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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





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This is Thalassemia Patients and Friends,
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Author Topic: Start decreasing Fe  (Read 72049 times)
Dharmesh
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« Reply #15 on: October 17, 2012, 12:45:23 PM »

Hey Andy,
I got NATURAL Vitamin E 400 IU Mix tochopherol from GNC-India's Indian website.

Thanks

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Andy Battaglia
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« Reply #16 on: October 17, 2012, 07:01:46 PM »

    

Nothing will encourage you more than seeing results like this. Keep up the good work. I am quite pleased.
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« Reply #17 on: February 21, 2013, 02:03:12 AM »

Hello Dear Andy, P and all Friends,

You will be happy to know that it is another reduction in Fe level

Fe done on 18.02.2013 comes to 5454 Vs 7590

Chelation regime

2000 mg Asunra and
3-4 vials Desferal for 12-14 hours 75 vials, 500mg each in a month


thanks for the support friendss
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« Reply #18 on: February 21, 2013, 04:26:57 AM »

Hello Dear Andy, P and all Friends,

You will be happy to know that it is another reduction in Fe level

Fe done on 18.02.2013 comes to 5454 Vs 7590

Chelation regime

2000 mg Asunra and
3-4 vials Desferal for 12-14 hours 75 vials, 500mg each in a month


thanks for the support friendss
Great, congrats! 
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Andy Battaglia
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« Reply #19 on: February 21, 2013, 09:02:24 AM »

Good work! You are saving your own life and will find it gets easier and easier as the iron drops.
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« Reply #20 on: May 25, 2013, 01:55:21 AM »

Hi,

Latest Fe Reports...5350
Last report ...5454
  

No significant reduction in Fe... inspite of increase in dosage
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Andy Battaglia
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« Reply #21 on: May 25, 2013, 12:51:15 PM »

Stay with your program and keep confidence that it is working. It takes 17 months just to remove half the iron from your heart at full chelation. You have made real progress. Don't be disappointed by ferritin tests. Have you had a heart T2*?
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« Reply #22 on: May 26, 2013, 01:36:57 AM »

Ya.
Definitely i am feeling better.

My T2* MRI done in June last year.

Cardiac T2* Score is 7.2

Liver T2* Score is 370

I am planning for splenectomy due to heavy blood consumption 4 units each month approx 1000 to 1200 ml
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« Reply #23 on: August 26, 2013, 02:10:11 AM »

Hello Andy Bro,

I have Re-started my chelation with Defrijet 500 from this Friday

In split dosage with 20mg/kg

i will increase the dosage to 30mg/kg after 2 weeks.

Also want to Re-start desferal soon

Hope now my Fe will start scooba diving 

I took bt after 45 days of surgery , pre bt was 7.6 gm/dl
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Pratik
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« Reply #24 on: September 02, 2013, 12:07:21 AM »

Hello Andy Bro,

I have Re-started my chelation with Defrijet 500 from this Friday

In split dosage with 20mg/kg

i will increase the dosage to 30mg/kg after 2 weeks.

Also want to Re-start desferal soon

Hope now my Fe will start scooba diving 

I took bt after 45 days of surgery , pre bt was 7.6 gm/dl
I hope you are feeling well D. We both will get our Fe rigorously down now! 

All the best.

-P.
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« Reply #25 on: September 06, 2013, 03:08:36 AM »

Hello,

I have raised the dosage of defrijet to 30mg/kg from this 3rd.

I will add some desferal after checking CBC, LFT, RFT in next week.

Also , want to start Ecosprin 75mg but thinking that it may hurt the healing so undecided for a re-start.

Any suggestion , Andybro?

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Andy Battaglia
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« Reply #26 on: September 06, 2013, 09:36:59 PM »

Ecosprin is an Nsaid drug, and you have to be cautious combining Nsaids with deferasirox, because it increases the possibility of stomach bleeding.
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« Reply #27 on: September 07, 2013, 01:48:53 AM »

Andy,
Then what precautions to be taken?

As my platelet is 12.4Lakhs how to dealt with it?

The healing process after splenectomy is still going on and it will take more several months

Please guide
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« Reply #28 on: September 07, 2013, 01:53:59 AM »

Ecosprin is an Nsaid drug, and you have to be cautious combining Nsaids with deferasirox, because it increases the possibility of stomach bleeding.
Woah.

I've took sometimes in past. Just few times when I thought my heart was going weird LOL.

Is it a problem (just to take a note in future for my reference) if we time couple of hours the interval between defrasirox and ecosprin?

Best,

-P.
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« Reply #29 on: September 07, 2013, 09:38:57 AM »

I would suggest using these Nsaids in moderation only. If there is any indication that Hb is dropping faster than normal, Asunra should be stopped and the patient examined for internal bleeding.

It takes some time after splenectomy for platelets to drop. Make sure you're taking vitamin E to help prevent clotting. The level will normally continue to drop and eventually reach the normal range.
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Andy

All we are saying is give thals a chance.
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