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Author Topic: Start decreasing Fe  (Read 72047 times)
Sharmin
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Little A


« Reply #90 on: June 09, 2015, 11:04:20 PM »

So so happy to hear!  It's takes constant dedication and perseverance but it is so worth the benefits it will have on your health!  Keep up the great work!
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Dharmesh
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« Reply #91 on: June 10, 2015, 01:26:24 AM »

Again, I am skeptical on this result. Your ferritin is greatly lowered and the liver score improved. It makes no sense that the heart would get worse. How do you feel physically? Do you feel tired and weak? Does walking stairs tax you?

Dear Andy,

I found out the answer as to why my Cardiac T2*Score get worsen?

Below is the answer from guideline issued by TIF recently

"Iron overload
In many patients the size and iron load of the spleen approaches that of the liver, highlighting
the importance of the spleen as a major organ of iron storage in TM. Splenectomy causes
major changes in the ferrikinetic profile of iron overload and toxicity in β-ΤΜ patients. Following
splenectomy the total body iron storage capacity is reduced. Iron will be redirected and
accumulated in the liver, heart, and other organs and unless effective chelation protocols are
introduced, the iron concentration in these organs will increase (Aydinok 2011, Aessopos 2005,
Fiorelli 1990)
In a separate study splenectomised patients had a higher incidence of myocardial iron load
(48%) and higher myocardial iron by comparison to non- splenectomised patients (28%) (Aydinok
2011)."

Hope now my T2*Score will improve as the ferritin level comes to normal level
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Start listening your body, it always gives signs
Dharmesh
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« Reply #92 on: June 10, 2015, 01:27:30 AM »

Really good to hear. Have your hb and transfusion period improved too?

No
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Start listening your body, it always gives signs
nice friend
Thalassemia Major
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If I Can, Why Not You??... If I Can U TOO !!!...


« Reply #93 on: June 23, 2015, 04:39:33 PM »

hanumant .. .really happy  to see your strugle against Fe level ... 
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair
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« Reply #94 on: July 16, 2015, 08:24:36 AM »

Hello,

This is a deeply disappointing time for me as inspite of decreasing ferritin to a remarkably low level LVEF decrease to 40%.

Trying to NOT loosing hope !!

Currently taking chelation @50mg/kg defrijet earlier it was 40mg/kg &
Kelfer increased to 60mg/kg daily from 75mg/kg thrice a week.

Need a miracle
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Andy Battaglia
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« Reply #95 on: July 16, 2015, 01:08:07 PM »

Can you take kelfer daily?
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Andy

All we are saying is give thals a chance.
Dharmesh
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« Reply #96 on: July 17, 2015, 01:32:30 AM »

Dear Andy,

I have already started taking Kelfer daily @60mg/kg from this week.

Earlier i was taking Kelfer @75mg/kg thrice a week.
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« Reply #97 on: August 07, 2015, 03:49:46 PM »

hanumant,
dont lose hope budy ,,, my ferritin was 13000+ at a stage of life ,, and at that time my SGPT was 612 ... it takes an 15 months to get the fe within normal range ... if i can do it ,, then u too man .. keep it up 
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair
Dharmesh
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« Reply #98 on: December 24, 2015, 08:37:57 AM »

Some Happy updates on Christmas 

My Ferrtitin is 477 ng/ml

Cardiac T2* Score 8.32 = Iron Moderate

Liver T2* Score =  Iron None

On Thalidomide , Wheatgrass

No blood transfusion since last 4+months

 
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Andy Battaglia
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« Reply #99 on: December 24, 2015, 08:59:47 AM »

Wow! Keep going. The heart is last to get cleaned and you're on the path to success. Great job!   
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Andy

All we are saying is give thals a chance.
Canadian_Family
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« Reply #100 on: December 24, 2015, 11:07:10 AM »

Some serious aspiration for our members.
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Regards.
Lokkhi maa
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« Reply #101 on: December 25, 2015, 08:41:21 PM »


 
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Lokkhi Maa
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« Reply #102 on: December 25, 2015, 08:47:15 PM »


Hello Andy,

If SF level is high then its effect the hb level ?
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Lokkhi Maa
Andy Battaglia
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« Reply #103 on: December 26, 2015, 03:15:04 PM »

Interesting question, Lokkhi. Free iron circulating in the blood does damage red blood cells, so lowering the iron load does have a psoitive effect on Hb level.
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Andy

All we are saying is give thals a chance.
Lokkhi maa
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« Reply #104 on: December 26, 2015, 09:20:11 PM »


Thanks for reply Andy.

As I know may be after 3 months red blood cells are changes by breaking and create new continuously.Is there any supplements,medicines or natural remedies which will help to keep the red blood cells ...
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Lokkhi Maa
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