• Welcome, Guest. Please login or register.
    April 24, 2019, 07:54:14 AM

  • Login with username, password and session length

Sajid's dove

Tell everyone they can now find this site by typing this into their browser:

thalpal.com

Click to visit us on Facebook


If you have any problems registering or signing in, please send an email to: andy@thalpal.com
Please do not send questions about thalassemia to this address.


Administrators
Andy
Danielle

Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2018





55001 Posts in 5847 Topics by 6100 Members
Latest Member: faithxalways

Forum Tip: 
Put your birthdate in your profile, under "Forum Profile Information," and it will automatically come up on our calendar.
« previous next »
Pages: « 1 2 3 4 5 6 » Go Down Print
Author Topic: samyuktha' BMT  (Read 40126 times)
Sharmin
Global Moderator
Supreme Member
*****
Offline Offline

Location: Canada

Gender: Female
Posts: 4155


Little A


« Reply #15 on: September 14, 2015, 08:27:48 PM »

This is such good news!  Hoping for ongoing improvement in her health!
Logged

Sharmin
samyuktha
We will Emerge as Winners in Life.
Active Member
**
Offline Offline

Location: Chennai,India

Gender: Female
Posts: 71


We will overcome all the hurdles in Life.


« Reply #16 on: September 15, 2015, 12:30:59 PM »

Hi friends,

Today we got samyuktha's donor chemerism report.
Its 100% donor cells.
Thanks to all your prayers and best wishes.
Please continue to keep samyuktha in your prayers.

God is great .Gods blessings brought us so far.

Take care,
Regards ,
Viji
Logged

S.Vijayalakshmi
karima2
New Member
*
Offline Offline

Posts: 21


« Reply #17 on: September 15, 2015, 04:25:47 PM »

Good luck!The cure of samyuktha gives us joy as if it was our children.
Logged
catchR
Active Member
**
Offline Offline

Posts: 87


« Reply #18 on: September 16, 2015, 01:58:11 AM »

My prayers for Samyuktha....God Bless!
Logged
Alamalpha
New Member
*
Offline Offline

Posts: 13


« Reply #19 on: October 08, 2015, 08:50:13 AM »

Hi, can you inform where you did bmt, it was matched unrelated or haploidentical.
How's the kid now... my prayers
Logged
samyuktha
We will Emerge as Winners in Life.
Active Member
**
Offline Offline

Location: Chennai,India

Gender: Female
Posts: 71


We will overcome all the hurdles in Life.


« Reply #20 on: December 10, 2015, 01:19:35 AM »

Dear Friends,
            Samyuktha has completed 100 days post BMT.She is doing fine by God's blessings and all your well wishes.Her counts are fine except for platelets which has come down to 70,000.Her Doctor said not to worry  and it will take time for the cells to settle.She is on regular diet sans spice especially  pepper.Even honey is prohibited .Thet were planning to remove her central vein line on 9th December but because her platelet is less then 1,00,000 her Doctor  has postponed libe removal .Actually her platelets reduced from 96,000 to 70,000.Is this common for post BMT patients to have fluctuations in platelets ?

She is on below medications;

Pangraf : 0.5 mg - 0 - 0.25mg
Zovirax 400mg : 1-1-1
Pendits 400mg :1-0-1
Omnacortil 5mg : 1-1-1
Z&D : 0-1-0
Verz :100mg -0- 50mg
Cellcept 250mg : 1-0-1
Septran P : sat&Sun (2-0-2)
Hepatinic syrup :5ml-0-5ml
Calcimax syrup:5ml-5ml-5ml

We have done her 4 th Donor chemirism test on 8th December.Result yet to come.Hoping the best for all the Thalassemia  children.

GOD BLESS YOU ALL.

Take care,
Regards,
Viji

Logged

S.Vijayalakshmi
Sharmin
Global Moderator
Supreme Member
*****
Offline Offline

Location: Canada

Gender: Female
Posts: 4155


Little A


« Reply #21 on: December 10, 2015, 09:56:04 AM »

Viji,

That is such wonderful news!! I wish Samyuktha ongoing progress and good health.  My understanding is that their can be variation in platelet levels, but I do not know a lot about BMT.  I hope that the platelet issue resolves soon too.

Best,

Sharmin
Logged

Sharmin
Bostonian_04
Senior Member
****
Offline Offline

Location: Boston

Gender: Male
Posts: 392


« Reply #22 on: December 10, 2015, 06:17:33 PM »

Such a wonderful news! With god's blessings may Samyuktha gets stronger and healthier. sorry, I do not know much about BMT. Hopefully other Thalpal's will be able to answer your question. I am just happy to know Samyuktha's wonderful progress.
Logged

Quis custodiet ipsos custodes ? - Plato
Himanshu Kumar
Junior Member
***
Offline Offline

Gender: Female
Posts: 114


Aditi


« Reply #23 on: December 12, 2015, 11:04:39 PM »

Mcv and wbc are the two most critical indicators post bmt. Wbc formation is the first sign of engraftment and mcv indicates the size of rbc formation. For non thals mcv value ranfes between 80 -100. After bmt mcv keeps rising till it reaches 100 fl. And thereafter stabilises anywhere between 80 to 100 fl range. Of the three types of cells wbc,rbc snd platelets,  platelets are the slowest to develop in the body. I dont think there is anything to worry as long as mcv is in the range of 80 to 100 fl and wbc is above 4k.
Logged

Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.
samyuktha
We will Emerge as Winners in Life.
Active Member
**
Offline Offline

Location: Chennai,India

Gender: Female
Posts: 71


We will overcome all the hurdles in Life.


« Reply #24 on: December 15, 2015, 11:36:45 AM »

Dear Friends and Himanshu,

                                 Hope you all are doing fine.Today samyuktha had dressing at the hospital.She still has the central port near her right chest.The doctor will decide on removing the line once her platelet count increases to 1,00,000.

We did CBC for Samyuktha today.The Reports are as below; She is 106 days post BMT today.

WBC : 8.4  ( last week it was 10,900)

HB   : 13.9 (Last week also it was 13.9)

Platelets : 1,09,000  ( Last time it was 70,000)

So platelets have increased but WBC dropped a bit with a stable HB.

Hope everything is fine as of now.Got a little anxious.Next week we have OP with her Hematologist and we will do one more CBC and Tacrolymus test before she decides on Line removal for Samyuktha.

Please continue to keep Samyuktha in your prayers and thoughts.Thank you all for always being there to advice me and encourage me.

Take care all of you,

Regards,
Viji
Logged

S.Vijayalakshmi
samyuktha
We will Emerge as Winners in Life.
Active Member
**
Offline Offline

Location: Chennai,India

Gender: Female
Posts: 71


We will overcome all the hurdles in Life.


« Reply #25 on: January 01, 2016, 10:10:32 PM »

Dear Friends,

        Wish you all a very happy and healthy New Year 2016.

On December 25 th samyuktha had headache,vomiting and loose stools that were watery and greenish.She was admitted in the hospital for a day.They took CT scan and the report was normal.They took CBC,SGPT,CREATININE<MAGNESIUM tests and all report were normal.
She had developed GRADE 1 GVHD of the GUT.With steroids and Antibiotics by IV ,her condition became better and we got discharged from Hospital.
Her medicines were altered,Instead of CELLCEPT 250mg ,BUDEZ CR3mg is prescribed.Instead of Prednisolone 5mg , MEDROL 8mg and 4mg is prescribed.

She is fine as of now but is complaining of weak calf muscles  and her Doctor said its because of low Magnesium and we can give a correction by IV line.she has also developed BP for which ENVAS 2.5 mg is prescribed.

BMT is the only cure for Thalassemia but the Post BMT issues are more tedious than monthly transfusions.I pray to GOD to help us to get through this phase without further issues and problems.May God be with us all.'

Friends,Keep her in your prayers.we have completed 124 days post BMT.All because of GOD's grace and good wishes of kind people like you all.Please contione to pray for our dear Samyuktha.

Thank you all.
God Bless All Thalassemia children and patients with a positive cure.

Regards,
Viji
Logged

S.Vijayalakshmi
Lokkhi maa
Senior Member
****
Offline Offline

Location: Bangladesh

Gender: Female
Posts: 410



« Reply #26 on: January 01, 2016, 10:55:41 PM »



BMT is the only cure for Thalassemia but the Post BMT issues are more tedious than monthly transfusions.


Little angel like samyuktha how they are sufferings !! May Allah help all of them and keep well and good health..
Logged

Lokkhi Maa
Andy Battaglia
Administrator
Supreme Member
*****
Offline Offline

Location: In my heart, Maldives

Gender: Male
Posts: 8546


Will thal rule you or will you rule thal?


« Reply #27 on: January 04, 2016, 02:05:35 PM »

It definitely sounds like loss of magnesium.

Stay strong. Studies of patients post BMT have shown they have a significantly better quality of life than patients under normal transfusion/ chelation regimens. It takes time to get past all the initial issues, but they do pass.
Logged

Andy

All we are saying is give thals a chance.
Sharmin
Global Moderator
Supreme Member
*****
Offline Offline

Location: Canada

Gender: Female
Posts: 4155


Little A


« Reply #28 on: January 04, 2016, 02:28:34 PM »

Sounds like, while there have been a few bumps in the road, our little one is one her way to recovery and a healthy life.  This difficult time will pass and her quality of life will improve greatly - you are still within the initial stages.

Keeping your family in my prayers,

Sharmin
Logged

Sharmin
Canadian_Family
Supreme Member
*****
Offline Offline

Posts: 1064



« Reply #29 on: January 04, 2016, 03:33:45 PM »

After so much you and little one gone through, this will pass as well. It is road to recovery with few bumps.

In pray.
Logged

Regards.
Pages: « 1 2 3 4 5 6 » Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2015, Simple Machines Valid XHTML 1.0! Valid CSS!