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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2019





55097 Posts in 5864 Topics by 6146 Members
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This is Thalassemia Patients and Friends,
dedicated to its founder,
Lisa Cammilleri.
(1970-2004)
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Author Topic: samyuktha' BMT  (Read 42379 times)
samyuktha
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« on: August 27, 2015, 07:32:49 AM »

Dear Andy brother & Friends,

       Hope everybody is doing fine.Sorry for the long gap in posting in our forum and not able to reply to a few messages.I was held up with arranging funds for Samyuktha's BMT.Everything hasbeen arranged and the good news is that preparation for our Samyu' s BMT has already started.she was admitted on 20 th August in Immuno ICU.Her chemotherapy by IV line started on 22nd of August.Today her chemotherapy sessions got over.From tomorrow she will be having ATG (Immuno Suppressant) for 3 days since she is going to have unrelated Transplant.On 31st of August,coming Monday, she will be having her transplant.

Friends,keep her in your prayers.

I will update you when ever I get free time.

Take care ,

Regards
Viji
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S.Vijayalakshmi
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« Reply #1 on: August 27, 2015, 02:30:38 PM »

Great News, Best of Luck. Please keep us posted.

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Sharmin
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Little A


« Reply #2 on: August 28, 2015, 12:08:23 AM »

Sending prayers for a good outcome for your child.

Sharmin
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Sharmin
Himanshu Kumar
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Aditi


« Reply #3 on: August 28, 2015, 02:17:21 AM »

Prayers and best wishes for the little one and all family members.
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Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
Lokkhi maa
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« Reply #4 on: August 29, 2015, 10:08:34 PM »


Best of  luck dear Samyu..
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Lokkhi Maa
bikram
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« Reply #5 on: September 01, 2015, 05:12:08 AM »

Best of Luck dear
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samyuktha
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« Reply #6 on: September 01, 2015, 10:04:42 PM »

Dear friends,
         Thank you all for your wishes and prayers for samyuktha.Her BMT transfusion went smoothly on 31 st August.she is fine except for episodes of loose motions which the doctors say is normal after chemotherapy.This can continue for another few days and will subside.Samyu should be able to show cell count in 7 to 10 days post BMT.Sept 9 th is her birthday and I pray the almighty that her birthday gift is good cell count and her complete cure with quick recovery.

When I get free time I will update you.

Regards,
Viji.
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S.Vijayalakshmi
karima2
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« Reply #7 on: September 03, 2015, 01:52:08 PM »

Good luck to your son samyuktha and happy birthday!
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Bostonian_04
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« Reply #8 on: September 04, 2015, 02:47:08 PM »

Prayers for a good outcome for Samyuktha!
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Little A


« Reply #9 on: September 08, 2015, 11:47:54 PM »

Happy Birthday to your child.  Praying that all is well!
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Sharmin
msarika
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« Reply #10 on: September 09, 2015, 03:15:29 AM »

HAPPY BIRTHDAY DEAR SAMYU!!!!!
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Himanshu Kumar
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Aditi


« Reply #11 on: September 13, 2015, 12:32:28 PM »


How is Samyukata doing. Hope by now she would have started showing donor's cell count in the peripheral blood. Its the neutrophil that engrafts first. The average time for neutrophil engraftment is 14 - 20 days in BMT. Has the chimerism test been done? We all are anxious to know the progress. Our prayers and blessings are with you and the child.

Best wishes from all of us here.
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Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
samyuktha
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« Reply #12 on: September 14, 2015, 01:36:20 AM »

Dear Friends and Andy brother,

     Thank you all for your prayers and wishes for my daughter Samyuktha's complete cure.Her birthday went fine in BMT unit on 9 the September.She cut her Birthday cake and got a doll as gift.she is happy.
As for her clinical updates;
Today is day +14 after BMT.
They have taken a blood test today morning to confirm that donor cells are only present in her body.Prayers to God that everything happens good with her.
Today her cell count is as below;

TC: 6200
HB:10.3
PH:16000
PCV:30
Keep her in your prayers.

Thank you,
Regards,
Viji

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S.Vijayalakshmi
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« Reply #13 on: September 14, 2015, 10:11:06 AM »

All my prayers for samyuktha.
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Himanshu Kumar
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Aditi


« Reply #14 on: September 14, 2015, 10:16:45 AM »

Great news!. what's her MCV. Please keep us posted about her chimerism report as well. Really happy for Samyukta.
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Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
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