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Thalassemia Patients and Friends and thalpal
© A. Battaglia 2010


36555 Posts in 3517 Topics by 2392 Members
Latest Member: tuki

This is the new and improved
Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: Stem cells Transplant in Thalassemia  (Read 262 times)
Nangial
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« on: July 31, 2010, 04:48:56 pm »
Can any budy help me on info regarding this (i've heard) successful stem cell transplant programme that has started since the past 6 months in centres in america..i kno only 1 in Boston...its under the boston university...but i cant find any thing on it...does any budy kno any thing about it...?
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Bostonian_04
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« Reply #1 on: August 05, 2010, 01:58:08 pm »
Boston Children's and other Thal center of Excellene in US are enrolling patients for URTH (, Unrelated BMT with reduced intensity for Thal) . This is a 1st of a kind joint multi center study.  We met with the Doctor who is leading the study at Children's. After talking to her, we felt, there is still too much risk and we should wait for the study to complete. We were also told sickle cell also has similar study on-going.
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Quis custodiet ipsos custodes ? - Plato
Rehman
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« Reply #2 on: August 06, 2010, 09:35:31 am »
o nangyal pakherona welcome to thalpal
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I AM  SUFFERING FROM THALASSEMIA  MAJOR.
Nangial
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« Reply #3 on: August 06, 2010, 01:33:40 pm »
thanx bostanian....for helpin out :D...my doctor told me to wait for 6 months....what do u think?..is 6 months enough?
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Nangial
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« Reply #4 on: August 06, 2010, 01:35:13 pm »
Manana Rehman....
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Rehman
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« Reply #5 on: August 07, 2010, 06:11:27 am »
U welcom alaka delta pe de web site ke yu Faida ma ow Tata shta pake.
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I AM  SUFFERING FROM THALASSEMIA  MAJOR.
nice friend
Thalassemia Major
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Gimme Another Chance, I wanna Grow-up Once Again !
« Reply #6 on: August 10, 2010, 12:12:47 am »
Hi Nangiyal,
Pakhair ra ghalay to the site ( i hope i said it right in pushto )  .. i hope you'll find this forum really helpfull keep in-touch and keep posting .. share wat tu want to share  with us and ask wat u want to know about  ...

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Rehman
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« Reply #7 on: August 10, 2010, 06:46:25 am »
ahahahhah Umair Khan  nice pashto and Nangyal is also pashton he is from peshawar and he is my friend . he is new in forum .
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I AM  SUFFERING FROM THALASSEMIA  MAJOR.
nice friend
Thalassemia Major
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Gimme Another Chance, I wanna Grow-up Once Again !
« Reply #8 on: August 10, 2010, 11:32:12 am »
hahaha... Thanx for the compliment, Man ..  

its nice to know more about him .. and to know that you're are not only getting knoawledge through this forum but also spreading the words of knowledge with others and encouragin them to join and get knowing abt thalassemia and take care of their sellves in the light of that knowledge ... keep it up Man ..Good Job !! ...   ....

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Rehman
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« Reply #9 on: August 11, 2010, 12:56:06 pm »
thanks Dud .
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I AM  SUFFERING FROM THALASSEMIA  MAJOR.
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