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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019

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Author Topic: Nutrion survey for thals from USA (through Cooley's Foundation and NIH)  (Read 4263 times)
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Location: Earth

Posts: 1443

« on: July 29, 2010, 04:27:12 AM »

Here is the link:

Here is the info:
I am gathering information for a presentation to make at an upcoming panel on nutrition among people with thalassemia.  This panel is part of a special NIH-sponsored workshop.

It would help me tremendously if you could respond to a short survey about your experiences with vitamins, supplements and other nutritional issues.
The survey should only take 5-10 minutes to complete, and getting feedback is important to being able to present a clear picture of nutrition in the thalassemia community in the U.S..
The survey can be accessed at:
Please complete the survey by August 4.
Thank you very much for your time and participation.
Gina Cioffi, Esq.
National Executive Director
Cooley's Anemia Foundation

I could not find of it was illegal to share this info...based on that I decided to post it here.

I cannot participate since I am not from USA but I know others can.

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Location: Birmingham, AL USA

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Posts: 156

« Reply #1 on: July 29, 2010, 10:13:21 AM »

I took it. It was painless. 
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