• Welcome, Guest. Please login or register.
    November 29, 2020, 06:58:29 AM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andythalpal@yahoo.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55407 Posts in 5930 Topics by 6250 Members
Latest Member: Elisa825

Forum Tip: 
Put your birthdate in your profile, under "Forum Profile Information," and it will automatically come up on our calendar.
« previous next »
Pages: 1 Go Down Print
Author Topic: TIF World Congress Abu Dhabi 2013 - the website is now live!  (Read 20040 times)
manuelam
New Member
*
Offline Offline

Posts: 6


« on: January 18, 2013, 05:51:59 PM »

Hi Everyone!
Im pleased to inform you that the website for the Thalassemia International Federation World Congress website is now live.
Please visit www.tif2013.org if you have the chance. You can also "like us" on Facebook and follow news on Tweeter.
Hope you will be able to join us and Happy new year!
Manuela
Logged
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8696


Will thal rule you or will you rule thal?


« Reply #1 on: January 19, 2013, 03:48:59 AM »

I hope I can find a way to go. The cost to attend is an issue. The TIF conferences present a unique opportunity for me to make contacts, learn from the best doctors and researchers, and meet the people whose lives I have tried to help. I hope anyone who is able to attend, does so.
Logged

Andy

All we are saying is give thals a chance.
Lena
Supreme Member
*****
Offline Offline

Location: Athens,Greece

Gender: Female
Posts: 581



« Reply #2 on: January 22, 2013, 12:03:22 PM »

I may come, too, Andy. By the way, I met this weekend our Greek representative at the TIF Board of Directors and told her about thalpal. I think it is worthy to talk over about this site and spread the word.

Best wishes to all,
Lena
Logged
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8696


Will thal rule you or will you rule thal?


« Reply #3 on: January 22, 2013, 03:23:09 PM »

Thanks Lena. I am finding that after many years of hard work, we are seeing thalpal recognized by many thal related organizations as their friend and even partner in one instance. The goal of reaching out to the entire thal world is more a reality every day. I find there is no substitute for the conferences in terms of making contacts and learning about the latest developments in treatment. I missed the TIF Turkey conference but I truly hope that this next one will be possible for me.
Logged

Andy

All we are saying is give thals a chance.
manuelam
New Member
*
Offline Offline

Posts: 6


« Reply #4 on: January 22, 2013, 05:19:13 PM »

Dear Andy & Lena,
Thank you for your supporting words and I really hope you will be able to attend.
The preliminary educational program for the patients and parents is now available on the website
http://www.tif2013.org/patients_program.html
Best wishes
Manuela
Logged
sumit_thal
Active Member
**
Offline Offline

Posts: 56


« Reply #5 on: January 23, 2013, 05:18:05 AM »

Hi Andy,

I always fall short of words to appreciate what you have done for so many thal patients around the world. The least we can do is help raise money to make such useful trips possible. I have your address on one of the posts, I will mail a cheque donation. I am certain your trip to this conference is going to be useful for all of us.

Thanks again!
Logged
Pratik
Thal Major.
Supreme Member
*****
Offline Offline

Location: India.

Gender: Male
Posts: 826



« Reply #6 on: January 23, 2013, 06:55:37 AM »

Andy,

I'll also donate a few bucks for the ticket if you're required to go and attend this conference. Please let us know. You've already done so much for us and as sumit told, this is the least we could do.

-P.
Logged

Every child is special.
zahra
Senior Member
****
Offline Offline

Location: Abu Dhabi

Gender: Female
Posts: 287


« Reply #7 on: January 24, 2013, 08:51:05 AM »

I am so excited this is in our city.
Zahra
Logged
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8696


Will thal rule you or will you rule thal?


« Reply #8 on: March 04, 2013, 02:33:58 PM »

As things currently stand, patients will not be allowed into the scientific programs. We went through this in Singapore and I will not go through it again. Until TIF changes their minds and their attitude, I cannot endorse this conference and will not plan on attending. The conferences have to be about more than sight seeing and partying. Until TIF takes a stand in favor of the rights of patients, I will not support TIF.
Logged

Andy

All we are saying is give thals a chance.
Lena
Supreme Member
*****
Offline Offline

Location: Athens,Greece

Gender: Female
Posts: 581



« Reply #9 on: March 07, 2013, 10:47:30 AM »

I agree with you, Andy. Unless we are allowed to attend, there is no reason for us to go. If we want to stroll around for tourism, we do it on our own.

Lena
Logged
zahra
Senior Member
****
Offline Offline

Location: Abu Dhabi

Gender: Female
Posts: 287


« Reply #10 on: March 08, 2013, 03:07:02 AM »

Is there a way to influence them to change this?
Zahra
Logged
joyce
Junior Member
***
Offline Offline

Location: sabah, malaysia

Gender: Female
Posts: 118


with my baby jovy..


« Reply #11 on: March 27, 2013, 03:16:54 PM »

I really would like to donate some Andy, if u're going.. We support evry decision u make.
Coz we Lovvveeeeee u for evrything u hv done to Thallsmia Patients & friends..

Regards- Joyce!
Logged
Pages: 1 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!