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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





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Author Topic: Start decreasing Fe  (Read 76461 times)
Dharmesh
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« Reply #75 on: February 16, 2015, 01:47:42 AM »

Dear Andy,
It means Hydrea not working? even i am willing to discontinue it now
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Start listening your body, it always gives signs
Andy Battaglia
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« Reply #76 on: February 17, 2015, 09:41:54 AM »

How long have you been taking hydroxyurea, Dharmesh?
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #77 on: February 18, 2015, 03:42:55 AM »

Dear Andy,

It's total 11 months, i started in March 14 March 2014 with low dosage aprox 10mg/kg. And since last 2 months i am on full dosage 20mg/kg.
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Dharmesh
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« Reply #78 on: February 22, 2015, 07:47:43 AM »

Dear Andy,
Any suggestion?
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Andy Battaglia
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« Reply #79 on: February 23, 2015, 09:49:33 AM »

I don't see any evidence that it is helping. By 11 months, you should have seen some increase in Hb level.
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #80 on: February 25, 2015, 09:36:29 AM »

Dear Andy,
I have a point in my mind.
Is MCV a point to consider? My MCV level is remaining in normal range in spite of very low hb upto 5.6gms%.
However hb is not increasing.
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Andy Battaglia
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« Reply #81 on: February 26, 2015, 09:10:20 AM »

How often are you transfusing?
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #82 on: February 27, 2015, 11:32:39 PM »

Dear Andy,
The average bt duration is 3 weeks with hydrea.
It was 2 weeks before hydrea
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« Reply #83 on: March 04, 2015, 06:57:55 AM »

Dear Andy,
CBC report on Dt27.02.2015 shows Normal MCV level 84.95 cu.micron (normal range 82-92) with Hb 5.7gms% only.
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Andy Battaglia
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« Reply #84 on: March 04, 2015, 09:05:58 AM »

Dharmesh,

A CBC in a transfusing patient is not of much value, as it reflects the state of the transfused blood. MCV etc will usually show normal when regular transfusions are taken.

If your transfusion frequency has decreased with hydroxyurea, then continue it for a while to see if there is anymore progress. Make sure you take wheatgrass with it and also add magnesium and L-carnitine if you have not already done so.
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #85 on: March 05, 2015, 01:31:07 AM »

Dear Andy,

I will try to get Hemoglobin electrophoresis done in addition to CBC. I know it should have been done before starting the therapy but Dr hadn't advised and i didn't make it done.

In addition , i am taking Wheatgrass Tablets daily 15 tabs of 500 mg each (Lol its huge dosage) and have already started L-Carnitine and Magnasium.
And yes my transfusion frequency has decreased to 3 weeks from 2 weeks but no increase in Hb seen.

However, Dr R has prescribed me Thalidomide in addition to Hydrea
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Dharmesh
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« Reply #86 on: June 09, 2015, 07:03:29 AM »

Hi,

My Latest S. Ferritin level comes to  606 ng/ml
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Andy Battaglia
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« Reply #87 on: June 09, 2015, 09:40:12 AM »

Fantastic, buddy! Hard work has its rewards. 
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Andy

All we are saying is give thals a chance.
Himanshu Kumar
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Aditi


« Reply #88 on: June 09, 2015, 09:46:13 AM »

Really good to hear. Have your hb and transfusion period improved too?
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Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
Lokkhi maa
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« Reply #89 on: June 09, 2015, 09:38:39 PM »


606 !!! Congrats HANUMANT 
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Lokkhi Maa
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