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Thalassemia Patients and Friends and thalpal Ā© A. Battaglia 2017





53913 Posts in 5667 Topics by 5689 Members
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A message for all  parents who are thals. Keeping your iron load under control is an absolute obligation to your children.
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Author Topic: Chelaton Therapy  (Read 12868 times)
Andy
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« Reply #45 on: May 18, 2017, 09:29:09 PM »

It can be  related to chelators. Drinking more water helps.
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« Reply #46 on: May 21, 2017, 06:12:05 AM »


Taking Asunra makes the problem ??

What does the result mean Andy?Doctor has not clear the report to us just said now need nothing to do.

The result of the report related to spleen issue?If possible could you please explain...
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Lokkhi Maa
Andy
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« Reply #47 on: May 26, 2017, 03:22:07 PM »

The slightly high ammonia might be related to the Asunra, but as I said, this can be helped by better hydration. Patients on chelators need to drink plenty of water.
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Andy

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Lokkhi maa
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« Reply #48 on: May 29, 2017, 02:39:53 AM »


Thanks Andy..

We are doing and will do as you advised...
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Lokkhi Maa
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« Reply #49 on: June 17, 2017, 03:51:04 AM »

Hello Andy,

Which fruits is best for taking Asunra?

I give asunra to my child with only banana and sometimes mix apple and banana...

Is it effective?
« Last Edit: June 19, 2017, 03:25:52 AM by Lokkhi maa » Logged

Lokkhi Maa
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« Reply #50 on: June 19, 2017, 03:29:19 AM »


Andy please advice...
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Lokkhi Maa
Andy
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« Reply #51 on: June 24, 2017, 12:29:58 PM »

It makes no difference how it is taken. If your child will take it the way you are giving it, then continue. If the child objects, try mixing it with different soft foods.
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Andy

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Lokkhi maa
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« Reply #52 on: July 02, 2017, 05:26:32 AM »


 
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Lokkhi Maa
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« Reply #53 on: July 12, 2017, 01:43:59 AM »


Hello Andy,

Is L-carnitine and amino acid same?
As L-carnitine increase HB is it workable for my child?
I also found that "L-carnitine supplements improves behavioral symptoms of ADHD and Autism Children."

http://www.nutraingredients-usa.com/Research/L-carnitine-helps-kids-with-autism-study-finds

My babies Plasma Ammonia result is 80.00 umol/L. This test have any connection with L-carnitine ?

Could you pls clear my concept and give your valuable advice..
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Lokkhi Maa
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« Reply #54 on: July 13, 2017, 05:33:10 AM »

Hello Andy,

Is L-carnitine and amino acid same?
As L-carnitine increase HB is it workable for my child?
I also found that "L-carnitine supplements improves behavioral symptoms of ADHD and Autism Children."

http://www.nutraingredients-usa.com/Research/L-carnitine-helps-kids-with-autism-study-finds

My babies Plasma Ammonia result is 80.00 umol/L. This test have any connection with L-carnitine ?

Could you pls clear my concept and give your valuable advice..
L-Carnitine, L-Arginine are all amino acids. These 30+ amino acids together forms the protein structure.
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Andy
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« Reply #55 on: July 16, 2017, 06:29:13 PM »

High ammonia is usually caused by meds. Make sure she gets plenty of water every day.
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Lokkhi maa
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« Reply #56 on: July 17, 2017, 06:52:39 AM »


Yes, she taking lots of water everyday..

As L-carnitine increase HB is it workable for my child?
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Lokkhi Maa
Andy
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« Reply #57 on: July 20, 2017, 06:02:40 PM »

A child can take L-carnitine. It is sold in liquid form, so it makes it easier to take.
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Andy

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Lokkhi maa
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« Reply #58 on: July 22, 2017, 06:43:29 AM »


Hello Andy,

As you advised the below med for me 1000 mg daily (3 tabs).

Levocarnitine
Tablet: Each tablet contains Levocarnitine USP 330 mg.


How much my child will take? She is 4 yrs old and weight 17 kg.
Is it safe for my child health?
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Lokkhi Maa
Andy
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« Reply #59 on: July 24, 2017, 06:50:50 PM »

Just one per day at this age.
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Andy

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