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Thalassemia Patients and Friends and thalpal © A. Battaglia 2019





55248 Posts in 5898 Topics by 6190 Members
Latest Member: Bobcat5137

This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: Bone Marrow Transplant of Shaheera Faheem  (Read 76983 times)
Shaheera
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Shaheera


« Reply #45 on: March 27, 2013, 10:06:01 PM »

Day +2

Quiet Wednesday.

Another good night of sleep and another quiet day here on the Pediatric Bone Marrow Transplant Unit. She doesn't like having to wear a mask so I am properly scrub in isolation room.  

From last 3 days I am with my baby girl and taking care day to day activities. Guys taking care of infants is full time job  , salute to the mothers. That's why (Once the Prophet said: “Heaven lies under mother’s feet”. (Tabarani))

Cyclosporine with the combination of Folinic Acid was started after day zero.


Regards
« Last Edit: March 27, 2013, 10:20:30 PM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #46 on: March 28, 2013, 09:25:32 PM »

Day +3

Shaheera looks active and she like to watch cartoons all day, when she become tired then she use tablet. Her liquid intake dropped but she is fine with mash foods.

Platelets count are 56 and may be in two days Platelets will be transfused.

Regards
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Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #47 on: March 29, 2013, 09:06:20 PM »

Day +4

Blood pressure on higher side due to use of sandimmune injection, I was also advised by the doctor that platelets will be transfused on day +6.

Regards
« Last Edit: March 30, 2013, 09:09:27 PM by Shaheera » Logged

Faheem Sultan - Father of Shaheera
CamisMom
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« Reply #48 on: March 30, 2013, 04:36:52 PM »

We just went through all of this. Hang in there, it is tough but will be well worth it in the end.   Thoughts and prayers with you and your family.
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Shaheera
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Shaheera


« Reply #49 on: March 30, 2013, 09:24:45 PM »

Dear Camis,

Thank you for all your well wishes and I wish you speedy recovery of your son /daughter.

Regards.
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Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #50 on: March 30, 2013, 09:35:19 PM »

Day +5

Overall day +5 was normal. Its my 6th day in isolation with daughter, I am trying to make less contact with daughter because the immunity is zero.

My wife is doing well and she want to come back in hospital but I informed her to have some more rest.

Regards
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Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #51 on: April 01, 2013, 05:55:12 AM »

Day +6

Temporary hair loss started (hair started to fall out 2 weeks after first chemotherapy session) and this is normal. The good thing is that her health is quite good and she have normal diet. This is my 8th day with my baby doll, physically tired but wide awake. Platelets not transfused yet, hopefully by tomorrow. 


Regards

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Faheem Sultan - Father of Shaheera
Pratik
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« Reply #52 on: April 01, 2013, 02:47:49 PM »

Hi,

Nice to hear that.

I wanted to ask one thing. You've done Cord Blood Transplant, right? And from what I know, Shaheera's mom was donor if I'm correct.

So how did this worked? Were your wife's cord saved since her birth or what?

Best,

-P.
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Every child is special.
Shaheera
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Shaheera


« Reply #53 on: April 02, 2013, 04:38:33 AM »

Day +7

150 ML Platelets were transfused and overall its a good day.

Hi Pratik,

It's Allogeneic Bone Marrow Transplant, and its just Day + 7 and I'm keeping my fingers crossed for the success of graft which will take around one week more.

Regards
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Faheem Sultan - Father of Shaheera
Pratik
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« Reply #54 on: April 02, 2013, 01:44:31 PM »

So did the mother's data fully matched or you went ahead and took risk because there might be greater chance of success if mother becomes donor, did you went with the latter possibility?

And don't worry, all will be good. Have faith on God.

-P.
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Every child is special.
Shaheera
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Shaheera


« Reply #55 on: April 02, 2013, 08:50:32 PM »

Day +8

Again 150 ML Platelets were transfused and first shot of G-CSF (granulocyte-colony stimulating factor) a growth factor that stimulates the bone marrow to make more white blood cells was given.

Hi Pratik,

Mother's data (HLA) is 100% matched with daughter's data (HLA).

Regards
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Faheem Sultan - Father of Shaheera
aabha
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« Reply #56 on: April 03, 2013, 11:23:38 AM »

you are a strong person and are taking care of your daughter and wife so well.....hope engraftment happens soon...all the best
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Shaheera
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Shaheera


« Reply #57 on: April 04, 2013, 10:17:30 AM »

Dear Aabha,

Thank you so much for your sweet words! I really appreciate that you're following day to day progress of my daughter's BMT. Have a good day too!

Regards
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Faheem Sultan - Father of Shaheera
Shaheera
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Shaheera


« Reply #58 on: April 04, 2013, 10:18:32 AM »

Day +9

It was same like Day 8 and I decided to have some rest, so my wife took charge on my place. In last 9 days I just slept 36 hours. My body wants some rest and wife's health (After Bone Marrow Donating) is better now. Next few days very important for my daughter.


Regards
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Faheem Sultan - Father of Shaheera
MikeD
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« Reply #59 on: April 04, 2013, 08:53:58 PM »

So glad to hear that things are going well for you and your family. I think that any of us here on this site are truly appreciative of you sharing your experience. 
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