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Author Topic: Bone Marrow Transplant of Shaheera Faheem  (Read 67322 times)
Shaheera
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Shaheera


« Reply #15 on: March 13, 2013, 10:18:59 AM »

This is one of the toughest days.....it will all pass ....God bless u and give u and ur daughter strength to go thru it

Thank you for all your wishes.
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Faheem Sultan - Father of Shaheera
Sushil
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« Reply #16 on: March 13, 2013, 10:51:12 AM »

our prayers are with Shaheera.

be strong god is with you.


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Sharmin
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Little A


« Reply #17 on: March 13, 2013, 11:33:25 AM »

Praying that Shaheera is doing well and for a very successful BMT and recovery,

Sharmin
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Sharmin
Shaheera
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Shaheera


« Reply #18 on: March 13, 2013, 11:51:02 AM »

Your graciousness is appreciated
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Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #19 on: March 13, 2013, 11:53:52 AM »

our prayers are with Shaheera.

be strong god is with you.




thanks so much.
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Faheem Sultan - Father of Shaheera
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« Reply #20 on: March 13, 2013, 12:04:17 PM »

Good luck, again. And shaheera looks so beautiful and little angel like in your picture. Little confused look as well, haha.

Best,

-P.
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Every child is special.
EugenioLaMesa
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WWW
« Reply #21 on: March 14, 2013, 06:10:25 AM »

Dear Sir,

Thank you, we have had first opinion from Dr. Sodani few months before and he gave us go signal for BMT.


I'm glad that you've already been in touch with Dr. Sodani. As I said, if you want he can also give you his advice during the BMT.
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Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook: http://fb.com/CureThalassemia
Shaheera
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Shaheera


« Reply #22 on: March 14, 2013, 12:20:15 PM »

I'm glad that you've already been in touch with Dr. Sodani. As I said, if you want he can also give you his advice during the BMT.

Thank you sir, so far everything is fine and if any problem arise I will contact immediately.

Regards
« Last Edit: March 14, 2013, 08:32:46 PM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #23 on: March 14, 2013, 12:35:25 PM »

Today was just normal day for Shaheera but not for me and my wife. We were called for by the Commandant to sign off the consent of BMT. We were briefed abut possible complications during and after BMT, these were in hundreds.

We were also briefed about classifications and as per Pre Transplant Assessment my daughter's rating is "Class 1" which was good news. Today evening my daughter was shifted from Isolation ward to Specialized Isolation Room. A copy of protocol will be provided by tomorrow and the day 0 will be 25th March.

Regards
« Last Edit: March 15, 2013, 10:07:08 AM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
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« Reply #24 on: March 14, 2013, 01:40:17 PM »

Today was just normal day for Shaheera but not for me and my wife. We were called for by the Commandant to sign off the consent of BMT. We were briefed abut possible complications during and after BMT, these were in hundreds.

We were also briefed about classifications and as per Pre Transplant Assessment my daughter's rating is "Class 1" which was good news. Today evening my daughter was shifted from Isolation ward to Specialized Isolation Room. A copy of protocol will be provided by tomorrow and the day 0 will be 22nd March.

Regards
All the best!

Times like this might be the toughest ones, especially for parents.

But your daughter will be thanking her daddy for gifting her normal lifestyle after many years from now and you'll recognize how great decision you took for her and will smile remembering it!

All the best and all will be good!
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Every child is special.
Shaheera
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Shaheera


« Reply #25 on: March 15, 2013, 10:14:57 AM »

Day (-10)

Thank you Pratik.

Today BMT conditioning agent busulfan, 4 mg per kg started for 4 days, Shaheera is doing well. I cannot go inside the room but my wife updating day to day activity.

Regards
« Last Edit: March 16, 2013, 03:29:14 AM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #26 on: March 16, 2013, 08:02:22 AM »

Day (-09)

Shaheera is doing quite well, her health is fine. Due to use of "Busulphan" the anxiety may increase that's why she has been given "Clonazepam" and due to this she is bit sleepy. There are series of other medicines also given but the above mentioned most important

Overall its a normal day.

Regards
« Last Edit: March 16, 2013, 08:10:25 AM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #27 on: March 18, 2013, 01:14:45 PM »

Day (-08 & -07)

I spent whole day with my daughter and gave rest to my wife, Shaheera's appetite is low and she was missing her MOM. Rest everything under control.

Regards
« Last Edit: March 18, 2013, 01:35:50 PM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
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« Reply #28 on: March 18, 2013, 01:47:28 PM »

It could be nothing but normal. Good to know that rest is fine.

Best,

-P.
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Every child is special.
MikeD
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« Reply #29 on: March 19, 2013, 05:51:07 PM »

Best wishes to you and your family. Will keep them in our prayers. Thanks you for sharing your experience.
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