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Author Topic: Launch of Thalassemiamajor.com  (Read 7592 times)
Pratik
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« on: October 29, 2012, 05:27:26 AM »

Hi,

I'm glad to announce of launching of an informational page about Thalassemia (and mainly major type):

http://thalassemiamajor.com

I was developing it since yesterday. With some very extraordinary and amazing articles found on Thalpal, and with consent of Mr. Andy, I've provided general information about thalassemia and also contributed some excerpts from my side.

I have also provided the source links to relative articles, as well as wrote about our this discussion forum, if anyone finds that site and wishes to see.

I have had this and thalassemiamajor.net domain since long and I thought to make use of it (as I'm a web developer) and help those parents and patients that are in seek of the crucial information about their newborns.

I wish that we will have more people here discussing about their problems and views by finding the site.

I have also provided a Google Translate tool in the very top so even people who are not familiar to English language can take advantage of the information.

Please let me know if you people have any feedback(s) or want me anything more to add.

-P.
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Phoenix
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« Reply #1 on: October 29, 2012, 07:53:11 AM »

Well done Pratik.

Keep it up.
 
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Start listening your body, it always gives signs
Tarique Qureshi
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« Reply #2 on: October 30, 2012, 05:47:08 AM »

  Marvellous efforts. I like and appreciate your efforts
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Narendra
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« Reply #3 on: November 02, 2012, 11:40:09 AM »

Nice Pratik. I like the Translate option where folks who don't know English can read it.
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Sushil
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« Reply #4 on: October 14, 2013, 09:11:33 AM »

Hi Pratik,

I saw your page and my best wishes for you, you done a marvelous job. God bless you.

Regards
Sushil Thakur
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Sharmin
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Little A


« Reply #5 on: October 14, 2013, 12:52:59 PM »

Pratik,

Wonderful job!  It is great to have more information available for patients and family members.  When my son was first diagnosed, and I entered thalassemia as a search term - only outdated and dismal information was available to me. 

Your website and this forum provide a far more realistic and positive prognosis for patients - while relaying the importance of compliance in order to achieve all that is possible.

Well done!

Sharmin
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Sharmin
Pratik
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« Reply #6 on: October 15, 2013, 06:53:43 AM »

Sharmin & Sushil,

Glad to hear those words. Well talent ain't of any use if its not used for betterment of masses and that's what I did. I did favor to current thalassemics and I'm doing a big favor in advance for those who can be protected from being thalassemics.

If it wasn't for thalpal, I'd not have got this big inspiration. It's been almost an year now since I launched it and its ultimate happiness if that site can help anyone and I'd be even more happy if he finds Thalpal through it. The support (whether moral or answers to various questions) is just amazing. I don't have many connections to thalassemics in my city here unfortunately, but now I can feel through thalpal that I'm connected with all thals residing in the world, hehe.

And not just that, I learned, I learned a lot from Thalpal and members like you, Andy and more more that will even make the time fall short if I was to count them. All the supplement stuff and much more is what I've learned from here. And I'd also like to thank Miss Lisa for this wonderful part of her she left on this earth to help others and cherish good moments.

Best,

-P.
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Phoenix
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« Reply #7 on: October 15, 2013, 09:52:26 AM »

Hi Pratik,

Ur work is very good.

There is an opportunity for you to meet thals in Delhi April 2014.

NTWS is going to organise a confo.

Details can be had from

thalassemiaindia.org
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Sara76
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« Reply #8 on: October 15, 2013, 07:44:54 PM »


Great job, Pratik!
 
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Pratik
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« Reply #9 on: October 17, 2013, 01:49:24 PM »

Hi Pratik,

Ur work is very good.

There is an opportunity for you to meet thals in Delhi April 2014.

NTWS is going to organise a confo.

Details can be had from

thalassemiaindia.org
Hi Dharmesh,

Hope you're really doing well!

Damn, I'd blame my college for organizing exams in April.

Nonetheless, the opportunities will be there in life ahead.


Great job, Pratik!
 
Hey Suelou,

Thanks dear. I hope you are well too and may you be always fit and healthy.

Welcome to Thalpal btw.

-P.
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Canadian_Family
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« Reply #10 on: October 18, 2013, 09:27:09 AM »

Good work. All efforts are appreciated.
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Regards.
shaziya
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« Reply #11 on: December 04, 2013, 05:19:11 AM »

HI PRATIK
I just saw ur page n read it. its superb and really valuable..  thank u  and  may God bless u.
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Sunny2701
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« Reply #12 on: October 03, 2017, 03:48:07 PM »

Is the website still active?  I am not able to get to it
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