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Author Topic: Nutritional Advice for Thal Minors  (Read 58948 times)
Andy
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« Reply #60 on: October 01, 2016, 12:21:14 PM »

Testing vitamin D should be included.

Now, you may be told levels are within range, but if B-12 or D are on the low end of normal, it's not good enough. Thals do much better when B-12 is near the high end of normal and with D levels above 40.
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urja
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« Reply #61 on: February 14, 2017, 01:30:39 AM »

 Hi Andy & thal friends,

I am a 53 yr old  Thal B minor diagnosed at the age of 23 yrs

My questions today are

1)  Beetroot is better raw or cooked ?
2) What should be the dose of Wheat grass powder ?
3) What should be the dose of Wheat grass tablets ?

Thanks so much for this forum

Good health to all
Urja
« Last Edit: February 15, 2017, 02:52:50 AM by urja » Logged
harris
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« Reply #62 on: February 15, 2017, 02:38:49 AM »

Hi Andy, I recently joined this group and thanks for you initiative.

Me (M38) and my son (M 11) both are Thal Minor,  I have few questions, I request your highlights.

While reading your post, i come to know that supplements are compulsory for Thal Minor, i would like to know before starting supplements/ medicine, should we go for blood test, if yes what are the test, secondly is there any specialist doctors who can deal better to thal patient.

I look forward for your advice please.

Regards -Harish Bhatt
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Andy
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« Reply #63 on: February 17, 2017, 10:46:07 AM »

No blood tests are needed, other than possibly getting the vitamin D levels checked. Testing for nutrients only shows the level in the blood. It does nothing to tell you what your body's actual needs are. The processes at work in thalassemia deplete nutrients. Replacing them is one fo the few things a thal minor can do to achieve better health.
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Andy

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urja
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« Reply #64 on: March 03, 2017, 05:29:49 AM »

Hi Andy,
Im confused about ...

1)  Beetroot is better raw or cooked ?
2) What should be the dose of Wheat grass powder ?
3) What should be the dose of Wheat grass tablets ?

Thanks so much for this forum

Good health to all
Urja
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Andy
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« Reply #65 on: March 05, 2017, 05:41:15 PM »

Raw beets have more vitamins that cooked. If they are cooked, it is best to steam for no longer than 15 minutes, as the longer beets cook, the more nutrients are lost.

Follow the instructions on the wheatgrass product you use. It can vary greatly from brand to brand. Powder or tablets made from the juice require a smaller dose than wheatgrass that is made from the grass itself.
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jsbhavsar
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« Reply #66 on: May 10, 2017, 07:47:54 AM »

Nomad, that's a form of Niacin, vitamin B3. While it does have value, it is not the chelator.

In Feb-2017 I hd uric acid of 6.8. However, I started B12 shots that comprised cynacobalamin 500mcg, folic acid 1.5mg and nicotinamide 100mg. Alternate day one 2ml shot.

After taking 4 shots, I had discomfort on kidneys.
After taking 5 shots, kidney pain continued and uric acid had shot to 9.

What I suspect, the nicotinamid in the B12 shot may have shot the uric acid to 9 in 12 days time.

http://www.livestrong.com/article/474323-can-niacin-cause-gout/

Seeing a high uric acid of 9, doctor prescribed Febuxostat 40mg tablet to me and the game changed completely.
Febuxostat was replaced with Allapurinol drug and that did not help me either.
Uric acid stands 10.0 today.

Doctor is insisting that some drug (Febuxostat or Allapurinol) to control uric acid maybe required 1 tablet once a day or 1 tablet alternate day.
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Saeed Ahmed
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« Reply #67 on: May 25, 2017, 12:05:56 AM »

Dear Andy,

For my 5 Yr old son with Thal B Trait  as my Hematologist did not prescribed any supplements or iron i am giving him papaya, mango, dates, orange, apple and spanich as they are consist of Vitamin A,C,E, floic aicd and iron apart from others.
He hates beet root 
Thank You.

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Andy
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« Reply #68 on: May 26, 2017, 03:35:04 PM »

Papaya is very good for the spleen. I mentioned in another post that muskmelon juice is also supposed to help shrink the spleen size. The foods you are giving are all very nutritious. This is how the entire diet should be, only nutritious foods.
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Andy

All we are saying is give thals a chance.
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