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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2015





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Author Topic: hallo friends  (Read 3053 times)
rumana
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Location: Dhaka,Bangladesh

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« on: November 25, 2007, 11:02:21 PM »

Hi,

i'm new here.i'm joined just now.i'm 25years old female patients from Bangladesh.

I've so much problem.recently i finished my graduation from a Public University in Bangladesh and now i'm working in a Organisation.But i afraid i can't continue caz of my illness.i feel very much weak day by day.from my very childhood it is with me.

please give me some suggetion.what will i do?

Rumana
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rumana
Andy
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« Reply #1 on: November 25, 2007, 11:33:41 PM »

Hi Rumana and welcome,

Can you tell us a little more about your condition? How often do you transfuse and what is your hemoglobin level? What is your ferritin level? Are you taking and vitamin supplements?
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Andy

All we are saying is give thals a chance.
rumana
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« Reply #2 on: November 25, 2007, 11:54:52 PM »

hallo andy,

thanks for your reply.my HB level is 6.5%.i took folic acid only in every night.i take more than 70bags of blood.since last 5years i don't take any blood transmission.i was better.But now i feel so much lathargic.and cant work anything for long time.cant read.But i want to study more and work more.

What can i do?
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rumana
Andy
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« Reply #3 on: November 26, 2007, 12:46:10 AM »

Your low Hb is most likely why you are so tired. If your Hb is 6.5 without taking blood, then you would be a thalassemia intermedia. If you aren't taking blood you need to try to raise your Hb. Take at least 1mg folic acid every day and try taking wheatgrass tablets. A B vitamin complex and vitamin E may also help. If you can't raise your Hb, you might have to start transfusing again. You should also have a ferritin test done and if your iron is high you will need to take a chelating drug like desferal or kelfer. Make sure you follow a nutritious diet and avoid foods that are high in iron.
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Andy

All we are saying is give thals a chance.
Zaini
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« Reply #4 on: November 26, 2007, 05:06:04 AM »

Hello Rumana,

Welcome on the forum,i am sorry to hear you are not feeling well,please take care of your self, low hb can be the major cause of your tiredness and low energy,you can definitely use wheat grass tabs, or may be hydroxyurea,or think about getting transfusions again.

Take care,

ZAINI.
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Mahbub
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« Reply #5 on: November 06, 2013, 01:05:00 AM »

hallo andy,

thanks for your reply.my HB level is 6.5%.i took folic acid only in every night.i take more than 70bags of blood.since last 5years i don't take any blood transmission.i was better.But now i feel so much lathargic.and cant work anything for long time.cant read.But i want to study more and work more.

What can i do?

Dear Andy,

Today is rumana's (Bangladeshi) birthday. Many many happy returns for her.
I witnessed that she is silent in this site since 6 years. do u have any news of her?
May Allah bless her with all good things.

-Mahbub
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Mahbub

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