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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





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Author Topic: Start decreasing Fe  (Read 74298 times)
Dharmesh
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« on: September 05, 2012, 02:48:04 PM »

Hi Dear Andybro,

My
S.Ferritin 10048 V/s 11452

Chelation Plan
4 Asunra in split dosage &
2 Desferal in night for 12 hours daily without fail.

Taken DESFERAL IV On Tx days.
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Narendra
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« Reply #1 on: September 05, 2012, 05:01:45 PM »

That's the way to go. This is the most important step for you to reduce the ferritin. Only you can control what you do. There are folks here who have done aggressive chelation and have got good results. Everything will fall in place once your levels are in control.
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Andy Battaglia
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« Reply #2 on: September 05, 2012, 06:38:11 PM »

It's good to see some positive results. Combination works best. It takes dedication and total compliance, but it's worth it.
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Pratik
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« Reply #3 on: September 06, 2012, 05:41:53 AM »

Asunra is also decreasing ferritin constantly for me currently, every time (every 42 days or so) by 250-400 when I was taking 1200. I've started 1600 since 20 days or so and hence I will see where I stand at during the next transfusion, after 16 days or so.

Great to see that Dharmesh.

-P.
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Dharmesh
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« Reply #4 on: September 06, 2012, 01:58:52 PM »

Yes Dear Andy,
It's really good to see the Combo Effect, i was really in need of some good news.
Actually, i was unaware about DFX+DFO combo. before some months. As i read at THALPAL that since 2010 this combo is accepted and working i might have started early.
But it is better late than never.

@Dear Narendra,
Thanks for the words. I also want to achieve what has been achieved by others on this part.

@ Dear Pratik,
Thanks.
Your Fe is decreasing is good news but i think that it's going down slowly.
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Pratik
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« Reply #5 on: September 07, 2012, 12:46:47 AM »

Yes Dear Andy,
It's really good to see the Combo Effect, i was really in need of some good news.
Actually, i was unaware about DFX+DFO combo. before some months. As i read at THALPAL that since 2010 this combo is accepted and working i might have started early.
But it is better late than never.

@Dear Narendra,
Thanks for the words. I also want to achieve what has been achieved by others on this part.

@ Dear Pratik,
Thanks.
Your Fe is decreasing is good news but i think that it's going down slowly.

Slow and steady wins the race.   
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Dharmesh
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« Reply #6 on: September 26, 2012, 02:42:13 AM »

Hello to All,

I switched over to Defrijet (Deferasirox)  from yesterday from Asunra.
As i am on Asunra + Desferal Combo. of the same co. Novartis.
Does it make any difference or any side effects due to Defrijet + Desferal Combo, as Defrijet is made by another company(Sun Pharma, India).
I am advised by doc. not to take both these chelator (Defrijet and Desferal) simultaneously on the same day, but have to take both on alternate day.

Has anybody tried this combo? on the same day? simultaneously?

Dear Andy , any suggestion?
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Dharmesh
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« Reply #7 on: October 03, 2012, 01:26:30 PM »

If my S.Ferritin get normal, What kind of the impact can be anticipated on Heamoglobin Level and Spleen Size?

Can I expect any reduction in Tx requirements and improvement in Heamoglobin?

 Huh? Huh?
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Narendra
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« Reply #8 on: October 04, 2012, 12:35:55 PM »

I am not an expert but with Ferritin levels decreasing, anyone will have a better life. There will be less Iron in the body and the damage it can do is removed from the body.

I think the spleen size depends on the HB levels. If a person has a very low HB, the spleen is enlarged (as is the case with many thal (Intermedias) who don't transfuse regularly.
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Dharmesh
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« Reply #9 on: October 04, 2012, 01:30:06 PM »

Actually my requirement is increasing since last many years gradually from 2 units a month  to 3 units and now more than 4 units.
It doesn't make any difference to hb level if i transfuse 1 unit every week or 2 unit in 2 days one by one in every 2 weeks.
So i try to improve hb by transfusing more units in a month but it didn't help
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Dharmesh
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« Reply #10 on: October 17, 2012, 03:33:53 AM »

Latest Report of S.Ferrtin dtd 15.10.2012

S.Ferrtin :

6454 Vs 10048
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Pratik
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« Reply #11 on: October 17, 2012, 08:52:55 AM »

Congrats Dharmesh, that's awesome.

How many hours a day are you on Desferal? Or do you think defrijet is more helpful than Exjade?

-P.
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Dharmesh
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« Reply #12 on: October 17, 2012, 12:37:20 PM »

Dear Pratik,
Thanks.
Till last week desferal for 11 hours and 2 vials daily with some bunks.

Now. desferal for 14 to 15 hours and 3 vials but for 5 days a week.

Both are the same drugs but it is too short time m on defrajit to comment.
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« Reply #13 on: October 17, 2012, 12:39:51 PM »

Way to go Dharmesh...Really glad to see you are taking control of your health....Please continue to update us on your journey to get healthier...
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Dharmesh
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« Reply #14 on: October 17, 2012, 12:43:17 PM »

Dharmesh,
 

Dear All,
I swear i haven't given bribe to lab technician for lower reporting

Hi hi hii hi
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