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Author Topic: Will Gene Therapy be the Cure for Thalassemia?  (Read 20056 times)
Sharmin
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Little A


« Reply #15 on: January 10, 2009, 02:08:09 AM »

Poirot, I will send you a PM with a contact. 

Sharmin
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Sharmin
Dori
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« Reply #16 on: January 26, 2009, 01:46:14 PM »

Thalassemia Gene Therapy Forum Scheduled for Feb. 5

January 12, 2009 -  Memorial-Sloan Kettering Cancer Center will present a forum, "Treating Thalassemia: From Transfusion to Engineered Stem Cells," on February 5, 2009, from 2:00-5:30 p.m.  This symposium is intended for physicians, researchers, patients and patient advocates.

The forum will be divided into two sections.  The first half, from 2:00-3:30, will focus on"Current Therapies for Beta-Thalassemia."  The second half, from 4:00-5:30, will address "The Promise of Stem Cell Engineering."  A pdf of the complete program can be downloaded by clicking here.

The forum will include information on an upcoming US trial of globin gene transfer for thalassemia.

For additional information, please call (212) 639-6190.
http://www.cooleysanemia.org/index.php?option=com_content&view=article&id=83:thalassemia-gene-therapy-forum-scheduled-for-feb-5&catid=1:latest-news
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Andy Battaglia
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Will thal rule you or will you rule thal?


« Reply #17 on: January 26, 2009, 01:50:05 PM »

I'll be there.
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Andy

All we are saying is give thals a chance.
Dori
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« Reply #18 on: January 26, 2009, 02:01:19 PM »

I'll be there.

 
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baal
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« Reply #19 on: January 26, 2009, 04:09:49 PM »

good job andy

we count on u....
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Manal
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« Reply #20 on: January 27, 2009, 07:52:37 PM »

yes, Andy the titles of  the lectures are so interesting, can't wait to seewhat they will say especially doctor Sadaline

manal
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Sharmin
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« Reply #21 on: January 27, 2009, 11:31:38 PM »

Andy,

I am so glad to hear that you will be there for sure!

Sharmin
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Sharmin
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Little A


« Reply #22 on: January 28, 2009, 03:38:36 PM »

As Pat has said, while we wait for gene therapy to become a reality, we all have a job to do. 

Thal patients need to take very very good care of themselves so that they can benefit from the treatment.  Supplements and chelation are the key to wellness for thals.  Low iron levels are essential before any treatment is applied to treating/curing thalassemia. 

We also need to encourage those around us to get their iron levels down, as Umair has demonstrated us it is very possible, so let's encourage people around us to chelate chelate!!

Sharmin
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Sharmin
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« Reply #23 on: January 28, 2009, 09:13:15 PM »

 

Zaini.
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« Reply #24 on: January 29, 2009, 02:06:21 PM »

Sharmin, I am still not a very brave girl with taking suplements 
But I know that you speak the truth. 
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Sharmin
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Little A


« Reply #25 on: January 29, 2009, 08:34:53 PM »

Dore, don't worry we are here to support you

Andy,  I am very excited about the announcement and the conference next week.  I am even more excited to know that you will be there for us - thank you Andy.

Sharmin
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Sharmin
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« Reply #26 on: March 21, 2009, 04:35:23 AM »

Poirot, I will send you a PM with a contact. 

Sharmin

I got your PM, Sharmin, and I msged the guy, but got no response whatsoever.

Looks like his funding is tied up.

Cheers
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