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54038 Posts in 5679 Topics by 5722 Members
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A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: increase of Transfusional needs  (Read 29679 times)
Hafiz Akhtar
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« on: December 18, 2014, 11:06:19 PM »
Dear Andy, my son 10 yrs old thal major with 2000 ferritin, 4cm spleen & liver enlargement. his transfusion gap since fiour months has been reduced. now his hb reduced to  8. hb after every 15 days. Cenathous tincture is being given to him. what should i do. how to imrove his trsfusional gap.
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Andy
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Will thal rule you or will you rule thal?
« Reply #1 on: December 20, 2014, 01:35:17 PM »
How high is his Hb after transfusion?
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Andy

All we are saying is give thals a chance.
Hafiz Akhtar
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« Reply #2 on: December 22, 2014, 12:02:48 AM »
thanks for response Andy. after transfusion of full bag of pack cells max 2 & half points raises dear.
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nice friend
Thalassemia Major
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If I Can, Why Not You??... If I Can U TOO !!!...
« Reply #3 on: January 23, 2015, 06:47:28 AM »
Hafiz,
wats his weight ?? ...
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Umair
Hafiz Akhtar
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« Reply #4 on: January 26, 2015, 01:24:40 AM »
thks dear. his weight is 26 kg.
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Hafiz Akhtar
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« Reply #5 on: January 28, 2015, 02:36:17 AM »
dear Andy. may i start Hydroxy urea to my son. he has Del619 mutation from mother & Cap +1 from father. HU respond these mutations or otherwise. thaks.
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Andy
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« Reply #6 on: January 28, 2015, 05:09:11 PM »
Hafiz,

I would suggest at least a 6 month trial of hydroxyurea, but only under a doctor's supervision. If your child does start, please add wheatgrass tablets also, as this has been shown to improve the results of hydroxyurea. Dr Vijay Ramanan of Pune, India has had good success with this combination. Some of his patients no longer require transfusion after this therapy.
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Andy

All we are saying is give thals a chance.
Hafiz Akhtar
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« Reply #7 on: January 29, 2015, 12:57:03 AM »
thanks Andy. i live in Pakistan, from where i can take wheatgrass. pl give me the links.
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nice friend
Thalassemia Major
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« Reply #8 on: January 31, 2015, 05:16:51 AM »
Hafiz,
u can buy wheatgrass from any GNC store ...  here is the list of the GNC stores within pakistan ..

KOHINOOR ONE
JARANWALA ROAD
FAISALABAD, 00000
(041)850164
Get Map Get Directions
 
CENTAURUS SHOPPING MALL
F-8 JINNAH AVENUE
ISLAMABAD, 00000
( 0) 0- 0
Get Map Get Directions
 
SUPER MARKET ISLAMABAD
F-6 MARKAZ
SCHOOL ROAD
ISLAMABAD, 00000
(051)2277830-1
Get Map Get Directions
 
ZAMZAMA KARACHI
8TH COMMERCIAL LANE
ZAMZAMA DHA PHASE V
KARACHI, 00000
213 5302 0012
Get Map Get Directions

SHAPES HEALTH STUDIO
GULBERG-III
LAHORE, 00000
042-5775140
Get Map Get Directions
 
M.M. ALAM ROAD
125 UPPER MALL
LAHORE, 00000
423 5785 3801
Get Map Get Directions
 
DHA LAHORE
212 Y PHASE 3 DHA COMMERC
LAHORE, 00000
042 3574 9556
Get Map Get Directions
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Hafiz Akhtar
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« Reply #9 on: February 02, 2015, 12:48:40 AM »
thanks dear. i will manage now.
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nice friend
Thalassemia Major
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Gender: Male
Posts: 2834


If I Can, Why Not You??... If I Can U TOO !!!...
« Reply #10 on: February 04, 2015, 08:33:32 AM »
u r always welcome hafiz bhai ..
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
Hafiz Akhtar
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« Reply #11 on: February 11, 2015, 12:03:44 AM »
dear i have obtained wheat grass. what would be its method to administer . currently i am giving him Oderox 500 (Cipla Company) single tab daily along with Evion 200, Calcium P syp. indrop D one inj monthly.
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Andy
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« Reply #12 on: February 12, 2015, 12:10:03 PM »
Which form of wheatgrass did you get?
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Andy

All we are saying is give thals a chance.
Hafiz Akhtar
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« Reply #13 on: February 15, 2015, 11:04:39 PM »
GNC Super Foods Wheat Grass (Pittars burg). surprisingly it also contains iron. its very costly. i obtained one pack for Rs.4500- (45 dollars). should i continue 4 my son
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jay
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« Reply #14 on: February 16, 2015, 03:54:10 AM »
woow that's quite a lot of money, booom. With that kind of money I can rent one hector of farm land in Pakistan 
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