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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55205 Posts in 5887 Topics by 6177 Members
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A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Thalassemia Treatment in the Philippines  (Read 36055 times)
wyrlo
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« on: June 21, 2014, 04:20:29 AM »

My sister was diagnosed with Alpha Thalassemia recently, because her son is showing symptoms of the condition. Her son is 3 years old this August and I can't even tell know how many times he's been rushed to the hospital.
Just a brief background: My father had 10 siblings, 6 of them died of cancer. 3 of those who died suffered from leukemia, or so they believed at the time. Now I believe my nephew has it.
He's undergone a lot of tests and they haven't ruled out or diagnosed him with Thalassemia.
I'm worried about them. My sister's Health Insurance Provider, Maxicare, has my nephew covered for P150,000(Philippine Peso) per sickness per year and they have just maxed it out. Any further hospitalization means money from her own pocket. I know for a fact that she cannot afford it. They reached the maximum limit but my nephew is still not diagnosed. He has to go through regular blood transfusion, which is costly.
I joined this group hoping to find someone who can help my nephew get diagnosed of whatever it is that he has. And if anyone knows a place here in the Philippines that can do blood transfusion that isn't too costly, I would highly appreciate it.
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Andy Battaglia
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« Reply #1 on: June 21, 2014, 08:35:41 AM »

Can you get a copy of his blood work and test results?
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Andy

All we are saying is give thals a chance.
wyrlo
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« Reply #2 on: June 21, 2014, 07:23:31 PM »

I requested a copy of the bloodwork and test results from my sister. I'm still waiting for a reply. Will it be ok if I post it here?
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Andy Battaglia
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« Reply #3 on: June 22, 2014, 09:30:49 AM »

You can either post it here or send it to me in a PM.
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Andy

All we are saying is give thals a chance.
wyrlo
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« Reply #4 on: September 13, 2014, 09:54:56 AM »

Hi, Attached are the Test Results
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Andy Battaglia
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« Reply #5 on: September 15, 2014, 09:32:01 PM »

These results are unusual to say the least. The Hb is very low and obviously a cause of many health problems. However, none of the numbers make this look like any type of intermedia thal, alpha or beta. As recommended in the results. DNA testing is needed for diagnosis. The cost may be an issue. It should be done though as soon as possible. In addition, it needs to be a comprehensive DNA test that looks for beta thalassemia and both deletional and non-deletional types of alpha thalassemia. If this is the result of thalassemia only, there is a good possibility it is a mix of an alpha thal mutation (not a deletion) and beta thal. These combinations can result in unstable hemoglobin and an Hb level much lower than what is expected with thal minor.

Hb 6.5  Very low
RBC 2.66  quite low for most types of thal. It is usally above 5 in thal minor, but low in iron deficiency.
MCV 71  Typical for alpha or beta carriers and iron deficiency.
RDW 28.9  This is also very high for thal. Usually <18 in thal carriers.
HbF 2  Higher than non-thal and typical of beta thal, but much higher than would be seen in alpha thal.
HbA2 2.8  Would be >5 in beta thal, but could be this low in some forms of alpha thal.

Very unusual numbers.
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Andy

All we are saying is give thals a chance.
wyrlo
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« Reply #6 on: September 22, 2014, 08:46:30 PM »

I will try to see if we have Comprehensive DNA testing here.
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wyrlo
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« Reply #7 on: October 28, 2014, 02:12:32 AM »

Does anyone know any Doctors in my area that can help my nephew?
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