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Thalassemia Patients and Friends and thalpal © A. Battaglia 2019





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This is Thalassemia Patients and Friends,
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Author Topic: Chelaton Therapy  (Read 35658 times)
Andy Battaglia
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« Reply #30 on: October 15, 2016, 12:34:01 PM »

Slowly raise the dose to 450 mg daily and she will be at the right dose. Continue splitting the dose.
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Lokkhi maa
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« Reply #31 on: October 16, 2016, 03:28:05 AM »


Thanks Andy..

450 mg !! Standard dose as I know 20mg/kg for that I have started 300 mg ..

Now she is only 3 yrs old..
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Lokkhi Maa
Andy Battaglia
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« Reply #32 on: October 18, 2016, 06:26:11 PM »

Standard dose for Asunra is 30 mg/kg unless the iron is completely under control. The child is young, so you can go slowly getting to that dose as long as the ferritin doesn't rise a lot.
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« Reply #33 on: October 22, 2016, 03:01:06 AM »


Ok Andy.

Thanks a lot.. 
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Lokkhi Maa
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« Reply #34 on: December 12, 2016, 01:20:36 AM »


Hello Andy,

Daily taking Asunra or daily continuing chelaton therapy damage liver is it right?

One of guardian of a thal child advised me not to continue chelaton or asunra daily basis.It will damage liver.So sometimes you may give the med to your child  Huh? Huh?
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Lokkhi Maa
Andy Battaglia
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« Reply #35 on: December 12, 2016, 01:20:33 PM »

Iron is the biggest danger to the liver. Chelation is necessary and when managed right, it will not damage the organs.
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Andy

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Lokkhi maa
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« Reply #36 on: December 14, 2016, 01:23:12 AM »

Thanks Andy.

So continuing chelaton is right..

Andy does asunra loss weight?After increasing the dose we observed that she loss her weight.Now she taking 400 mg daily.200 mg morning and 200 mg evening.Though she take plenty of water and fruits juice but her stool not clear daily and she felt pain bcoz she cry loudly that time...

What to do? Pls help
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Lokkhi Maa
Andy Battaglia
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« Reply #37 on: December 14, 2016, 05:26:56 PM »

Yes, you have to continue chelation. Asunra shouldn't cause weight loss unless it is causing diarrhea. Can you get figs? They are excellent for maintaining normal bowel activity.
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« Reply #38 on: December 15, 2016, 05:00:52 AM »


Thanks Andy 
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Lokkhi Maa
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« Reply #39 on: March 11, 2017, 05:25:47 AM »


Hello Andy,

How are you?

Hope you are doing well.

My baby is now 3.5 years old. She have taken her transfusion on last Monday and yesterday we have checked her HB and Ferritin level.

Test Result:

HB: 12
Serum Ferritin : 1559

Last Test was on October 16 :

Ferritin : 1870
HB:11

After 4 moths her ferritin 1559 from 1870 and she have taken monthly transfusions also.As I know after transfusion body take minimum 250 mg Iron.

So Andy Ferritin reduced 1500 !!

she is now taking 400 mg Asunra daily. 200 mg morning and 200 mg evening..

Dose is ok ?? 

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Lokkhi Maa
Andy Battaglia
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« Reply #40 on: March 11, 2017, 03:35:40 PM »

She is doing good but as her weight increases, her dose will need to rise. The basic formula is 30 mg/kg, so at 16 kg, her dose would be 480. 400 is good for now.
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Lokkhi maa
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« Reply #41 on: May 14, 2017, 05:27:38 AM »


Hello Andy,

My girl is now 18 kg so I want to giving her 450mg Asunra daily.Is it okay?

She have ADHD so her speech still not develop.For that I want to giving her Nordic Naturals Omega 3
1000 mg.

Which elements are as follows:
Supplement Facts
Serving Size: 2 Soft Gels
Servings per Container: 90
Amount Per Serving    % Daily Value*
Calories    20    
Calories from fat    20    
Total Fat    2.0 g    3%
Saturated Fat    0.6 g    3%
Trans Fat    0 g    †
Total Omega-3s    690 mg    †
EPA (Eicosapentaenoic Acid)    330 mg    †
DHA (Docosahexaenoic Acid)    220 mg    †
Other Omega-3s    140 mg    †
* Percent Daily Values are based on a 2,000 calorie diet.
† Daily Value not established.
Less than 5 mg of Cholesterol per serving.


Last month Doctor was also given test for Plasma Ammonia.Which result comes 80.00 umol/L.

Please advice about taking the above fish oil and share your experiences about the test result.
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Lokkhi Maa
Andy Battaglia
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« Reply #42 on: May 14, 2017, 11:45:50 AM »

The Asunra dose is fine. If there is any difficulty taking it, take part of the dose early in the day and the rest later in the day. Fish oil is a good supplement for thals and many thal doctors recommend it.
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Andy

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Lokkhi maa
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« Reply #43 on: May 16, 2017, 12:51:37 AM »


Hello Andy,

Thanks a lot.

Please advice me against the Plasma Ammonia Test.Which result comes 80.00 umol/L.Is it related with liver function?

The result is high from normal level.Is it causes for her monthly transfusion?
What to do?
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Lokkhi Maa
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« Reply #44 on: May 18, 2017, 07:00:36 AM »


Hello Andy,

Please advice..
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Lokkhi Maa
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