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Thalassemia Patients and Friends and thalpal A. Battaglia 2013





48974 Posts in 5113 Topics by 4624 Members
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A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Bone Deformation  (Read 3648 times)
Manal
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« on: August 25, 2006, 07:20:59 PM »

Dear all

Can we predict bone deformation before it happens?? I mean if their is facial deformation for example, does the face hurts or bruses start to appear ?? Does it happen gradually or suddenly?

Does transfusion repair what is being deformed or it just prevent it?Huh???

Thanks

Manal
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Poirot
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« Reply #1 on: August 26, 2006, 01:41:17 AM »

You need to keep a watch on whether the bone marrow is being overworked.  This is what makes the bones expand and brittle, and potentially causes deformation too. The Reticulocyte count is a good indicator for this.

In any case, you may want to consider calcium supplements, right from the start.

Poirot
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J ساجد
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« Reply #2 on: August 26, 2006, 02:30:47 AM »

Well, I guess the deformation of the teeth can be fixed by wearing braces?!?
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اَسّلامُ علیکم Peace be Upon you
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Manal
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mother of thal intermedia child


« Reply #3 on: August 26, 2006, 03:27:03 PM »

Thanks Sajid.

Poirot,  Do you know at what percentage of  the Ret. count the bones start to deform???

Last month when my son HB was 6.4 his Ret count was 9 then after one week it was 3.  After one month when his HB dropped to 5.5, his ret count became 6.9

I know all readings are high than the normal range because of the thal, but what is the highest reading after which you expect deformation.Huh??

By the way, when we knew about the thal the doctor gave him calcuim, vitamin D and B12 to be taken forever

Manal
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