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Author Topic: Gene Transfer Therapy Stage 1 Clinical Trials at Sloan Kettering  (Read 46208 times)
Canadian_Family
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« Reply #60 on: October 22, 2015, 12:43:48 PM »

Andy,

Thanks for the update.

MSKCC updated the website yesterday. The major change is "This study is ongoing, but not recruiting participants.". Study completion date remains as July 2016.

https://clinicaltrials.gov/ct2/show/NCT01639690

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Andy Battaglia
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« Reply #61 on: October 22, 2015, 01:04:15 PM »

SK presented at the meeting this week. I understand that they said that their process appears to be working and that they think the lesser preparation regimen was sufficient.
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Andy

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« Reply #62 on: October 22, 2015, 01:26:16 PM »

Thanks for the update.

So relieved to hear that lesser preparation regimen is still on horizon.
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« Reply #63 on: October 23, 2015, 12:15:00 AM »

Thanks Andy for sharing the updates
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Sharmin
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Little A


« Reply #64 on: October 27, 2015, 03:03:35 PM »

Thank you for sharing Andy.  As parents we champion the lower intensity to protect our children from the affects of the preparation. 

Wishing this group success,

Sharmin
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Sharmin
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« Reply #65 on: October 28, 2015, 01:41:58 AM »

Thanks Andy for the update! good to hear that progress was being made at SKCC.

Andy, was there any other information that was shared in the meeting. how well were the patients coping, hb raise, etc.
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« Reply #66 on: October 28, 2015, 01:03:08 PM »

Andy,
Thanks for sharing the update. multiple options for Gene therapy will always be useful for the patients. Hoping for more good news in ASH conference in December.

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Canadian_Family
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« Reply #67 on: August 03, 2016, 03:14:43 PM »

Primary results delayed by another year. Now July 2017......

https://clinicaltrials.gov/ct2/show/NCT01639690

Andy had already briefed us the situation in Sloan Kettering and politics going on. Please make your own conclusion.
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Andy Battaglia
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« Reply #68 on: August 04, 2016, 06:04:00 PM »

They may just want to study it for another year. My understanding is that the rise in Hb has been steadily going up, but at a slow pace. I'm sure they want to see that this continues, even if slow, before making any conclusions.
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Andy

All we are saying is give thals a chance.
Canadian_Family
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« Reply #69 on: August 05, 2016, 08:41:02 AM »

Fair enough.

Thanks Andy
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« Reply #70 on: August 08, 2017, 11:23:37 AM »

Another year delay. Estimated completion time has no been extended till July 2018. The study started in 2012. Not sure if they are on right track.....

https://clinicaltrials.gov/ct2/show/NCT01639690

 
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Sharmin
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« Reply #71 on: August 08, 2017, 11:11:00 PM »

I spoke with Pat yesterday.  He is still in court fighting for these trials to resume. This is the best vector, but trials have been stalled. 
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Sharmin
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