Hi this is saddam please suggest me ...........

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Offline Bappy

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Hi this is saddam please suggest me ...........
« on: November 10, 2013, 01:09:01 PM »
Hi, friend i hope you having a very good time with your family . Dear friend from last month I faced very difficulties and fever . every fever attack me one by one but i do not know why . Now i facing a critical situation .last 8th November i feel acidity pain in my Stomach and immediately  my eye turned into dark yellow. i already drink lot of water but it progress slowly. i try a lot to make it normal but a little acidity pain on Stomach turned my eye yellow again . i complete my hepatitis vaccine and do my HCV test .

I do not know what i have to do now ......!! i do my every thing to make it normal but i unable. please friend mention a suggestion and Sir,Andy please guide me how can i recover it ......plz
I am a thalassamia E-beta patient and I am a M.B.S student

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Offline Sharmin

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Re: Hi this is saddam please suggest me ...........
« Reply #1 on: November 11, 2013, 04:25:43 PM »
Bappy,

Is the pain in the upper right quadrant of your abdomen?  It is possible that you are having trouble with your gall bladder (stones or sludge) - and you may be having an infection. 

If it is not the gallbladder you may need to have your liver investigated carefully.  How is your liver function?  Your ferritin levels? 
How is your appetite?  Have you had an ultrasound or mri of your liver recently?


Please keep us posted,

Sharmin

Sharmin

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Offline Bappy

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Re: Hi this is saddam please suggest me ...........
« Reply #2 on: November 11, 2013, 05:01:34 PM »
I do not know about gallbladder but I talk about gallbladder with my doctor .Today i visited a hemoglobin specialist Doctor and he give some test like CBC, SGPT, S.FERRITIN, RBS, USG OF W/A and ALICO BLOOD ELECTROGRAPHY . I'm preparing to do those test and i hope it'll clear me what is happening. please pray for me ....
I am a thalassamia E-beta patient and I am a M.B.S student

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Offline Sharmin

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Re: Hi this is saddam please suggest me ...........
« Reply #3 on: November 11, 2013, 07:38:13 PM »
I am certainly praying for your Babby.  You are right it is important to determine what is causing your symptoms so that the doctors can address them.  Have you recently had an ultrasound or MRI of your abdomen? If you press gently on the upper right hand side of your abdomen (just under the ribs) is it painful? 

I am glad that your doctor is looking in to your symptoms,  I hope that you will be better soon. 

Sharmin
Sharmin

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Offline Tamizhan

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Re: Hi this is saddam please suggest me ...........
« Reply #4 on: November 12, 2013, 03:37:20 AM »
I'm also facing similar problem since May 1st week.
I've undergone gastroscope a and ultra sound testing.

Gastroscope results showed a part of my stomach is eroded and red in color because of H.pylori infection. So doctor have advised me to take antibiotics along with ranitidine tablet.

My ultrasound result revealed that they are multiple gallstones in my gall bladder. So doctor advised me to remove gall bladder thru laparoscopy.

Due to dehydration eyes may turn into dark yellow. Drink plenty of water (1 liter) once you wake up from bed in the morn and have buttermilk. This will reduce yellowing of eyes.
I never give up!

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Offline Tamizhan

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Re: Hi this is saddam please suggest me ...........
« Reply #5 on: November 12, 2013, 03:39:36 AM »
Is there any weight loss? And r u feeling stomach pain when u had oily food?
This are the symptoms of gallstone. Better meet an GI specialist too and do ultrasound test.
I never give up!

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Offline Bappy

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Re: Hi this is saddam please suggest me ...........
« Reply #6 on: November 12, 2013, 07:47:02 AM »
@Sharmin

thanks Sharmin for your message . i don't have MRI yet but thinking to do it as soon as possible .May be tomorrow or day after tomorrow i'll be able to get my total test report , then i will confirm what exactly  happened with me . my S.ferritin is 1793 tested on 7-3-2013.
I am a thalassamia E-beta patient and I am a M.B.S student

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Offline Bappy

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Re: Hi this is saddam please suggest me ...........
« Reply #7 on: November 12, 2013, 07:50:27 AM »
@Tamizha

thanks Tamizha for your message . yes i lose my 7 K.g weight within two week and some time feel uncomfortable pain after eating oily food .
I am a thalassamia E-beta patient and I am a M.B.S student

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Offline Tamizhan

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Re: Hi this is saddam please suggest me ...........
« Reply #8 on: November 12, 2013, 12:04:26 PM »
Better take a ultrasound test.
I never give up!

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Offline Bobby

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Re: Hi this is saddam please suggest me ...........
« Reply #9 on: November 12, 2013, 09:27:19 PM »
I hope you start feeling better Bappy and it's nothing to serious.

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Offline Sharmin

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Re: Hi this is saddam please suggest me ...........
« Reply #10 on: November 13, 2013, 03:39:08 PM »
Saddam,

Any updates?  how are you doing?
Sharmin

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Offline Pratik

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Re: Hi this is saddam please suggest me ...........
« Reply #11 on: November 13, 2013, 04:01:07 PM »
Hey Bappy,

Please take utmost care of yourself and keep us updated. You're in our prayers and hoping for nothing serious.

Best,

P.
Every child is special.

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Offline Bappy

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Re: Hi this is saddam please suggest me ...........
« Reply #12 on: November 13, 2013, 04:30:45 PM »
I just received my all blood test report . Everything is alright but spleen, S.ferritin are not good. my spleen size is 16.1 c.m and s.ferritin is 2900 ng/ml now . my gallbladder is normal but some sludge is seen in gallbladder . My SGPT(alt) is 93 U/L .  please pray for me .............. thanks
« Last Edit: November 13, 2013, 04:36:35 PM by Bappy »
I am a thalassamia E-beta patient and I am a M.B.S student

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Offline Sharmin

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Re: Hi this is saddam please suggest me ...........
« Reply #13 on: November 13, 2013, 07:39:06 PM »
Bappy,

Andy and your doctor will be able to give you a much better explanation.

The good thing is that you don't have any organ abnormality, masses or scarring.  Sludge is common in the gall bladder for thalassemics - my son has it too.  I can guide you on clearing that once other things are settled.

I am not sure if your ferritin is elevated due to the stress your body is going through from being unwell or if in fact you have iron overload.  
Are you presently on exjade?  Combination chelation is an absolute must for your right now - it will solve many of your problems.

I see that your hemoglobin is very low.  Low hemoglobin is bad for many many reason - and prolonged anemia will enlarge your spleen.  I think that hypertransfusion is necessary to to reduce the size of your spleen.  A large spleen reduces your hemoglobin.  Low hemoglobin results in heavy increased absorption of iron in the gut - which is a a negative cycle re-enforcing low hemoglobin, large spleen and iron overload.  

If your doctor agrees, perhaps look into:
increased transfusion - keeping above 10 at all times.
combination chelation exjade/desferal or ferriprox/desferal or ferriprox/exjade (if approved where u are)

If this does not help you the doctor may suggest removing your spleen - but I think it is worth a shot trying to decrease the size of your spleen by hyper transfusing.

I think one problem is feeding into the next - low hg = large spleen = greater breakdown of red blood cells = sludge in gall bladder and yellowing and iron overload....and so on.

You will be ok Bappy all of these problems can be managed.

If you are on exjade - be sure to split the does (1/2 in am) and (1/2 in the pm) - that may help with your SGPT.

Best and please keep us posted,

Sharmin
« Last Edit: November 13, 2013, 10:13:38 PM by Sharmin »
Sharmin

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Offline Andy Battaglia

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Re: Hi this is saddam please suggest me ...........
« Reply #14 on: November 14, 2013, 12:50:43 AM »
I have talked with Bappy about this on Facebook and told him the same thing Sharmin has. It will help a lot if you can raise your Hb level, Bappy.

And once again, I will ask that if anyone has excess of Exjade or desferal, please let me know. We've been getting some Exjade for Bappy occasionally, but we need more.
Andy

All we are saying is give thals a chance.

 

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