish is only on 2 medicines! No more medication for his liver and blood pressure!
The doctor said that we can take him down for a walk when there are few people around...for about 10-15 mins....so Mo is thrilled about that!Less bondage!
Time has flown by and all is going well thanks to your love and supportl...
Madhavi
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Love and luck to all...
Lena
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« Reply #219 on: January 26, 2010, 11:22:06 PM »



Great news, Madhavi!

Time really flies and I am sure this 15 minutes walk will make Mohanish feel like he discovers life again!
I can also imagine your joy. Best wishes for your next steps to this extraordinary journey.

Lena.
 
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ginacappo
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« Reply #220 on: January 26, 2010, 11:31:29 PM »

I wish Mo, you and your family the best. I am so happy to hear all went well. I haven't been commenting but I have been following his transplant. I am so excited for you as a thal patient I understand what this means for MO. My prayers will be with you Please Please Keep posting not all respond but we are reading........

Gina
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Zaini
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« Reply #221 on: January 27, 2010, 01:37:21 AM »

That's wonderful,time does fly fast,and everything becomes a memory,like thalassemia will be to Mo.

Zaini.
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samyuktha
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« Reply #222 on: January 27, 2010, 06:14:16 AM »

Dear Madhavi,

I am happy for you,Mohanish ,Masumi and your husband.God bless you dear friend.As a mother you would have undergone hardships regarding Mohanish's Treatment.Now the fruit of your hard ships is in your hand with Mohanish completely cured.You have Mohanish as a thalassemia free child.Take good care of both your kids and give them all your love.Enjoy your motherhood happily and peacefully.

Take care,
Viji
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S.Vijayalakshmi
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« Reply #223 on: January 27, 2010, 10:06:39 AM »

Thats' great to hear....
Love for little Mo 

Fouad
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Madhavi
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« Reply #224 on: January 29, 2010, 01:14:52 AM »

Thank you all guys......
Goosebumps and teary eyed in reply!
Madhavi
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Love and luck to all...
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